Spondyloarthritis / Spondylitis Forums - Spondylitis Association of America
Spondylitis Association of America Home Page Learn About Spondyloarthritis / Ankylosing Spondylitis About Us - Our Work More Ways To Connect With Others / Support Groups And More Become a Member of SAA We Are A Nonprofit - Donate Today Shop for Products
Topic Options
#277753 - 04/15/17 03:46 AM Remicade vs Cosentyx
AllieG Offline
Registered Visitor

Registered: 04/10/17
Posts: 3
Loc: Austin, TX
I've been on remicade for about three years, but it and methotrexate together are not cutting it. My rheumy says Cosentyx is next, but I can never go back to remicade. My next infusion is the 25th. Y'all have any advice on whether switching is worth it?
Allie G., female
Ankylosing Spondolytis Sufferer since 2013, symptoms since 2011
Remicade(500 mg/every 6 wk)
Methotrexate(25 mg/wk)
Oxycodone(10 mg/3x a day)
Prednisone(10 mg/ daily for 5 days)
Folic Acid(10 mg/day)
Vitamin D(1,000 IU/day, 50,000/week)
Tizanidine(4 mg/3x a day)
Gabapentin (1200 mg/3 x a day)

#278274 - 06/19/17 01:32 PM Re: Remicade vs Cosentyx [Re: AllieG]
RAHMBA Offline
Registered Visitor

Registered: 06/27/12
Posts: 490
Loc: Los Angeles, CA
Hi AllieG,

I didn't see a reply to your question. Like TNFs, I've heard very positive experiences from Cosentyx. There is a new (last week) published medical journal paper on a Cosentyx that included people with AS that switched from TNFs. you can find it through a browser search for "EULAR: IV Golimumab AS". also I tweeted a link on my personal twitter RichAHoward. Hope that helps.

What ever you decide, I hope the treatment plan is effective.

Kindest Regards,
(not a women, but didn't want your issue to go unanswered)
AS, U C, Iritis, migraines. HLA-B27neg. Yoga (instructor) & spin. No meds at this time. Dx 1989. SAA member/donor since 1993. All my posts are personal opinion/feelings and do not represent the SAA. Help find a cure & support others by donating to the SAA.

#278602 - 07/19/17 09:21 AM Re: Remicade vs Cosentyx [Re: AllieG]
Jean55 Offline
Registered Visitor

Registered: 09/03/09
Posts: 4
Loc: Kansas
I did try Cosentyx. It did not work for me. I had been on Enbrel for years and it quit being effective. I had bad reaction to Remicade. Still hoping to find something. I have to be careful of effects of meds on liver and kidneys so that has eliminated NSAIDs and methotrexate. So tired of hurting. Do not want to get addicted to painkillers, but take Tramdrol occasionally.

#278617 - 07/21/17 09:58 PM Re: Remicade vs Cosentyx [Re: AllieG]
Sunnyday Offline
Registered Visitor

Registered: 04/26/13
Posts: 9
Loc: Washington
I tried Cosentyx for about three months- I had breakthrough iritis while on it, but also diarrhea for about three days after each injection. I just felt bloated and gross. I'm allergic to all nsaids, have used and eventually lost efficacy on humira, Enbrel, Simponi (my favorite), then had a big reaction to Cimzia. I am now on Remicade after my brief stint on Cosentyx. I would ask for Simponi because the injections are easy, painfree, monthly, and it worked great for about three years.


Moderator:  ElinAslanyan