Spondylitis Association of America

whats your uveitis feel like

Posted By: awesomeman

whats your uveitis feel like - 05/02/18 05:40 PM

Just curious it looks like my left eye is starting to act up and they're seeing some signs of inflammation. In my case my eye doesn't feel dry and isn't red. My eyeball just hurts....kinda like I punched in the eye. Out of curiosity, what does your uveitis feel like
Posted By: SouthernMoss

Re: whats your uveitis feel like - 05/02/18 09:22 PM

It depends on the location of the uveitis as to whether it hurts or not. Anterior uveitis (also called iritis) is in the front of the eye and can be REALLY painful. Intermediate uveitis (in the middle of the eye, also called pars planitis) and posterior uveitis (in the back of the eye) are typically not painful.

Anterior uveitis / iritis is the type of uveitis normally associated with AS. For me, it felt like someone poking my eye with an ice pick. If I closed my eye and gently pressed my eyelid, the eye felt very sore and painful. Light sensitivity is another symptom. I had to wear sunglasses even indoors when the iritis got really bad. My eye never felt especially dry until after I started the steroid drops, which made it feel very dry. My eye never looked bloodshot, just irritated, and sometimes had the red ring around the iris.
Posted By: awesomeman

Re: whats your uveitis feel like - 05/03/18 02:37 PM

yeah thats pretty much what I was feeling. What a kick in the nuts man. I've really been hoping to avoid eye issues, but yeah f*ck this AS
Posted By: WhiteCell

Re: whats your uveitis feel like - 05/03/18 09:37 PM

My symptoms were extreme sensitivity to light, ridiculous pain and redness.

Its been ten years since a bout like that. Thank Remicade for that.
Posted By: Brody96

Re: whats your uveitis feel like - 05/04/18 03:24 AM

For me it came on relatively suddenly and felt like an intense ache/sharp poking that didn’t let up. I was extremely sensitive to the light too but my eye was also red (not super red, but definitely irritated looking). I didn’t have any dryness with it but I kept my eye closed as much as possible too until I got to my eye doctor’s office.
Posted By: achala

Re: whats your uveitis feel like - 05/24/18 07:17 PM

mine is the 3rd episode in 7 months. the 2nd one was hard. first few days I had dry like eye, then a bit red, the next few days upper left corner of the eye was sore/painful, then all went red, light sensitive, painful, totally blurred vision and i couldnt open my pupil even with corticosteroids for 1 week. ouch. then now I am on the 3rd flare, noticed quite early, with a little bit of redness, when i roll the eye feels a bit like i lost traction there, - monitoring carefully with tobradex
Posted By: Miguelito

Re: whats your uveitis feel like - 05/25/18 11:54 AM

I had one bout of unilateral, anterior uveitis, which is, I believe, the hallmark AS uveitis. Mine didn't hurt that I noticed, at all. For a couple of weeks I thought that I had just burst a blood vessel in my eye while holding my breath underwater. Then my mom said it looked terrible, and did it bother my sight? I said no, but closed my other eye and discovered I couldn't see very well at all with that eye.

I went to the local ER that night (we were going on vacation the next day) and was there for 6 or 8 hours while they tried to figure out what was wrong. They were about to have me go to an eye hospital in the city when the doctor found out (I forget how) that I had arthritis, and then he realized what it was.

I have been very sensitive to sunlight for a number of years. Ten? More? no idea.

As an aside, two days later while on vacation I scratched the cornea on my other eye while snapping a branch over my knee while making a fire. THAT hurt! THAT was the most miserable night of my life (even compared to vertigo, or one of these fevers where you wish you were dead). I spent an entire night awake with both my eyes closed, and the only thing that reduced the pain to livable was by staring my eyes up and to one corner, while concentrating on the number thirteen (I have no idea why the latter mattered, but clearly certain thoughts cause the eyes to move). Don't EVER snap a branch without either closing your eyes or wearing goggles.
Posted By: achala

Re: whats your uveitis feel like - 05/29/18 01:53 PM

hi, just a quick question.
most recent Uveitis attack left some floaters in both of my eyes (strange because the right eye was not affected by Uveitis). There are some floaters inside the vitreous which I didnt have in the past. I have been told those are due to ageing, and for people with frequent eye inflammations cannot be resolved trough vitrectomy.
have you faced this issue yourself anyone?
thanks
Posted By: seymour

