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#277753 - 04/15/17 07:46 AM Remicade vs Cosentyx  
Joined: Apr 2017
Posts: 3
AllieG Offline
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AllieG  Offline
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Joined: Apr 2017
Posts: 3
Austin, TX
I've been on remicade for about three years, but it and methotrexate together are not cutting it. My rheumy says Cosentyx is next, but I can never go back to remicade. My next infusion is the 25th. Y'all have any advice on whether switching is worth it?


Allie G., female
Ankylosing Spondolytis Sufferer since 2013, symptoms since 2011
Austin,TX
Remicade(500 mg/every 6 wk)
Methotrexate(25 mg/wk)
Oxycodone(10 mg/3x a day)
Prednisone(10 mg/ daily for 5 days)
Folic Acid(10 mg/day)
Vitamin D(1,000 IU/day, 50,000/week)
Tizanidine(4 mg/3x a day)
Gabapentin (1200 mg/3 x a day)
#278274 - 06/19/17 05:32 PM Re: Remicade vs Cosentyx [Re: AllieG]  
Joined: Jun 2012
Posts: 494
RAHMBA Offline
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RAHMBA  Offline
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Joined: Jun 2012
Posts: 494
Los Angeles, CA
Hi AllieG,

I didn't see a reply to your question. Like TNFs, I've heard very positive experiences from Cosentyx. There is a new (last week) published medical journal paper on a Cosentyx that included people with AS that switched from TNFs. you can find it through a browser search for "EULAR: IV Golimumab AS". also I tweeted a link on my personal twitter RichAHoward. Hope that helps.

What ever you decide, I hope the treatment plan is effective.

Kindest Regards,
Rich
(not a women, but didn't want your issue to go unanswered)


AS, U C, Iritis, migraines. HLA-B27neg. Yoga (instructor) & spin. No meds at this time. Dx 1989. SAA member/donor since 1993. All my posts are personal opinion/feelings and do not represent the SAA. Help find a cure & support others by donating to the SAA.
#278602 - 07/19/17 01:21 PM Re: Remicade vs Cosentyx [Re: AllieG]  
Joined: Sep 2009
Posts: 4
Jean55 Offline
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Jean55  Offline
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Joined: Sep 2009
Posts: 4
Kansas
I did try Cosentyx. It did not work for me. I had been on Enbrel for years and it quit being effective. I had bad reaction to Remicade. Still hoping to find something. I have to be careful of effects of meds on liver and kidneys so that has eliminated NSAIDs and methotrexate. So tired of hurting. Do not want to get addicted to painkillers, but take Tramdrol occasionally.

#278617 - 07/22/17 01:58 AM Re: Remicade vs Cosentyx [Re: AllieG]  
Joined: Apr 2013
Posts: 9
Sunnyday Offline
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Sunnyday  Offline
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Joined: Apr 2013
Posts: 9
Washington
I tried Cosentyx for about three months- I had breakthrough iritis while on it, but also diarrhea for about three days after each injection. I just felt bloated and gross. I'm allergic to all nsaids, have used and eventually lost efficacy on humira, Enbrel, Simponi (my favorite), then had a big reaction to Cimzia. I am now on Remicade after my brief stint on Cosentyx. I would ask for Simponi because the injections are easy, painfree, monthly, and it worked great for about three years.


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