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#277496 - 03/10/17 07:33 AM Re: am i having a nervous breakdown? [Re: Shippingnews]
mpc2012 Offline
Registered Visitor

Registered: 03/15/09
Posts: 316
What area do you live? Maybe I can refer you to a good doctor in your area?

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#277550 - 03/16/17 08:20 PM Re: am i having a nervous breakdown? [Re: Shippingnews]
Shippingnews Offline
Registered Visitor

Registered: 10/11/15
Posts: 371
PM'd you.
Thanks!
_________________________
Male, early 30s. AS diagnosed Sep 2015. HLAB27+
Current medicines: Omeprazole, Vit D3, Celecoxib(1 tab)/Zorvolex(2 tabs)(alternatimg between these two every week), Pyridoxine, Isoniazid, MTX(3 tab) every wednesday, on humira every two weeks since Dec 2015, Weekly Humira since June 18th 2016
On cosentyx 300mg a month since Dec '16

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#277585 - 03/20/17 12:45 PM Re: am i having a nervous breakdown? [Re: Shippingnews]
Shippingnews Offline
Registered Visitor

Registered: 10/11/15
Posts: 371
gr8 the RN gave me wrong medication info which I should have discontinued before the epidural and its tomorrow and I have been taking it all along and they do not even have time to take my calls. bigger a hospital more casual they are about their patients
_________________________
Male, early 30s. AS diagnosed Sep 2015. HLAB27+
Current medicines: Omeprazole, Vit D3, Celecoxib(1 tab)/Zorvolex(2 tabs)(alternatimg between these two every week), Pyridoxine, Isoniazid, MTX(3 tab) every wednesday, on humira every two weeks since Dec 2015, Weekly Humira since June 18th 2016
On cosentyx 300mg a month since Dec '16

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#277615 - 03/25/17 11:04 AM Re: am i having a nervous breakdown? [Re: mpc2012]
Shippingnews Offline
Registered Visitor

Registered: 10/11/15
Posts: 371
Originally Posted By: mpc2012
What area do you live? Maybe I can refer you to a good doctor in your area?


-------- San Jose, California

I am scheduled to see Dr. Gensler next week and also got the Epidural, (no benefits yet)--life has become unbearable with no hope in sight, nothing is working on me
_________________________
Male, early 30s. AS diagnosed Sep 2015. HLAB27+
Current medicines: Omeprazole, Vit D3, Celecoxib(1 tab)/Zorvolex(2 tabs)(alternatimg between these two every week), Pyridoxine, Isoniazid, MTX(3 tab) every wednesday, on humira every two weeks since Dec 2015, Weekly Humira since June 18th 2016
On cosentyx 300mg a month since Dec '16

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#277616 - 03/25/17 05:01 PM Re: am i having a nervous breakdown? [Re: Shippingnews]
Shippingnews Offline
Registered Visitor

Registered: 10/11/15
Posts: 371
Can someone please tell me what is wrong with me? I shall be very thankful!!
I used to run for two hours every day 4 years ago, and then the downhill started and it is an endless pit, things keep getting worse each day
_________________________
Male, early 30s. AS diagnosed Sep 2015. HLAB27+
Current medicines: Omeprazole, Vit D3, Celecoxib(1 tab)/Zorvolex(2 tabs)(alternatimg between these two every week), Pyridoxine, Isoniazid, MTX(3 tab) every wednesday, on humira every two weeks since Dec 2015, Weekly Humira since June 18th 2016
On cosentyx 300mg a month since Dec '16

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#277622 - 03/27/17 02:02 PM Re: am i having a nervous breakdown? [Re: Shippingnews]
sdot Offline
Registered Visitor

Registered: 03/05/16
Posts: 406
Oh man. Sorry to hear that. I wish I could offer some valuable insight. I have been in a bit of a funk myself and decided to stop by. Hopefully you can get some help.

