I was wondering if there was a benefit of getting an actual diagnosis?
My daughter has multiple incidences of enthesitis in her knee, ankle, heel and middle of foot. She has been diagnosed with things like Os Good Schlatter, and Severs, growing pains and just sprains and strains.
Her older brother is suspected of having SA.
My daughter was seen by a geneticist who said she was HBLA-27 positive but that it wasn't his specialty and to go see an rhuematologist.
I was curious if there was a benefit to having an actual diagnosis? Can there be preventative measures to avoid damage to her joints? Or should we just wait and see how this plays out?
Curious what your thoughts were.
Edited by nymom23 (01/08/16 06:42 PM)