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#278051 - 05/25/17 07:48 AM AS first symptoms
raybeez Offline
Registered Visitor

Registered: 05/16/13
Posts: 2
Hello guys from a 23 year old male.
I am curious if the first symptoms for this disease can be pain in the ball of the heel and some of the toes. I have this pain for three weeks now and nothing seems to work. Ive made some blood tests and everything was okay except this hlab27 gene which is positive. So my question is if anyone of you have experienced front heel pain as first symptoms before he was diagnosed.

#278082 - 05/31/17 10:17 PM Re: AS first symptoms [Re: raybeez]
Nicole_B Offline
Registered Visitor

Registered: 04/14/17
Posts: 49
Loc: New England, USA
Sorry to hear you're in pain. From what I have read (obviously take this with a grain of salt), that could potentially be a first symptom. But that pain as you have described it so far, especially for only three weeks and without anything affected beyond the foot, could still be many many things. There are many hlab27 positive people who do not develop AS or any SpA, and some with those diseases who do not have that gene, so it is not a definitive test either.

I hope you find some relief soon! Also, you may want to post this on the general forum - it gets a lot more traffic.
Mid-20's. Undiagnosed upper and low back/SI pain (along with hips & ribs consistently, and neck, knees, heel/bottom of foot, ankles/achilles, and wrists periodically). Diclofenac 75mg 2x/day and Prilosec 40mg 1x/day. PCOS recently diagnosed.

#278135 - 06/08/17 06:08 PM Re: AS first symptoms [Re: raybeez]
Ericsmom Offline
Registered Visitor

Registered: 10/28/07
Posts: 235
Loc: Ventura County, CA
I see from another post that your father has AS, which increases your chances of having it. I still agree with Nicole that 3 weeks is a fairly short period of time to go to a diagnosis of AS. Heel pain can be caused by all kinds of things not related to AS, but usually that symptom is on-going over a long period of time.

My son is 21 but was diagnosed at age 11, and yes, heel pain was his first symptom. We had actually visited his doctor several times over 2 years because he complained of on-going pain in his heels. Since he was very active in sports the doctor kept insisting it was from "overuse". He eventually started having hip pain and was unable to rotate his hips fully. Finally, his ankles swelled to the size of small grapefruits, and a pediatric rheumatologist diagnosed him. You would need to see a rheumatologist if you are concerned-they are the only ones trained to recognize AS. While there is no way to prevent AS, there are many ways to manage this disease. Good luck!

#278157 - 06/09/17 07:24 PM Re: AS first symptoms [Re: raybeez]
WhiteCell Offline
Registered Visitor

Registered: 05/31/10
Posts: 1319
Loc: Whidbey Island WA
Yes. My first symptom was foot pain when I was 23.
Since 18 years old - began as Reiter's Syndrome. Diagnosed with Ank Spon 2001. Remicade since 2002 - 5mg/kg every 7 weeks. 8 hour Tylenol and hot tubs for pain.

Severe Right Eye Glaucoma-
Trabeculectomy/lens replacement 2006.
DSEK Cornea Transplant October, 2009.
Ahmed Shunt June, 2016.
DSEK Cornea Transplant, November, 2016.

Supra Ventricular Tachycardia. 2004.
Cured by RF ablation 2006.
Cardizem 240 CD.

ICU RN Seattle, WA

~Grasp The Challenge and Succeed~


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