My daughter has just been diagnosed with AS. For 5 years I have been trying to get her to follow up with doctors. She is very stiff and her walking is a mess. Her fear of having something wrong with her kept her from seeing any doctors, now that she finally insisted she had back trouble to a doctor she was referred to a physical therapist who says she might be able to make 20% improvement if she works hard.
I am so sad that I could not drag her to the doctor, that she never covered all of her symptoms with the doctors, that even when she could barely walk doctors still were saying take ibuprofin and muscle relaxants,it was a physical Therapist who made the initial dx and recommendation for a rheumatologist.