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Welcome to the 20-Something Club #200058
03/04/11 07:25 PM
03/04/11 07:25 PM
Joined: Feb 2011
Posts: 32
CA
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JamesChoi Offline OP
Moderator & SAA Web Specialist
JamesChoi  Offline OP
Moderator & SAA Web Specialist
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Joined: Feb 2011
Posts: 32
CA
Hi everyone,

As you requested we have created a section in the forum for another age group that deals with spondylitis.

In the meantime we will keep an eye on the bandwidth just in case this new section has too much traffic.

james

Last edited by JamesChoi; 03/04/11 07:35 PM.

     
Re: Welcome to the 20-Something Club [Re: JamesChoi] #200063
03/04/11 08:29 PM
03/04/11 08:29 PM

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sequoia
Unregistered
sequoia
Unregistered
S



THANK you so very much...alright 20-somethings, join in - this one is for you!!!

thank you james, thank you saa, you are dreamboats!!!! and loveys!!!

s.

Re: Welcome to the 20-Something Club [Re: ] #200076
03/04/11 10:46 PM
03/04/11 10:46 PM
Joined: Aug 2010
Posts: 359
New Hampshire
Rachel01 Offline
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Rachel01  Offline
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Joined: Aug 2010
Posts: 359
New Hampshire
Thank you for this! I really do appreciate it!



Rachel
ANA+, HLA-B27+, started Remicade June 2008, switched to Enbrel September 2010, switched to Humira April 2011, stopped biologics September 2011. Fusion already started, 25 years old.
Re: Welcome to the 20-Something Club [Re: Rachel01] #200097
03/05/11 12:14 AM
03/05/11 12:14 AM
Joined: Nov 2010
Posts: 325
California
sunshine01 Offline
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sunshine01  Offline
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Joined: Nov 2010
Posts: 325
California
Thank you so much for starting this forum! You are amazing!


"No one can make you feel inferior without your consent."-Eleanor Roosevelt
Re: Welcome to the 20-Something Club [Re: sunshine01] #200105
03/05/11 12:34 AM
03/05/11 12:34 AM

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sound_dizzy
Unregistered
sound_dizzy
Unregistered
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this is great! now i have a place where i can just flood with my 20 something problems and issues.


Re: Welcome to the 20-Something Club [Re: ] #200119
03/05/11 03:31 AM
03/05/11 03:31 AM
Joined: Nov 2010
Posts: 2,008
North Texas
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iviary Offline
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iviary  Offline
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Joined: Nov 2010
Posts: 2,008
North Texas
Yay! Thanks James. I love this message board and I love the SAA. Thanks for listening to and acting on our requests. smile


Mary, 25, happily married pro photographer, momma to 2 great danes.
Dx: Psoriatic Arthritis, Fibromyalgia, Psoriasis, Sjogren's, IBS, Hiatal Hernia, & possible Endometriosis.
Meds: Stelara, Methotrexate, Relafen, Omeprazole, Lyrica, Tizanidine, Voltaren Gel, Tramadol
Re: Welcome to the 20-Something Club [Re: iviary] #200297
03/06/11 10:26 PM
03/06/11 10:26 PM
Joined: Aug 2010
Posts: 371
Brooklyn, NY
outlier Offline
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outlier  Offline
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Joined: Aug 2010
Posts: 371
Brooklyn, NY
Yeah! Thank you


Diagnosed: ankylosing spondylitis Feb '10, Crohn's Nov '09, GERD Aug '09, Scleritis May '08, Scoliosis '92
HLA-b27 negative
Surgery: Scoliosis Spinal fusion July '99
Current Meds: Humira, Asacol, Reglan, Dexilant, Tramadol, Maalox, and Xibrom (Bromfenac).
No more sulfasalazine and Iron
Re: Welcome to the 20-Something Club [Re: outlier] #208903
05/24/11 08:37 PM
05/24/11 08:37 PM
Joined: Sep 2003
Posts: 61
Brooklyn, NY
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pilotmike5 Offline
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Joined: Sep 2003
Posts: 61
Brooklyn, NY
Damn! I remember reading this 5 years ago when I was in my 20's...sigh....Getting old sucks...


33yo man from Brooklyn, NY
Remicade infusion 6 week intervals
Premature wear to most major joints and entire spine.
Sleep apnea
Fatigue
Anxiety
Re: Welcome to the 20-Something Club [Re: pilotmike5] #208928
05/25/11 04:36 AM
05/25/11 04:36 AM
Joined: Nov 2010
Posts: 2,008
North Texas
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iviary Offline
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iviary  Offline
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Joined: Nov 2010
Posts: 2,008
North Texas
Mike, we have a few thirty-somethings that are cool enough to hang with us here too. wink My husband turns 30 next week, so obviously I can't discriminate too much. :P


Mary, 25, happily married pro photographer, momma to 2 great danes.
Dx: Psoriatic Arthritis, Fibromyalgia, Psoriasis, Sjogren's, IBS, Hiatal Hernia, & possible Endometriosis.
Meds: Stelara, Methotrexate, Relafen, Omeprazole, Lyrica, Tizanidine, Voltaren Gel, Tramadol
Re: Welcome to the 20-Something Club [Re: iviary] #217602
09/19/11 11:52 AM
09/19/11 11:52 AM
Joined: Sep 2011
Posts: 3
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spondylitis025 Offline
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Joined: Sep 2011
Posts: 3
im feeling a little lost. im 22yrws old and a couple months ago at wrk my ankly swelled after a coupke days resting it the pain and swelling got worse went to hospital and after they checked it wasnt a blood clot i was sent home a coupke days later my knee started to swell to yet again went to hospital and was sent home after 5weeks of agonising pain and no answers i was getting to breaking point my other leg was starting to swell the pain and stiffness has spead to my hips lower back hands and neck after 7weeks and barely able to walk i hit breaking point i was a mess somthing was crippling me and the hospital wouldnt help me i went to my gp crying and he ran a coupke blood text and x-rays i went bak a week later to be told i was ANA possitive this didnt measn much to me but my gp refered me to a rhematologist and i was immediately put onto predisolone after my secong visit with my rhemotologist the results where all in i have spondylitis now 4 months down the track and having to come off predisolone i am having no choice but to accet my illness no more predisolone and the pain i starting i have 3yr old so cant be crippled and althogh my partner works financially i cant not wrk atm we want another baby but that means no methotrexate and my rhemotogist wants me on it what are the other options are there many other 22yr olds with the same problems no one understand what i have the pain i live with everyday or the difficult decisions i need to make i feel so alone with this who knew it would be so hard to walk or get out of bed everyday

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