Here is my tale:
So after 6 months when all of this started with a gout attach, I was diagnosed with axial spondyloarthritis...I think.
I have tested negative on every CT, blood test, colonoscopy, EGD. Sedimentation, C-Protein normal HBL-27 negative, as of now but I do have high WBC inflammation and signs of pain the back and thoracic area (costocondritis). 6 months of not working out and yet losing weight...have lost all muscle...used to work out 5-6x a week
Through this entire ordeal I have been on 30mg of Prednisone which SUCKS!!!!! but has kept me mobile, 400mg of Celebrex and colchicine since apparently I still have Gout.
I just finished my 4th shot of Enbrel.
My Life is a roller coaster of Fatigue...non stop. More tests...non stop
So my Rheumy is asking if the Enbrel is working. I can't answer because I don't know what's the Enbrel and what is the roids. If you are currently on both...how can you tell?
I started doing yoga stretches via Youtube and doing some walking and body exercises because my doctor refuses to have me see a physiotherapist until the med kicks in...I'm waiting for that too...he said one or two more shots if not we are switching to something else.
I'm trying to cope with this...I am an opera singer and would like to get back on stage...I'm afraid it will never happen. I have only been dealing with this for 6 months...never had a problem at all or history...
Any insight would be appreciated