Welcome, but sorry!!! At least you are a very active person, that will really help!!!
Here is some info. HLA-B27 gene test, never changes!!! It is a test for a gene, you either have it or not. 15% of Spondys do not have that gene, because there are other genes that they are finding out about. There is a lot of research on the various genes, but only the test for this. Having the gene does help you get diagnosed.
I skimmed the ending part, are you getting treatment? Enbrel or Humira? They both were like a miracle for me, until they stopped working. You probably won't have that issue since you are young and diagnosed fairly early in the disease. My disease came and went for years too. I tried various diets and thought each was a cure, until the darn disease came back. I beg of you to start treatment. Early aggressive treatment is the recommended plan instead of gradual step up. They found so much damage happened in the first year that you want to hit it with a baseball bat.
You might want to change your exercise program BUT exercise is soo important, it probably helped you so far. Pretty weight lifting is a no-no except for low weight. You want to not over do it. I had to switch to swimming instead of hiking because my ankles are too damaged but now I love swimming.
Best to ask a pharmacist if the tablet can be cut in half without creating an imbalance of the active ingedients and filler used to create the tablet. I take mobic with no side effect so it may be thst you're having a reaction to someting in the tablet. Given the cardiovascular related side effects, have you mentioned your headache to your doctor?
I wanted to say thank you for this thread. I read it and it has been an encouragement over the past few weeks. I did not comment because I had not yet experienced turning that corner, but seeing that others have helped me. I was feeling frustrated, overwhelmed, depressed, fear, grief, anger. In the past few months I have been helped by medication with pain, stiffness, and fatigue, which has helped my attitude immensely. I gave up some bad habits. I started strength training, swimming, PT, yoga. I'm on a "diet" per Dr's advice..... I'm feeling more positive and energetic and I am mostly grateful for this change. The other day I had some pain flare up and I got really angry about the fact that I have to exercise every day now which is not my preference!!!! I was like this is bullshit why can't I have a day off????!!! But overall it is good and I am thankful for your taking the time to share your stories, for how much grace and understanding is shown in this community. Compassion and seeing your strength does help me.