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#82419 - 12/18/07 10:57 PM Do you know your Sed Rate?
cassilynn Offline
Registered Visitor


Registered: 09/30/07
Posts: 835
Loc: Indiana
Mine was 20.....

I read in another thread that 30 was used in a diagnosis, I was always told that 70 is high, not 20-30?????

Anyone have thoughts?? Or know what theirs is?

Cass
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Cassilynn

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#82420 - 12/19/07 02:54 AM Re: Do you know your Sed Rate?
astrologynut Offline
Registered Visitor


Registered: 03/07/07
Posts: 716
Loc: United Kingdom
I have no idea what my sed rate is at the moment but thankfully the rheumatology department here where I live has started handing out booklets to those of us on anti-tnfs so we can keep a permanent record of all our blood results.

When I was 14, shortly after my first iritis attack had died down (after 3 months treatment) I was ill with some kind of infection, my joints were very painful and I had a sed rate of 43 which the doctor said was high for a teenager.
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#82421 - 12/19/07 05:21 AM Re: Do you know your Sed Rate?
Merlin Offline
Registered Visitor


Registered: 01/24/07
Posts: 2302
Loc: Florida
Mine went up to 60 something, prior to treatment. Now it is down around 15. I don't know what is considered high.
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Lisa K.
"Attitude is everything"

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#82422 - 12/19/07 06:21 AM Re: Do you know your Sed Rate?
allinthefamily Offline
Registered Visitor


Registered: 05/30/07
Posts: 86
Loc: St. louis
Well it is a good thing they DON"T go by mine. It has always been no higher than 9 and after I went on orencia it went down to 0. I never have a CRP either but bone scan shows inflammation and I always have an elevated white cell count. When I asked my RD about it he says its inflammation......go figure I am one of the different ones. Terry
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DX PA in 2007 and possible MS 2004 with nystagmus , iritis, migrains, Cervical DDD,
Meds: zonsiamide, frova, Rituxan, mortrin, vicodin

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#82423 - 12/19/07 06:38 AM Re: Do you know your Sed Rate?
drizzit Offline
Registered Visitor


Registered: 02/18/06
Posts: 1211
Loc: Billings, Montana
SED is interesting and my goes up and down with my flares. I can almost track disease activity with it. I wish I had a home kit to test mine LOL

I go from a low of 40 to a high of 110

When I am in the high range I know it. My last one was a 52 and I feel decent right now and the AS is fairly quiet. Before that it was 98 and I was pretty stiff. My AS is mile to moderate and I have no fusion but my SED gets up there pretty good. I think it is the bursitis in my knee that sets it off frankly.

I haven't seen anything in the 30's since well before 2001
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No families take so little medicine as those of doctors, except those of apothecaries.

Oliver Wendell Holmes

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#82424 - 12/19/07 07:30 AM Re: Do you know your Sed Rate?
SuzzwithPA Offline
Registered Visitor


Registered: 10/04/07
Posts: 257
Loc: Burb of Philly
Sedimentation Rates can change very quickly.
Usually when a person is in the stages of diagnosis, a Rheumatologist will run the Sed Rate and CReactive Protein every 2 months to see if inflammation is generally higher in the body.
In the beginning mine was over 90 to 100. Then for a long time it was around 30 to 40. Usually anything over 30 means you have inflammation in your body, and are likely in "active disease process" and the goal is to get that inflammation down with the medications.
Now mine runs 10-15 or so, which is good, but I'm on Humira and prednisone as DMARDS.
When mine ran high I ended up a lot damage. \:\(
Yet that doesn't happen to everyone. I think it depends on the disease and the severity of the disease. Who knows.... \:\(
I hope you get answers soon. Feeling awful is no fun at all....
xoxo
Susan
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PA/RA/OA/DDD. Meds:Humira every 7 days, 3mg of pred, and more for other things.

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#82425 - 12/19/07 09:11 AM Re: Do you know your Sed Rate?
Spenser23 Offline
Registered Visitor


Registered: 11/28/01
Posts: 4010
Loc: New York, NY, USA
According to Medicinenet.com:

"The normal sedimentation rate (Westergren method) for males is 0-15 millimeters per hour, females is 0-20 millimeters per hour ..."

http://www.medicinenet.com/sedimentation_rate/article.htm

Before Remicade, my SED rate hovered around 65. Since Remicade, it hovers between 0 and 1.


Spenser23
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#82426 - 12/19/07 09:49 AM Re: Do you know your Sed Rate?
Tacitus Offline
Registered Visitor


Registered: 06/06/03
Posts: 2046
Loc: Palm Springs area, California
Hi, Cass:

I am an 'indicator,' and my ESR tracks disease activity. Pre-diet it was almost always at least 45 and often over 100. When over 26, I can really feel the AS creeping back and it takes a week to get it back down to 18, which has become 'normal' for me, perhaps due to all the NSAIDs for so many years.

Recently, however, I had one result that did not track symptoms and I am investigating this now.

Although we are given a normal range of 0 to 20, a reading at 20 is actually quite high and in a person with AS should be considered a warning.

Regards,
John
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Nota Bene: I am not a medical doctor, and my views do not represent the opinions of the SAA
Professor Alan Ebringer on Diet and AS
Hodie mihi cras tibi. DO IT (diet) or be done to.

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#82427 - 12/19/07 10:18 AM Re: Do you know your Sed Rate?
jackieb Offline
Registered Visitor


Registered: 04/16/07
Posts: 1497
Loc: Saltville
Mine is 26 and I have never been told it was high. I felt it was high and could feel the inflamation in my joints and spine. My dr said unless it was over 35 not to worry. I often feel they are going to wait until I am completely frozen in place before they worry.
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Jackie

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#82428 - 12/19/07 10:20 AM Re: Do you know your Sed Rate?
djw5 Offline
Member


Registered: 12/07/02
Posts: 3
Loc: wilmington,delaware
Hi, I am scheduled to have some blood work done to check sed rate and crp levels.I have been pain free over the last 2 years and not taking any kind of medication.That changed over the last month, my lower back has been acting up. Yesterday i started on Celebrex, dosage 200mg daily and actually feeling much better.I really want to know from the blood work if inflammation markers [sed & crp] are high. Should I stop the Celebrex for a few days and then proceed to have the blood work done to have a more accurate results.

Thanks,,

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