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#155525 - 09/13/09 12:42 PM low dose naltrexone??  
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strike333 Offline
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Hey guys, I'm considering low dose naltrexone. I have tried searching previous posting about it but haven't found too much information. I read a couple of AS patient found some benefit. Anyone tried this and what are the results?

#155563 - 09/13/09 04:38 PM Re: low dose naltrexone?? [Re: strike333]  
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NWbrooktrout Offline
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There has been some mention of this by a few people on the spondyville chat sessions on saturdays. Join in there some day!


I cannot teach anybody anything, I can only make them think.
- Socrates
#155592 - 09/13/09 06:03 PM Re: low dose naltrexone?? [Re: NWbrooktrout]  
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FLBOY69 Offline
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Here's some info on it......

http://www.lowdosenaltrexone.org/

#155666 - 09/14/09 04:26 AM Re: low dose naltrexone?? [Re: FLBOY69]  
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canadianeh Offline
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I have read about it on line in the past , but it's difficult to find scientific research on its uses. I know it has been used to treat addictions and that it partially blocks opiate receptors. I think you need to stop your narcotics priot to trying it. On the web they say it's good for all kinds of inflammatory diseases. I will keep looking for clinical trials.


Undifferentiated Spondyloarthropathy (HLA B27 +)Dx Jan 08,on flurbiprofen (Froben), pantoprazole. One THR (other pending),episcleritis,peripheral and axial arthritis. Recently stopped Enbrel due to skin rash. Humira stopped due to double vision. Surgery for sinus infection and double vision. Back on Humira...
#155738 - 09/14/09 09:39 PM Re: low dose naltrexone?? [Re: strike333]  
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strike333 Offline
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LDN seems interesting to me because it doesn't treat the symptoms, but works on the person's own immune system by regulating it, that's how they say it works.

http://www.youtube.com/watch?v=_hLCEaqWbcA

#155777 - 09/14/09 11:47 PM Re: low dose naltrexone?? [Re: strike333]  
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taberge Offline
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They really need to have more studies done on this drug, but as the youtube videos show the reason why they are not doing so. I keep an open mind but as my Rheumy told me, placebo's work 50% of the time.

#156007 - 09/16/09 06:29 PM Re: low dose naltrexone?? [Re: strike333]  
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ken Offline
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I have read a bunch on low dose maltrexone. I asked my Rheumatoligist if I could try it, and she never heard of it. I gave her some literature, and I dont think she read it.
Anyway, I think there are some people on it on the message board kickas.org.
Ken

#156016 - 09/16/09 10:18 PM Re: low dose naltrexone?? [Re: ken]  
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drizzit Offline
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I used LDN for 1.5 years. It helped quite a bit and took my crp from 8 to around 4.5. But I did not respond enough to use it alone. It is also in clinical trials for Crohns at Penn State so there are trials going on with auto immune diseases but not AS as far as I know.

I am now on SImponi and you can't take LDN with a TNF as I understand it. Others have responded better than I did, at least you see the reports, and others saw no improvement on it.

Best of luck

#156106 - 09/17/09 05:08 PM Re: low dose naltrexone?? [Re: drizzit]  
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strike333 Offline
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Hey Drizzit, what do you recommend to the starting dosage for LDN? 1.5mg, 3mg or 4.5mg. I want to try it for a month and let you guys know later how it goes.


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