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General Message Board for Ankylosing Spondylitis and Related Diseases
Hi, I'm sorry you're here with these symptoms. I was diagnosed with ankylosing spondylitis because of SI joint pain which radiated through my legs. Enbrel conquered that pain fortunately. Years later I got plantar fasciitis and for 18 months suffered
General Message Board for Ankylosing Spondylitis and Related Diseases
Jump to new posts Re: Starting Humira tomorrow! by Miguelito @ 04/23/17 06:35 PM

Just an update. Doing very good, but I wanted to mention that I changed from the pen to the syringe and it is far less painful and I don't dread it anymore. Go for the syringe, no question.
General Message Board for Ankylosing Spondylitis and Related Diseases
Jump to new posts Re: New Hip soon......... by Miguelito @ 04/23/17 06:29 PM

Investigate hip resurfacing. I had both mine done with Dr. Gross. Better than THR, no question. Mike
General Message Board for Ankylosing Spondylitis and Related Diseases
There is an article in the most recent issue of SAA, which I have not read yet. I know there are bits of genes and they are finding more and more. Be sure to keep a rheumy or an internist in the loop, because mine came and went mildly for 20 some
General Message Board for Ankylosing Spondylitis and Related Diseases
AS has many presentations. Many are insidious and take a long time to reveal themselves. Pain and decreasing mobility (chest expansion, bending etc) were predictive long before newer technologies arrived on the scene. A good Rheum knew how to differe
General Message Board for Ankylosing Spondylitis and Related Diseases
Thank you for the clarification. Even though it wasn't the answer I wanted to hear. My doc flip flopped between axial and peripheral with no change in symptoms which I didn't understand. The xray of my back and hips showed no changes to the joints.
General Message Board for Ankylosing Spondylitis and Related Diseases
Jump to new posts Re: New here! and a Question by Nicole_B @ 04/23/17 02:05 AM

Thank you for the advice Tacitus! I will definitely look into the diet thing. As for the soft-tissue injuries, they have all begun while I was consistently exercising in some way that could cause such an injury, and some of them were a relatively s
General Message Board for Ankylosing Spondylitis and Related Diseases
Jump to new posts Re: Positive AS stories by Milisdowered @ 04/22/17 10:50 AM

hi everyone... and thanks... just wanted to say that i just got diagnosed and that i search for information. whatever the case, i found this thread full of positive stories which gave me hope. thanks guys... i know that hope is sometimes more importa
General Message Board for Ankylosing Spondylitis and Related Diseases
Hello, alamode: I suppose that throwing words together is comforting for some, but "peripheral spondyloarthritis?" Think about those two opposite words and how they relate to Your case where You do have PAIN in SIJs and back! I want to c
General Message Board for Ankylosing Spondylitis and Related Diseases
Jump to new posts DNA testing, anyone? AS genes besides HLA-B27. by aprila @ 04/22/17 07:23 AM

I am HLA-b27 negative and originally diagnosed with USp. Years later I've quit my Rheumy and have been doing natural treatments. When I'm vigilant I have relief. When I eat cruise food and accept all the Christmas treats my neighbors bring...not so m
General Message Board for Ankylosing Spondylitis and Related Diseases
They are the same disease, it just acts differently in different people could be different genes. Anna
General Message Board for Ankylosing Spondylitis and Related Diseases
Jump to new posts Re: New IL 17 drugs hits the market by CB in CA @ 04/21/17 02:49 PM

My Rheumatologist is the investigator for the study on Taltz. The paperwork says this: The objective is to find out whether ixekizumab can help patients with radiographic axial spondyloarthritis, how often ixekizumab should be given to patients an
General Message Board for Ankylosing Spondylitis and Related Diseases
Jump to new posts Re: Life is not good. Who to turn? by ElinAslanyan @ 04/21/17 02:44 PM

Hi all, jumping in and locking the topic. I think any potential productive and educational value of it has been met at this point.
General Message Board for Ankylosing Spondylitis and Related Diseases
thanks man i thought i deleted all instances of it. It was on there 5x. heh. What I am not understanding is that they are still saying that I PROBABLY, man i hate that word, had a large stone stuck and it passed. All imaging showed a single tiny ston
General Message Board for Ankylosing Spondylitis and Related Diseases
Jump to new posts Re: Question about PsA and organ inflammation by Winston @ 04/21/17 02:05 PM

I think you might want to delete your social security number from that document. Yikes.
General Message Board for Ankylosing Spondylitis and Related Diseases
Just had a talk with my rheum and asked if my gallbladder removal could be associated with psoriasis or PsA, he said " oh no, PsA affects the joints not organs ". He wouldnt explain what the pathology report meant. I could use some info if
General Message Board for Ankylosing Spondylitis and Related Diseases
Jump to new posts Re: New here! and a Question by Tacitus @ 04/21/17 10:42 AM

Hello, Nicole_B: The answer to Your question is that there are no coincidences. If You really injure a body part enough to develop some arthritis and especially at Your age--You will KNOW absolutely when it was injured. In other words we don't do
General Message Board for Ankylosing Spondylitis and Related Diseases
Jump to new posts Re: Life is not good. Who to turn? by guarding21 @ 04/21/17 08:42 AM

I have to say you need to see a psychologist. A lot of your symptoms seem stress related, tachy, high bp... The medicines we take does not mean 0 pain, it's suppose to help though. Sounds like you expect to be back to normal over night.
Athletes Against AS - Tips For Staying Active With AS
Jump to new posts Re: Yoga? by sjb @ 04/21/17 08:21 AM

Thank you both so much for your responses. I appreciate the advice and support.
General Message Board for Ankylosing Spondylitis and Related Diseases
Jump to new posts Newly diagnosed with peripheral spondyloarthritis by alamode @ 04/21/17 08:02 AM

My doc finally nailed down a diagnosis of peripheral spondyloarthritis. I started sulfalazine yesterday. I am still slightly confused by these diseases. I have no radiological changes to my SI joints, but a lot of pain in them and my back. Am I just
General Message Board for Ankylosing Spondylitis and Related Diseases
Jump to new posts Re: New here! and a Question by Nicole_B @ 04/21/17 06:12 AM

Thanks for the responses and advice! The spinal specialist I saw was an "Interventional Spine Physiatrist" -- he does physical medicine/rehab and pain management, and the diagnosis of painful spine conditions. Not sure if that falls under
General Message Board for Ankylosing Spondylitis and Related Diseases
Jump to new posts Re: Life is not good. Who to turn? by seymour @ 04/20/17 08:16 PM

Well if you know better than everybody why do you even bother asking us anything? We have no answers.
General Message Board for Ankylosing Spondylitis and Related Diseases
Jump to new posts Re: What's left after all these drugs? by Headunderwater @ 04/20/17 04:16 PM

Thanks so much for this advice! It's nice to bounce this stuff off other people.
General Message Board for Ankylosing Spondylitis and Related Diseases
Jump to new posts Re: Life is not good. Who to turn? by worldofme @ 04/20/17 04:14 PM

Yes you can have chronic infection in your prostate is call slow growth bacteria. Chronic bacteria in body... What your saying is blood infection. I'm talking about prostate infection.
General Message Board for Ankylosing Spondylitis and Related Diseases
Jump to new posts Re: Life is not good. Who to turn? by worldofme @ 04/20/17 04:13 PM

I took humira for 3 months. Got shortness of breath doc stopped it. Went on cimzia for two months got a rash and urethritis worse doc stopped. 3 month is gold. My main concern is palpitations and arthritis is only spine pain. My pain us there
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