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#277795 - 04/19/17 09:56 PM Re: What's left after all these drugs? [Re: Headunderwater]  
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Shippingnews Offline
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You said"

---I agree with keeping my doctor. He's good at what he does and see no reason to stop seeing him. It would be nice to have a second rheumatologist to see more often, but I have no idea how that would work. ----

Talk to another rheumatologist- and I am sure they would be willing to give a second opinion. Your current rheumatologist , if he is a professional would not mind that or should not mind that you are getting a second opinion. I am sure you are not the first of his patients who wants to get a second opinion and it is very common in this profession. I was worried just like you how the seeing second rheumatologist would work, but it is not a big deal. Just tell them you want to get a second opinion, they cannot stop you from doing that. And it should not effect your continued treatment with your current doctor, do some research which doctor you would want to see(preferably who is a specialist in AS, need not be the best, even 2nd or 3rd best would work) and if he/she is in your insurance coverage. Yes it is a long stretch( for most of us), I waited 4 months between appointments. The earlier you contact them the earlier it will be. All the best!


Male, early 30s. AS diagnosed Sep 2015. HLAB27+
Current medicines: Omeprazole, Vit D3, Celecoxib(1 tab)/Zorvolex(2 tabs)(alternatimg between these two every week), Pyridoxine, Isoniazid, MTX(3 tab) every wednesday, on humira every two weeks since Dec 2015, Weekly Humira since June 18th 2016
On cosentyx 300mg a month since Dec '16
#277796 - 04/19/17 09:59 PM Re: What's left after all these drugs? [Re: Headunderwater]  
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one advice- Dont try to hide that you are seeing another rheumatologist( I thought doing that, but eventually did not)( be open about it), as you dont want your current doctor to think that you dont trust him/her(plus second doctor would need all the medical records from your current doctor)

EDiting to add: In my case, the new rheumatologist was very nice and she said that she would have to see me more than once in order to treat me. I have dealt with many doctors and most of them are very accommodating to your needs.

Last edited by Shippingnews; 04/19/17 10:06 PM.

Male, early 30s. AS diagnosed Sep 2015. HLAB27+
Current medicines: Omeprazole, Vit D3, Celecoxib(1 tab)/Zorvolex(2 tabs)(alternatimg between these two every week), Pyridoxine, Isoniazid, MTX(3 tab) every wednesday, on humira every two weeks since Dec 2015, Weekly Humira since June 18th 2016
On cosentyx 300mg a month since Dec '16
#277806 - 04/20/17 11:16 PM Re: What's left after all these drugs? [Re: Shippingnews]  
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Headunderwater Offline
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Thanks so much for this advice! It's nice to bounce this stuff off other people.

#278567 - 07/15/17 07:50 PM Re: What's left after all these drugs? [Re: Banana]  
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Hi Banana - who is your doc at HSS? That's where I go too.

I just failed Enbrel (bad reaction) and my doctor wants me to try Humira again, even though it stopped working last time (put me in remission for 7 months, then I started having severe flare-ups). I don't really feel comfortable with that plan, but I'm also nervous to try something new because of my bad reaction to Enbrel (may be an autoimmune hair loss issue). He said it would be Cimzia next after Enbrel. I am so confused!!

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