There are quite a few social media communities for AS out there. Search for tags or groups with spondylitis in the name on whichever networks you use most. I used to participate in quite a few #rheum and #spondy chats and made lots of connections with spondylitis and other forms of inflammatory arthritis on Twitter, but ultimately moved away from that as I began to need less daily support and also as I decided I wanted to keep my daily struggle pretty private from most people (particularly those who know me IRL). Any of these communities will have an age range, but the "younger" the demographic is overall on a particular website, the younger the group will be who is talking about their health problems. I've seen quite a few teenagers discussing their psoriasis and psoriatic arthritis on Instagram, for instance. I'm sure there are many talking about AS in Instagram as well; I just noticed the PsA users because I tagged some photos from my local Psoriasis Walk and got some attention from that community. I currently belong to a private Facebook group for my local SAA support group, but it's mostly women age 40+ who participate in the support group, and thus that's mostly who we see on our Facebook group as well (we only let in people who attend at least one meeting in person in order to keep everyone feeling safe about sharing). I choose not to participate in any public Facebook groups for my health problems, because I don't want what I like or comment on to end up in all of my contacts' news feeds. Just do a little clicking around and a little thinking about how private you want your participation to be, and jump into whatever communities look interesting and welcoming to you!
Mary, 25, happily married pro photographer, momma to 2 great danes.
Dx: Psoriatic Arthritis, Fibromyalgia, Psoriasis, Sjogren's, IBS, Hiatal Hernia, & possible Endometriosis.
Meds: Stelara, Methotrexate, Relafen, Omeprazole, Lyrica, Tizanidine, Voltaren Gel, Tramadol