Spondyloarthritis / Spondylitis Forums - Spondylitis Association of America
Spondylitis Association of America Home Page Learn About Spondyloarthritis / Ankylosing Spondylitis About Us - Our Work More Ways To Connect With Others / Support Groups And More Become a Member of SAA We Are A Nonprofit - Donate Today Shop for Products
Topic Options
#260452 - 11/06/13 08:55 PM New here - looking for friends
Tinta Offline
First time visitor

Registered: 11/06/13
Posts: 1
I've been just recently diagnosed with Ankylosing Spondylitis.
Tons of stuff run in my family; Lupus, cancers, severe RA. So it's not too surprising but still tiring.

I'm not really sure about anything at this point. It's just the start. I try to take things one step at a time.

I am currently 21, unable to work for the time being and trying to get disability figured out.

I have a lot of time on my hands and find that I am pretty lonely lately.

Just looking for people my age, in a similar situation to speak to or something.

#260486 - 11/07/13 02:39 PM Re: New here - looking for friends [Re: Tinta]
becca Offline
Registered Visitor

Registered: 02/26/11
Posts: 174
Loc: Ohio
hi Tinta!

I have deffinently been down the lonely road.

I am 23 and have had AS since i was 11. Didn't get diagnosed until i was 19. I felt like NOBODY understood what i was going through i felt COMPLETELY alone.

You've come to the right place, you'll find friends here!

Sorry you are dealing with this, but glad you found us smile

i can't fall back i came too far, hold myself up and love my scars...

#260761 - 11/13/13 03:04 PM Re: New here - looking for friends [Re: Tinta]
StephanieG Offline
First time visitor

Registered: 11/13/13
Posts: 1
Hi Tinta, I to have recently been diagnosed with AS. I am currently 24 years old and had been suffering with varying symptoms for the past 4 years. I feel the same way you do. No one in my family has it, I guess I was just the lucky one. This diagnosis can make you feel alone but I know these message boards will help. If you ever need to talk I'm open.


#262990 - 01/01/14 11:49 PM Re: New here - looking for friends [Re: Tinta]
vetty Offline
Registered Visitor

Registered: 12/31/13
Posts: 9
Hi Tinta,

it's nice to meet you. My name is Vetty and I'm sorry you're struggling so greatly. But do hope that your docs can find something to help with the pain etc.

I have been diagnosed with fibromyalgia and though I haven't been diagnosed with AS, I did test positive to HLA-B27 and I suspect I have some kind of SpA.

AS is in my family though (my grandfather and 2 of my cousins on mum's side).

I hope you find some help and support on these boards. smile

Vetty ~ 29 year old Female

dx: HLA-B27+; Fibromyalgia; PCOS; Hypothyroidism; PTSD.
Meds: Naproxen XR; Omeprazole-GA; Diabex XR; Thyroxine.
Psych meds: Effexor XR; Avanza; Abilify; Zeldox.

#263093 - 01/04/14 04:08 PM Re: New here - looking for friends [Re: Tinta]
babygirl536 Offline
Registered Visitor

Registered: 05/03/12
Posts: 152
Loc: san diego, CA

Sorry you are dealing with this....sucks sometimes but we all know what's going on.

Female, 29 - loving wife & mommy to one <3
Finally diagnosed in Oct 2011
Remicade - Oct 2012
Fibromyalgia - June 2013
Tendonitis - February 2014
Humira: Failed / NSAIDS: Failed / Steroid Epidurals: Failed, caused more pain / Physical Therapy, Massage Therapy, and Chiropractics: Failed / gabapentin: Failed

#271668 - 06/17/15 01:10 AM Re: New here - looking for friends [Re: Tinta]
Aziza Offline
Registered Visitor

Registered: 04/19/15
Posts: 6
Hiya. I'm 20 and I understand where you are at. Been there but I changed my outlook on how I project my pain. I just become a total goofball nut. You can come to me on off days, I'll be there to talk smile

#274493 - 05/12/16 07:28 PM Re: New here - looking for friends [Re: Tinta]
obrienk84 Offline
Registered Visitor

Registered: 01/26/16
Posts: 47
Hey there, I'm 31 and have been dealing with this since I was 27, although only diagnosed in the last few months. At least you are catching it early, because it gets worse over time without treatment. Biologics should at least stop if from progressing.
Early 30's male, HLA Negative, AS diagnosed Feb. 2016, Humira.


Moderator:  ElinAslanyan