After being treated by VA rheumatologists for AS for 8 years, I have been told that I do not have spondylitis. I was told at least twice during that time by my Dr that I did definitely did have the disease and just before the Dr cut me loose, I was seen by another rheumatologist in the VA system who said the inflammation on my current CT scan would only be caused by AS or something related to it. The VA would not do an MRI to confirm the diagnosis.
Has anyone else had this experience or heard of anyone else who has?
I’m new here and have been following a few threads. I am 36 years old and was diagnosed with AS back in 2009 (although I had symptoms and issues since 2002). I have started to notice a pattern of flares every time my period starts. My rheumatologist thinks it’s not related, which is irritating because every month without fail a flare happens during that one week and 3 days leading up to it. I know there isn’t much to be done about it, but it makes me miserable. Does anyone else notice anything when their monthly flow visits? Oh and I’m on cosentyx right now, which doesn’t really help me, another frustrating thing as I’ve been on them all now. Thanks for your replies.