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#277473 - 03/08/17 07:40 AM Anyone with constant spine pain?
worldofme Offline
Registered Visitor

Registered: 08/12/15
Posts: 377
i seem to have constant spine pain from the moment I wake up to the moment I go to sleep.

Does anyone have this other than me?

I thought AS improves with exercise, not my?

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#277474 - 03/08/17 09:59 AM Re: Anyone with constant spine pain? [Re: worldofme]
GardenGnome Offline
Registered Visitor

Registered: 08/28/16
Posts: 72
Most people do. That what AS is. Spine inflammation which brings on pain. I have pain everywhere in my body all day everyday. Despite celebrex and oxycodone and sulfasalazine

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#277477 - 03/08/17 01:49 PM Re: Anyone with constant spine pain? [Re: worldofme]
friendsfan Offline
Registered Visitor

Registered: 03/24/16
Posts: 15
I bet the TNF you don't want to take would help with that. That's what it is created to do.

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#277478 - 03/08/17 02:31 PM Re: Anyone with constant spine pain? [Re: worldofme]
Cake Offline
Registered Visitor

Registered: 08/08/13
Posts: 119
Loc: Madison, Wisconsin, USA
I need four medications to keep mine to a tolerable level - and on some days, its barely tolerable.

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#277483 - 03/08/17 07:24 PM Re: Anyone with constant spine pain? [Re: worldofme]
worldofme Offline
Registered Visitor

Registered: 08/12/15
Posts: 377
I took the tnf before but keep keep getting side effects.

Still in denial how one can get AS after a urethritis. Never happens..only 30 case in last 25 years.

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#277484 - 03/08/17 07:24 PM Re: Anyone with constant spine pain? [Re: worldofme]
worldofme Offline
Registered Visitor

Registered: 08/12/15
Posts: 377
Nothing other than tnf?

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#277494 - 03/10/17 04:29 AM Re: Anyone with constant spine pain? [Re: worldofme]
mpc2012 Offline
Registered Visitor

Registered: 03/15/09
Posts: 316
Why would you not want to take a TNF? I don't know how anyone lives with this disease without the use of TNFs. They are a miracle and I still have to take other medicines to control pain but without the TNF life is miserable. I have resigned myself to the fact that a TNF may have bad side effects and shorten my life but I would rather have a shorter good quality life than a miserable long one. Also, the TNF helps stop the progression of the disease.

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#277499 - 03/10/17 06:05 AM Re: Anyone with constant spine pain? [Re: worldofme]
sdot Offline
Registered Visitor

Registered: 03/05/16
Posts: 387
constant spine pain? I think that probably covers everyone with this disease..

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#277500 - 03/10/17 06:05 AM Re: Anyone with constant spine pain? [Re: worldofme]
sdot Offline
Registered Visitor

Registered: 03/05/16
Posts: 387
the disease of spine pain..

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#277502 - 03/10/17 06:58 AM Re: Anyone with constant spine pain? [Re: worldofme]
Winston Offline
Registered Visitor

Registered: 06/30/16
Posts: 104
There is no evidence that tnf drugs shorten the lives of most people who take them. Sure, some people get life-threatening infections or cancer, but most (the overwhelming majority, in fact) of the people who take them don't develop those side effects. And, worldofme, have you ever read the side effects for NSAIDs, even over-the-counter ones like ibuprofen and naproxen, or prednisone? If those drugs had to go through the FDA approval process today and enumerate all their potential side effects during their television commercials like tnf drugs do, you wouldn't want to take them either.

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