Have been reading messages over last 6 months and became member in last week. I was officially dx with AS about a year ago and it's taken a while to come to terms with it. I have had spinal pain since I was 15 years old and flares on and off. When I told my rheumy he was shocked I had never been worked up for AS/arthritis, as it isn't normal for a 15 year old to develop lumbar spine pain with no trauma. And then there were all the treatments and drugs to consider and research. And their side effects. Finally, I feel like I have a plan I am going to stick to: Humira, Sulfasalzine, exercises, flexeril as needed. I am still having a lot of leg pain and restless legs and difficulty sleeping, so I'll f/u on that with rheumy next visit. But I don't feel so afraid anymore of the drugs and dx. I think reading everyone's experiences and thoughts have been very helpful and I am grateful for this site and those of you for sharing your lives. Anyway, I think I'll just take it one day at a time and when I have the energy and moments of decreased pain enjoy them while I can.
Female 45, ANA positive, HLA-B27 neg, MRI + sacro/iliac disease, DDD, psoriatic arthritis, coagulation defects, diskectomy
Symptoms since 15 y.o.
DX: 2 years ago AS
Past Meds: Sulfasalazine, Humira, Enbrel, Naproxyn, Cymbalta, Methotrexate, Mobic, Ibuprofen
Current Meds: Cimzia and continuing Prozac, Vit D, Folic Acid, Cyclobenzaprine