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#277623 - 03/27/17 02:59 PM Re: am i having a nervous breakdown? [Re: Shippingnews]
SouthernMoss Online
Registered Visitor

Registered: 03/12/13
Posts: 1758
Loc: MS
Sorry you are having a rough time. Is your appointment with Dr Lianne Gensler? Hopefully she can help you find some answers.
_________________________
Ginny - 56 year old female
Dx with USpA in March 2013; changed to AS in July 2015
Iritis and Scleritis
unicompartmental knee replacement June 2014
MTX, Humira, Cyclobenzaprine, plus Indomethacin ER as needed
Supplements: Folic Acid, Vitamin A, Vitamin D, Calcium, Fish Oil, Melatonin, Culturelle probiotic

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#277634 - 03/28/17 12:38 PM Re: am i having a nervous breakdown? [Re: Shippingnews]
Sean O Online
Registered Visitor

Registered: 09/27/07
Posts: 264
Loc: Toronto
Shipping, I hope you are able to find help. I would stick with it. They will not find a solution at the first visit and it may take several. You said you had an appointment with doctor Gensler. She's a rheumatologist right? Try to get your family doctor to refer you to a psychiatrist or clinical psychologist. If you are seeing doctor Gensler at UCSF if she can point you in the direction of help there you would be in great shape. UCSF is the best in the country.
You may need a two pronged approach, a psychiatrist for medication that settles your nerves like Zoloft and a psychologist that gives you the counseling you need. (Talking from experience).
Keep us posted. We care.


Edited by Sean O (03/28/17 12:39 PM)
_________________________
Male, early 50s, Dx AS+ 1991, HLA B27+, Tylenol 3 PRN for flares. Off NSAIDs due to stomach issues. Considering a biologic. SI and thoracic involvement and costochondritis. Many bouts of uveitis. Small bowel issues, anemia.

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#277639 - 03/28/17 05:26 PM Re: am i having a nervous breakdown? [Re: Shippingnews]
Shippingnews Offline
Registered Visitor

Registered: 10/11/15
Posts: 371
yes Dr. Lianne Gensler, UCSF. Nothing works on me, the only time the medications worked on me was Sep-Nov 2015,right after I was diagnosed with AS, when I took NSAIDs for first time after years of misdiagnosis. And then they stopped working. I also took prednisone shots which worked in Nov 2015, for some time. Other than that nothing has worked in last 1 years and 3 months. My medications are in my signatures, and many more which I have not listed. I took cymbalta which were a bit better in managing my pain, but I was always delusional with them. I have seen rheumatologist, my current and now would be going to UCSF, pain specialist, I changed to Stanford last month ,and also got Epidural in lower mid back(no benefits from it), Physical therapist, not since 2015, but I do the same exercises which I learnt till now, everyday, psychiatrist(I had one session, but I could not stand how empty their reasoning was. I could not even stand 1 session with the psychiatrist, I was in constant pain through out, and she was laughing and smiling and getting excited about stories of what studies have shown, blah ,blah, I wonder if she had any idea what Ankylosing Spondylitis is and what years of pain can do. So, no I do not think at this stage(when I am in unbearable pain, psychiatrist would help me), if I am in same level of pain as I was in 2012, yes I would go to a psychiatrist, but at current level, I think s inappropriate for them to think my pain is because of my mind, and I can control myself through methods or practise. Thanks for responding to me. I appreciate your advice, even though if I may not believe that they will help me. But I am open to any advices.
_________________________
Male, early 30s. AS diagnosed Sep 2015. HLAB27+
Current medicines: Omeprazole, Vit D3, Celecoxib(1 tab)/Zorvolex(2 tabs)(alternatimg between these two every week), Pyridoxine, Isoniazid, MTX(3 tab) every wednesday, on humira every two weeks since Dec 2015, Weekly Humira since June 18th 2016
On cosentyx 300mg a month since Dec '16

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#277642 - 03/28/17 09:47 PM Re: am i having a nervous breakdown? [Re: Shippingnews]
Cake Offline
Registered Visitor

Registered: 08/08/13
Posts: 137
Loc: Madison, Wisconsin, USA
Are you on a pain medication? Doesn't look like I see one in your signature.

I will share that pain has been a steady component of my disease from the very beginning... almost a constant, so not really a reflection of the progression. It was as bad 15 years ago as it is now.

I cannot tolerate a very high dose of morphine, but a low-dose is the difference between being able to mentally cope vs. not. I worked in a demanding career for over ten years while being on a low dose of extended release morphine. I was not mentally impaired at this dose.

With any opioid, there will be a trade off between pain relief and energy level, especially as the dose increases, so there is no way around that.

I'd like to think that you can find a doctor who would be willing to explore some pain meds with you to see if you can find something that helps. I don't remember if you've said you've tried any, and what the results were. I know there is widespread paranoia about them now, but the truth is that many people simply need them.

Just something to think about- there really are only a few ways to hit this disease- the DMARDs, the anti-inflamatories, steroids, pain medications, muscle relaxers, and then after that, antidepressants/ anti-anxiety meds can have some benefit to overall pain perception and coping.

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