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#272441 - 10/05/15 07:18 AM Remission from AS
6volt Offline
Registered Visitor

Registered: 10/04/15
Posts: 4
Loc: UK
does remission from Ankylosing Spondylitis (AS) last long?

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#272442 - 10/05/15 06:03 PM Re: Remission from AS [Re: 6volt]
CB in CA Offline
Registered Visitor

Registered: 02/20/03
Posts: 2840
Loc: Huntington Beach, CA
I am sure everyone who is lucky enough to go into "remission" has a different experience.I have moderate AS and have been in "remission" for about 7 years now. I consider myself lucky and appreciate each day.
_________________________

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#272448 - 10/06/15 03:55 AM Re: Remission from AS [Re: 6volt]
Ken Delano Offline
Registered Visitor

Registered: 05/26/04
Posts: 1496
Loc: Minnesota
It's a question I can not answer. It's been active for me continuously since 1988. I've had periods that were less active than others, but never in remission.
_________________________
AS/PsA DX in 1988

Retired on disability
in 2005 at age 44

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#272461 - 10/07/15 12:52 AM Re: Remission from AS [Re: 6volt]
6volt Offline
Registered Visitor

Registered: 10/04/15
Posts: 4
Loc: UK
I have AS since early 1990s, but no pain for a little over five years now, I am not on any medication only for uveitis when it flares up, last time I got uveitis was three years ago.


Edited by 6volt (10/07/15 12:54 AM)

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#272487 - 10/14/15 04:21 AM Re: Remission from AS [Re: 6volt]
CentralGaGal Offline
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Registered: 04/20/13
Posts: 252
Loc: South Carolina
6volt,

I was Dxed in the mid 80s, had about three years of moderate to severe pain where the pain seem to carry up into my lower thoracic area and then pretty much overnight, disappear (except for aches). I stayed there for about 10 years until it affect my shoulder, then my neck 19 years later and since has been back often with vengeance so for me....it was almost 20 years.

My error was thinking I didn't need to be under medical watch as during that down time, a lot was still going on that I'm fighting now.

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#272490 - 10/14/15 08:01 AM Re: Remission from AS [Re: CentralGaGal]
SouthernMoss Offline
Registered Visitor

Registered: 03/12/13
Posts: 1607
Loc: MS
Originally Posted By: CentralGaGal


My error was thinking I didn't need to be under medical watch as during that down time, a lot was still going on that I'm fighting now.


That's an excellent point. Just because you aren't feeling pain or other symptoms doesn't mean nothing is going on.
_________________________
Ginny - 56 year old female
Dx with USpA in March 2013; changed to AS in July 2015
Iritis and Scleritis
unicompartmental knee replacement June 2014
MTX, Humira, Cyclobenzaprine, plus Indomethacin ER as needed
Supplements: Folic Acid, Vitamin D, Calcium, Fish Oil, Melatonin, Culturelle probiotic

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#272528 - 10/23/15 12:21 PM Re: Remission from AS [Re: SouthernMoss]
6volt Offline
Registered Visitor

Registered: 10/04/15
Posts: 4
Loc: UK
hmmm, I get called up for medical check up once a year.
I keep myself active by doing exercises.

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#272529 - 10/23/15 12:32 PM Re: Remission from AS [Re: CB in CA]
6volt Offline
Registered Visitor

Registered: 10/04/15
Posts: 4
Loc: UK
yes I appreciate everyday, I keep myself active outdoors a lot, doing some farming and I keep exercising a lot.

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#272799 - 12/08/15 09:10 AM Re: Remission from AS [Re: CB in CA]
laurru21 Offline
Registered Visitor

Registered: 11/11/12
Posts: 56
How did you get it into remission, what medicine were you on?

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#272933 - 12/23/15 08:16 AM Re: Remission from AS [Re: 6volt]
ken Offline
Registered Visitor

Registered: 01/16/07
Posts: 176
Loc: Connecticut
I was in remission for 4-5 years from 1997 to 2002. In that time I did 2 Ironman triathlons, 7 marathons and more then 50 misc. races. Unfortunatly, its back.
Ken

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#273162 - 01/26/16 09:40 AM Re: Remission from AS [Re: 6volt]
jasonpaul Offline
Registered Visitor

Registered: 11/11/15
Posts: 29
Loc: MN
I'd be curious for the offical answer as well. I seem to recall reading part of a European journal article on PubMed the other week that said only 30% of patients ever see a total or partial remission, but I am sure I am off on that. Personally in 25 years, I've only had 4 years intermixed that was relatively symptom free.
_________________________
25 yr+ with significant and aggressive A.S. and scoliosis. Currently on Remicade, methotrexate, nsaids, steroids, gabapetin, mobic.

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#273196 - 01/29/16 10:08 AM Re: Remission from AS [Re: 6volt]
Banana Offline
Registered Visitor

Registered: 07/23/06
Posts: 6426
Loc: New York
There are different versions of AS, and thus different remissions. When I first got AS, my disease went in and out of remission for no apparent reason. I thought various diets did it, but no because it would come back. I would have it for 6 months and then 2/3 years of remission. I could never get diagnosed because by the time I saw doctor, I was in remission with nothing wrong with me except I could barely touch my knees let alone toes.

Then my disease got really severe in my 40's, and drug induced remission was for only a short time and then the medication would "turn to water". After I finally found the right drug, I have been in drug induced remission for over 5 years. It is shaky though. If I am late with the drug, it starts coming back and I can still over do it. Plus the damage has not gone away.
_________________________
Actema IV once a month (with pre loading for allergic reaction), Cymbalta x1 daily, Arava 20mg daily. Diagnosed with AS in 2004, suffered undiagnosed since 1982.

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#274500 - 05/13/16 07:37 AM Re: Remission from AS [Re: 6volt]
sdot Offline
Registered Visitor

Registered: 03/05/16
Posts: 400
I wonder what the numbers are for drug induced remission vs remission on it's own and if that includes all associated symptoms.

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