Re: whats your uveitis feel like - 05/29/18 10:17 PM

Originally Posted by achala
hi, just a quick question.
most recent Uveitis attack left some floaters in both of my eyes (strange because the right eye was not affected by Uveitis). There are some floaters inside the vitreous which I didnt have in the past. I have been told those are due to ageing, and for people with frequent eye inflammations cannot be resolved trough vitrectomy.
have you faced this issue yourself anyone?
thanks


I haven’t suffered from uveitis yet but I have floaters that I only see when looking at a bright blue sky.

If they’re not super intrusive I wouldn’t worry.
Posted By: Pixie

Re: whats your uveitis feel like - 06/15/18 05:07 AM

I have had 5 iritis flares in the last year. I am experiencing a flare in my right eye now. Stats off feeling irritated and looks pinkish red. By next day it feels like you were hit in the eye with a hard baseball. Light sensitivity followed by blurred and reduced vision and red streaks around the iris. Your pupil my even change shape. I learned the hard way that just because the pain stops there is still inflammation. At the first sign of pain and irritation see an eye doctor.
My first flare was a 4+. All I could see w in my right eye was white cotton fuzz (white blood cells). My iris stuck to my lens and my eye pressure was high. Took 6 months of steroid drops and dilating drops to finally stop the flare. My repeated flares in both eyes led to multiple floaters, starting cataracts, virtuous detachment and reduced vision. The floaters fade and you get used to them. I have over 30 spots and 2 squiggle lines in my vision all the time and I still work in an office with dual monitors. No way to have them removed. They will just come back.
I have had lots of blood tests. All came back normal just my ANA pattern is speckled. I am a 37 year old female and HLA B27 negative. It took three facet joint injections and a Rhizyotomy to reduce my back pain. It was my eye doctor that made the connection to AS and referred me to a rheumatologist who diagnosed me with Ankylosing Spondylitis. My hips are fuzed and I have a vertebra in my upper back starting to fuze. I also have scoliosis, hyper mobile joints and hyperhidrosis.
Humira works great. It's just when I have to pause treatment to take antibiotics for sinus issues then I get a flare and my pain increases. I now know what it feels like and I just start using steroid drops before I see my eye doctor. He makes sure I have a bottle of Pred Forte (steroid) and Homotropaline (dialating) drops at all times since AS can cause repeated flares. Humira works great at stopping any flares when I am on it.
Posted By: apfurste

Re: whats your uveitis feel like - 07/11/18 10:37 PM

I live at 5500 feet and the UV is intense here. I carry the pred forte and immediately nip the iritis before it gets out of control. Up until lately, this was the worst part of my AS. I ALWAYS WEAR MY SUNGLASSES OUTSIDE. I cant stress this enough. It is very good for prevention.
Posted By: achala

Re: whats your uveitis feel like - 08/24/18 09:51 AM

yes, this is quite annoying. just before I managed to calm down the left eye the right one flared up and i ended up with bilateral Iritis.
back on steroids, but this time the are not so efficient I fear.
I ve noticed that adding NSAID can help to keep it at bay a little.

The doctors here Ophthalmologist/Rheumatologist want to put me on Sulfasalazine for this issue, before eventually considering biologic. Would that work? I am getting a little bit weary as this is the 4th time in a year I have Iritis and 1st time bilateral. My eyes are constantly inflamed!!!
Posted By: WhiteCell

Re: whats your uveitis feel like - 08/24/18 12:35 PM

In my view it's a bandaid. Remicade 5mg/kg is the treatment for AS and Uveitis. Maybe a 2nd opinion would be warranted.
Posted By: DadCue

Re: whats your uveitis feel like - 08/24/18 01:30 PM

I agree with Whitecell. I would think steroids and NSAIDS's with your diagnosis if Eosinophilic Gastritis would suggest a different approach but I'm not a doctor. It seems your symptoms and diagnosis are recent so perhaps there is some kind of protocol that is done before moving to a biologic. I believe it is an understatement to say recurrent iridociclitis is "quite annoying". I hope they get it under control quickly.
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