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Michael Smith's website #279540
12/07/17 05:14 PM
12/07/17 05:14 PM
Joined: Jul 2006
Posts: 6,610
New York
Banana Online OP
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Banana  Online OP
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Michael Smith was a completely fused Spondy, who had a wonderful sense of humor. He died a year ago, but his website is still up.

Here is his very funny outlook.

http://www.spondyville.com/


Actema IV once a month (with pre loading for allergic reaction), Cymbalta x1 daily, Arava 20mg daily. Diagnosed with AS in 2004, suffered undiagnosed since 1982.
Re: Michael Smith's website [Re: Banana] #279558
12/11/17 07:53 AM
12/11/17 07:53 AM
Joined: Feb 2003
Posts: 2,847
Huntington Beach, CA
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CB in CA Offline
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Hard to believe a year has passed already. Is anyone managing his website or is it just as he left it?

Re: Michael Smith's website [Re: Banana] #279559
12/11/17 02:54 PM
12/11/17 02:54 PM
Joined: Mar 2013
Posts: 2,055
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SouthernMoss Online
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He had the best haiku's.


Ginny - 58 year old female
Dx with USpA in March 2013; changed to AS in July 2015
Iritis and Scleritis
unicompartmental knee replacements: right-June 2014, left-Aug 2018
MTX, Humira, Cyclobenzaprine, plus Celebrex as needed
Supplements: Folic Acid, Vitamin A, Vitamin D, Calcium, Fish Oil, Culturelle probiotic, Melatonin (as needed)
Re: Michael Smith's website [Re: Banana] #279562
12/12/17 01:27 PM
12/12/17 01:27 PM
Joined: Jul 2006
Posts: 6,610
New York
Banana Online OP
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Banana  Online OP
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Posts: 6,610
New York
I don't know if anyone is managing it, at least it isn't taken down. Yes, a whole year. He used every method there is to not only get the word out about AS but also reached out to the medical community. He was on TV, he got a couple of us to hand out info in Times Square (when he needed a medical van to deliver him) and often invited me to attend residences seminars and be a pretend patient to teach beginning doctors to learn about the different variations on AS.

Miss him.


Anna


Actema IV once a month (with pre loading for allergic reaction), Cymbalta x1 daily, Arava 20mg daily. Diagnosed with AS in 2004, suffered undiagnosed since 1982.
Re: Michael Smith's website [Re: Banana] #280031
03/07/18 05:09 PM
03/07/18 05:09 PM
Joined: Oct 2017
Posts: 1
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Rennett Offline
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I hope they don't take it down. I'm pretty sure that won't happen if it's managed by someone who cares about Michael's legacy.


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