Page 2 of 2 <12
Topic Options
#162003 - 11/20/09 06:40 AM Re: village idiot [Re: CB in CA]
mom2many Online
Registered Visitor


Registered: 09/02/09
Posts: 209
Loc: Minnesota, USA
CB, That was an interesting site. I noticed one entry that the person only had severe side effects when taking the generic of Topamax. I know other people who have to take the Label drug of other medications because the generic does not work or has bad side effects.
_________________________
Micki
mom to 9
dx'ed Non-hodgkins Lymphoma May '08; in remission
dx'ed AS May '09, suffering on and off since '79
prednisone

Top
#162005 - 11/20/09 06:42 AM Re: village idiot [Re: garden13]
Charlie Offline
Registered Visitor


Registered: 07/28/04
Posts: 2637
Loc: UK
Umm yeah, all those sort of meds are like that. Gabapentin, Carbamazepine, Topamax. Make you feel "dumb as a box of rocks" LOL. Horrid.

Like the others, familiar with it as a migraine med. Don't think I was on it long enough to say whether or not it worked. Couldn't handle the side effects.
_________________________

*****************************
Age: 36 | Gender: Femme! | Interests: Song-writing, gardening.
Click here to listen to Charlie's Songs (broadband only).

Top
#162007 - 11/20/09 06:54 AM Re: village idiot [Re: Charlie]
garden13 Offline
Registered Visitor


Registered: 03/17/08
Posts: 348
I put a call into the dr saying I can't take it. I also tried the others too, elavil worked ok for a bit but made me hung over, neurtonin worked great for about 2 months then stopped working and gave me horrible side effects. Lyrica gave me horrible side effects from the start. He said there was another to try, but I don't think I want to just yet. I'm desperate, but tired. I want to see what the bone scan says (they found something on it and had to do x-rays right afterward.) The dr said depends on what the scans says as to what drugs he'll try next.
_________________________
See my photos at:
http://www.pbase.com/gardengirl13


Top
#162008 - 11/20/09 07:00 AM Re: village idiot [Re: mom2many]
schmatcat Offline
Registered Visitor


Registered: 02/19/08
Posts: 39
Loc: Florida
Yep, been there took it years ago as a migraine prophylactic, but didn't remember why I stopped and tried again couple years ago for nerve problems. Anti-spasmodic/epileptic meds work by essentially slowing the brain.
I had pitiful short term memory, aphasia, horrendous slowing everywhere: just trying to move a limb seemed to take extreme mental preparation before physical attempt began.
"Dope-a-max" is different from others in the class in that weight loss rather than weight gain is more common.

However, for me, the effect on my mood was the deal breaker.

Similar to Neurontin, & to a lesser degree Lyrica, I get horribly depressed, almost suicidal from this Med class.

When FDA made all anti-epileptic meds add a black box warning re depression/suicidality, I figured out maybe it wasn't just "me."

Don't worry, it's not a real common side effect, but as I'd spent years being told my joint pain/fatigue, etc was due to depression, stress, fibro, I can tend to knee-jerk and think something's wrong w/me, rather than checking on new med S/E.

Good luck, and if you do have good pain relief you can always talk w/your Dr abuot trying a different med from that same class?

Warmly,
Susan
_________________________
Susan/Schmatcat

RA & PsA w/probable AS


Top
#162013 - 11/20/09 09:18 AM Re: village idiot [Re: garden13]
Mark D Offline
Registered Visitor


Registered: 10/02/03
Posts: 1440
Loc: Tokyo & Texas
OMG, sounds like you should quit that stuff immediately. I could not tolerate any of those side-effects.
_________________________
DXed with AS 30 years ago

Top
#162019 - 11/20/09 11:20 AM Re: village idiot [Re: Mark D]
Jean Angel Offline
Registered Visitor


Registered: 01/18/07
Posts: 1671
Loc: Enid
I am with Mark! Medicines are a personal thing. If they are causing any kind of problem that may even harm you, or may I add cause problems when walking or even driving then call your dr. There are other meds out there to try.
Top
#162020 - 11/20/09 11:24 AM Re: village idiot [Re: Jean Angel]
Jean Angel Offline
Registered Visitor


Registered: 01/18/07
Posts: 1671
Loc: Enid
I just want to comment that no one is an idiot!! It bothers me that you would put that with your message. God doesn't create idiots or junk-YOU ARE SPECIAL!!! God bless ya!
Top
Page 2 of 2 <12


Moderator:  ElinAslanyan, Chris Miller 
Hop to:

Generated in 0.034 seconds in which 0.004 seconds were spent on a total of 13 queries. Zlib compression enabled.

© 2009 Spondylitis Association of America, All Rights Reserved