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Re: Welcome to the Support Groups Information Forum! [Re: Ticklepingaloo] #134665
02/11/09 12:14 AM
02/11/09 12:14 AM
Joined: May 2008
Posts: 90
ElinAslanyan Offline

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ElinAslanyan  Offline

Registered Visitor
Joined: May 2008
Posts: 90
Dear Ticklepingaloo,

I would suggest posting this on the General Discussion forum as it gets the most reads and replies, and perhaps on the disability benefits forum as well.





Elin Aslanyan

Director of Programs
Editor-in-Chief, Spondylitis Plus
Forum Moderator

Spondylitis Association of America
Re: Welcome to the Support Groups Information Forum! [Re: Ticklepingaloo] #135553
02/21/09 03:55 AM
02/21/09 03:55 AM
Joined: Feb 2009
Posts: 3
Michigan/Ohio
H
heartsinohio Offline
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heartsinohio  Offline
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Joined: Feb 2009
Posts: 3
Michigan/Ohio
Are there any support groups in SE Michigan? I am newly diagnosed, but have suffered with this for about 9 years. Thanks! Patricia


Pattie
Re: Welcome to the Support Groups Information Forum! [Re: Ticklepingaloo] #136065
02/28/09 06:30 AM
02/28/09 06:30 AM
Joined: Feb 2009
Posts: 4
Fargo ND
J
JMJ Offline
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JMJ  Offline
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J
Joined: Feb 2009
Posts: 4
Fargo ND
Hello, I guess this is one of many posts that say I am also new to this disease. I have been suffering with this disease for 5 years and have always thought it too be growing pains even when I could not make it to school because I could not move. Now I am just starting the diagnosing process and hoping to find some hope and support here. Any support groups near the Fargo ND or Sioux Falls SD area. Thanks God Bless


Jesus Mary Joseph, God Bless
Re: Welcome to the Support Groups Information Forum! [Re: JMJ] #139277
04/06/09 04:05 AM
04/06/09 04:05 AM
Joined: Mar 2009
Posts: 54
Houston
A
auntiecole Offline
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auntiecole  Offline
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A
Joined: Mar 2009
Posts: 54
Houston
any support groups in houston?


We don't know who we are until we see what we can do. --Martha Grimes

AS fighter w/ chronic iritis, Metabolic Syndrome (Diabetes, HBP, High Cholest), PCOS
Re: Welcome to the Support Groups Information Forum! [Re: Ticklepingaloo] #232863
05/07/12 05:56 PM
05/07/12 05:56 PM
Joined: May 2012
Posts: 4
S
Saurav Offline
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Saurav  Offline
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Joined: May 2012
Posts: 4
Can A Person Havin Spondylitis ankylosing for over 40 years be cured..??

Re: Welcome to the Support Groups Information Forum! [Re: Melissa Velez] #240963
09/24/12 02:03 AM
09/24/12 02:03 AM
Joined: Sep 2012
Posts: 7
Pacific Northwest
B
Bec624 Offline
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Bec624  Offline
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Joined: Sep 2012
Posts: 7
Pacific Northwest
Support Groups in Washington State?


30F, after years of pain dx w/fibro, Now newly dx with A.S. 1st Humeria injection 9/20/12. Tested neg. for gene, MRI shows spine inflammation and Bone spurs. Shoulder sugery 12/2011, for torn rotator cuff and extensive bone growth that was limiting my ROM.Symptoms pain, fatigue, blurry vision, severe kyphosis, joint swelling, low grade fevers. Graduated Nursing school 2011, back in school working on my Bachelors in Public Health at CWU, Plan to apply to medical school 2013-2014.
Re: Welcome to the Support Groups Information Forum! [Re: Melissa Velez] #266083
04/30/14 06:10 PM
04/30/14 06:10 PM
Joined: Jan 2014
Posts: 3
sc
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sayccrn Offline
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Joined: Jan 2014
Posts: 3
sc
Officially got my PSA diagnosis yesterday. I just moved to Stroudsburg, PA, so I know of no one or even a doctor up here that deals with PSA. I am assuming I got it from my father who basically has no spine left. I worry for my daughter who is 16 and already has everything I have. I think at least two of my sisters have it as well, but they won't listen to me, what do I know, right?
I also have fibro, celiac, hashimotto's Thyroidistis (fancy term for Immuniocomprosmised hypothyroid)and something going on nuero wise that no one can place. Probably another immune thing. I've been suffereing since I was a late teen early adult, about 29 years, and finally someone believed me and now I can get treated and support, if I knew how in this new place.
Thank you.
sally

Re: Welcome to the Support Groups Information Forum! [Re: Melissa Velez] #270749
03/23/15 09:35 PM
03/23/15 09:35 PM
Joined: Dec 2014
Posts: 46
Texas
N
newjoy82 Offline
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newjoy82  Offline
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Joined: Dec 2014
Posts: 46
Texas
Does anyone know of any groups in the Dallas, TX area? Thanks!


32 year old single mom of 9 year old son.
Misdiagnosed with Fibromyalgia at 16. Diagnosed Dec. 2014 with undifferentiated spondyloarthropathy.

Taking naproxen 500mg 2x daily, pantoprazole (so the naproxen doesn't kill my stomach), tramadol 50mg (rarely - don't like how it makes me feel) & plaquenil 200mg nightly. Gralise 1800mg & 10mg amitriptyline for migraines.
Re: Welcome to the Support Groups Information Forum! [Re: Melissa Velez] #270751
03/23/15 10:12 PM
03/23/15 10:12 PM
Joined: Jun 2012
Posts: 514
Los Angeles, CA
RAHMBA Offline
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RAHMBA  Offline
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Joined: Jun 2012
Posts: 514
Los Angeles, CA


AS, U C, Iritis, migraines. HLA-B27neg. Yoga (instructor) & spin. No meds at this time. Dx 1989. SAA member/donor since 1993. All my posts are personal opinion/feelings and do not represent the SAA. Help find a cure & support others by donating to the SAA.
Re: Welcome to the Support Groups Information Forum! [Re: memerelisa] #280847
07/26/18 03:09 PM
07/26/18 03:09 PM
Joined: Jun 2018
Posts: 3
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onlly1L Offline
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onlly1L  Offline
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Joined: Jun 2018
Posts: 3
Prenison can make it worse because it can make Osteoporosis worse, right?

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