it's nice to meet you. My name is Vetty and I'm sorry you're struggling so greatly. But do hope that your docs can find something to help with the pain etc.
I have been diagnosed with fibromyalgia and though I haven't been diagnosed with AS, I did test positive to HLA-B27 and I suspect I have some kind of SpA.
AS is in my family though (my grandfather and 2 of my cousins on mum's side).
I hope you find some help and support on these boards.