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General Message Board for Ankylosing Spondylitis and Related Diseases
06/18/18 03:03 PM
anyone have this issue on beta blockers, been on them for a while usually resting heart rate of 55 to 60 and now in the 40's out of blue. Echo is fine. Waiting on recent holter test. Previous holter fine. No symptoms. On the lowest dosage possible 25mg.
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General Message Board for Ankylosing Spondylitis and Related Diseases
06/03/18 02:52 PM
I have posted for a decade it seems but I got the as colitis combo and have been having flair up for the past week doc increased prednisone to 15 mgs and added some ulser med I forget the name. I've had some relief. It's mostly the colitis part. Did start new bio stelera in April too. Any people have experience with switching bios and flair ups. Should I add some Imodium to my meds. Any suggestions would be helpful.
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Military & Veterans Board
06/02/18 05:36 PM
I have a long established service connected injury involving my right knee and resulting arthritis. I have recently been approved for care in the VA system because of that condition and was "priority 2". It wasn't ever necessary to go to the VA in the past except for the initial evaluation but that was long ago. It was apparently clear cut and only involved a couple of visits and then was considered "static".

Now, 40 years later, I am retired and still have health insurance through my spouse. She plans to retire within the next year or two and we both will be medicare eligible. I was diagnosed with reactive arthritis 25 years ago but that had nothing to do with the military. I have had problems with complications from systemic inflammation and interested in care through the VA for my future needs. Since I am eligible, will my future care be only for arthritis in my knee or arthritis anywhere it exists since the treatments overlap.

I had bilateral total knee replacements a couple of years ago but not at the VA. The VA did see me afterwards and adjusted the disability rating from 20% to 30%. That seemed overly generous because technically, the arthritis in my right knee doesn't exist anymore. I have plenty of arthritis elsewhere

My hope is that the VA system will be my "medicare supplement" for medications and whatever else arises. I am interested in being referred to the VA in Denver and perhaps seeing a Dr. Caplan. He gave the talk recently for Spondyllitis Association of America about AS. It spoke to me since I have a related disease. I was seen last year at a local VA and they said they would be happy to refer me to the rheumatologist at that VA. I didn't ask if I could travel elsewhere. I probably could go to the University of Colorado where he also practices. I would rather it be through the VA and I can travel at my own expense if necessary. I would be interested in his recommendations but probably get ongoing care locally. Denver would work well because it isn't that far and I would have a reason to visit a relative.

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Support Groups Information
06/01/18 04:58 PM
Here are a list of our upcoming #spondylitis support group meetings for this month. For all meeting details in your area, please visit our support group page:

6/2/18: Spokane, WA
6/3/18: Orlando, FL
6/9/18: Dallas, TX
6/9/18: Baltimore, MD
6/9/18: Phoenix, AZ
6/9/18: Lansing, MI
6/9/18: Southern California Parents
6/10/18: Los Angeles, CA
6/23/18: Seattle, WA
6/23/18: Boston, MA
6/27/18: Chicago, IL
6/28/18: NYC, NY
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Alternative Treatment / Diet Discussion
05/31/18 01:53 PM
I have been suffering from dry mouth problems for a long time. It's very painful, especially in the mornings. I really just wanted it to stop.

I have tried many products but none of them are effective enough. I've tried pharmacy after pharmacy, I've even taken a few from my dentist. It's gotten to a point where I've begun to trust them less and less.

I can see that many people are also having the same problems as me. It's honestly very tiring to deal with, don't you think we deserve a break?

I finally found a natural and effective remedy. This can definitely help some of us. It was very effective for me. This survey can help determine if it is for you:
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For Parents and Teens
05/29/18 07:58 PM
Sending an invitation to any parents in the Southern California area that would like to attend our first parent support group meeting.

Saturday, June 9th, 2018
11:30AM - 1:30PM

San Marcos Library
2 Civic Center Dr.
San Marcos, CA 92069

More details here:
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