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General Message Board for Ankylosing Spondylitis and Related Diseases
06/16/19 11:21 PM
Hi all - I just went in for my blood work and found that my new rheumatologist added a series of immunoglobulin tests that I haven't had before. I'll ask my doctor about this when I next see her, but I'm curious if anyone here knows why these tests might be done? Is there a link between immunoglobulin and AS? A quick Google search didn't turn anything up...
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General Message Board for Ankylosing Spondylitis and Related Diseases
06/16/19 06:42 PM
Winston, your neurologist says that Enbrel-induced neuro symptoms usually start bilaterally in feet and lower legs, does that mean that Enbrel tends to affect the same specific region of the brain? I don’t know a lot about this topic.
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General Message Board for Ankylosing Spondylitis and Related Diseases
06/16/19 11:35 AM
Thanks so much for your reply!

I started the Enbrel last week. Still taking the indomethacin for now as the Enbrel enters my system. I think the therapy in conjunction with yoga has been helping a little bit. It at least feels like I am moving forward with treatment rather than stagnating. Just trying to stay positive, although it has been hard.
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General Message Board for Ankylosing Spondylitis and Related Diseases
06/15/19 03:38 PM
Quote
He referred me to an Infectious Disease Specialist, I see them next week so will know more then. In the meantime they
sent me for a chest xray. To be honest, I'm afraid of not treating it as much as I am afraid of treating it.


Update: Infectious Disease Specialist wants me to treat what all agree is Latent TB. She had no problem with putting it off until the fall, after I return from vacation. (Gives me time to change my mind.) My concern is, I have been working so hard on the NSD, supplements, probiotics and trying to fix my microbiome. Will taking the antibiotics for the TB going to mess that up? I did read the thread here discussing Rifaximin as a treatment, maybe the TB antibiotic Rifampin could be helpful? I haven't found anything on them and gut flora. I'd ask the IDS but their focus is on treating the infection not fixing my gut.

Also, my chest xray was clear with regards to TB but showed "hyperinflation with peribroncial cuffing" the Radiologist's impression was COPD. I searched here but did not find any discussion of that being an HLA-B27+ related issue? I had the report sent to my rheumatologist to see if he'll weigh in.

That's all for now.
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General Message Board for Ankylosing Spondylitis and Related Diseases
06/15/19 03:27 PM
Five weeks into my Enbrel I suddenly developed sinus , mucus in the throat and constant headaches along wit pins and needle sensation in the head as well dizzy feeling. My rheum at the time told me to skip my 6th shot and continue week later. I thought I was feeling better so I decided to take my 6th shot as recommended. Well things haven't been better since then. All previous symptoms have return along with me just being in constant run down fatigue feeling.

I have my upcoming shot and I don't know what to do with it. I left a message for my doc and waiting to hear back. On the side note, I am on doxy (prostate) + ceftin (prevention for sinus infection).

I'm feeling ill despite being on two abx and rheum isn't sure if this is a bacterial or viral aspect. What do you all do in similar situation?
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General Message Board for Ankylosing Spondylitis and Related Diseases
06/15/19 03:02 PM
Bless you all that have the time, intelligence and energy to read all these scientific papers. My old brain doesn't understand most of what you said but I feel I got the just of it. Hearing your thoughts are very helpful to me. I have nothing of substance to add to the discussion. I only post to let you know, I appreciate very much what you are sharing. Thank you.
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