Hi Kim- I don't know enough about OS to say if that is an accurate diagnosis. My son was diagnosed with juvenile spondy at age 11, but had symptoms much younger. He is now 19 with full AS. His first symptoms were similar to your daughter's: very painful heels and pain in his ankles and knees. By the time he was diagnosed he also had lost flexibility in his hips, and his ankles were noticeably enlarged. Enthesitis was his biggest symptom initially, and that is very common in younger children. Given your son's history, I would definitely consider AS in your daughter.
The benefit to early diagnosis is controlling any inflammation as much as possible. Long-term inflammation causes permanent joint damage, so the sooner it is controlled, the less damage. My son was started on NSAIDS and then methotrexate originally but w/o great results. He has been on biologics- first Enbrel and now Humira- for over 8 years now with great results. He went from having difficulty walking, to running cross country in high school to now playing NCAA soccer in college. He must take his meds weekly to function well, he does yoga and stretches to stay flexible and he stiffens up if he doesn't stay active. He has flare-ups sometimes and it takes him extra time to start moving comfortably in the morning, but overall he is doing very well! Good luck and keep us posted.
Last edited by Ericsmom; 05/06/15 05:58 AM.