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Anyone have uncontrolled bp since AS? #279858
01/28/18 04:09 PM
01/28/18 04:09 PM
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worldofme Online OP
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Ever since my spondalytitis started I swear that my bp is uncontrolled despite diet and medication. Has anyone in this situation and what have you done about it?

BP always stays between 145 to 150 / 85 to 95 . I am on three different type of BP medicine. My cardio is confused and he's a EP guy. I also get random palpitation beats will go from 60 to 110 out of the blue. My ekg will be complete normal. All heart test are normal.

My regular blood work along with kidney function and cholesterol is normal. My doctors are just confused as I am.

What could this be?

Cardio refuses to believe spine pain can cause high BP. I need help.

Re: Anyone have uncontrolled bp since AS? [Re: worldofme] #279861
01/29/18 07:46 AM
01/29/18 07:46 AM
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I think in my case it was Vioxx. I have been on high BP meds now for 20 years. BP can go up for many reasons. See a GP.


Dx w/ AS in 1985. HLA-B27+. Left total hip replacement in 1998, lost 2" of height due to osteoporosis. Relevant meds include Remicade, Oxycontin, Percocet, Lyrica, Soma. 7 hour spine fusion surgery in April 2014 for cervical spondylotic myelopathy and radiculopathy. Tried for a year to return to work and couldn't make it past a 5 hour day, so was forced to go on disability in 2015 and haven't been able to attempt another day of work since then. Living to help others now.
Re: Anyone have uncontrolled bp since AS? [Re: worldofme] #279891
01/31/18 12:22 AM
01/31/18 12:22 AM
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I don’t know what to suggest about the BP, but for the random palpitations perhaps look into getting a fitness watch/tracker that can keep a record of your heart rate. They aren’t as accurate as the equipment in the doctors office, but you can use it to create a record of multiple instances of palpitations and then bring that data to your doctor, which may help you convince you doctor to give you a more comprehensive test that might uncover the cause of the palpitations.

Don’t get me wrong, EKGs are reliable, the problem is that some kinds of palpitations don’t show up on EKGs if you don’t experience them while the EKG is being taken. My mother complained of palpitations for several years and the doctors couldn’t find anything until just recently she had to go the emergency room for chest pain and it turned out that she was experiencing atrial fibrillation, now she’s on the proper medication to control it.

Re: Anyone have uncontrolled bp since AS? [Re: worldofme] #279892
01/31/18 02:50 AM
01/31/18 02:50 AM
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worldofme Online OP
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there is a device call "kardia" it allows you to do ekg on your phone. it's 97% accurate can tell if your in afib or not.

I have it and I just send report to doc. all ekg normal.

just high bp for no reasons.

Re: Anyone have uncontrolled bp since AS? [Re: worldofme] #279895
01/31/18 02:26 PM
01/31/18 02:26 PM
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Although I don't associate it with AS per se, I developed high blood pressure after the birth of my youngest daughter nine years ago, which was also when a storm of strange auto immune symptoms began brewing. I did the low salt diet thing with no change, then went through trial and error with different medications. Fortunately, mine is now well controlled on Lisinopril. I also have WPW (a disorder caused by an aberrant electrical pathway). Since starting treatment with Remicade, I notice a lot more strange heart rhythms. Often I perceive them as fast, but my blood pressure monitor will show me they are actually abnormally slow. I'm not sure this helps you in any way, but at least anecdotally, there does seem to be some connection between bp and autoimmune conditions (and definitely drugs used to treat them).

Have you tried different medications? I assume you are seeing a cardiologist based on info in your post. My cardiologist was much more helpful in finding me the right medication than was my GP. A lot of available drugs will really wipe you out, which, along with the AS can make a perpetual cycle of not getting the kind of exercise that can provide some relief to both.

Good luck!

Re: Anyone have uncontrolled bp since AS? [Re: worldofme] #279896
01/31/18 05:05 PM
01/31/18 05:05 PM
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I have experienced high blood pressure I associate with my AS. I have always had low bp. Until I was in a major flare, that couldn't be explained off. When I went to my GP she was shocked that my bp was so high and it has fluctuated but I don't have my AS under control yet, we are still working on that. I do often wonder if once the AS is under control if it will level back out.

Re: Anyone have uncontrolled bp since AS? [Re: worldofme] #279897
02/01/18 02:45 PM
02/01/18 02:45 PM
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My BP is high since this all started. I've been told by another person who has AS outside of this forum that AS can contribute to high BP. Mine usually is around just over 140/84 but sometimes spikes a little higher.


Dec 2016- Persistent feeling of being "off-balance", no true vertigo but feelings of dizziness.
April 2017- Pain started at first in calves, then back (location random), then knees and ankles. All diagnostic testing tried at this point normal.
Sept 2017- First visit to rheumatologist. HLA-B27+, Grade 2 sclerosis on pelvic x-ray, rheumy diagnosed AS.
Nov 2017- Cervical X-ray narrowing b/t vertebrae
Meds: Indomethacin 50mg BID
Re: Anyone have uncontrolled bp since AS? [Re: worldofme] #279898
02/01/18 03:57 PM
02/01/18 03:57 PM
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There is a theory that hypertension is itself an autoimmune disease. See http://www.kidneynews.org/kidney-ne...section/hypertension-autoimmune-disease. The article notes that inflammatory cytokines such as TNF-a exacerbate high blood pressure.

Re: Anyone have uncontrolled bp since AS? [Re: worldofme] #279899
02/01/18 08:20 PM
02/01/18 08:20 PM
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worldofme Online OP
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I am on valsartan 320/25 + metoprolol 50mg and my bp is still high. my salt intake is low along with diet and exercise.

my AS is not undercontrolled at all. Rehum won't do tnf wit possible myositis.

my bp is 135/90, all day long with meds.

I get headaches like tension and cluster type, doc says can't be bp but never had them before.

they change guidelines on bp recently, 140/90 is state 2 now.

Re: Anyone have uncontrolled bp since AS? [Re: worldofme] #279900
02/01/18 08:21 PM
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worldofme Online OP
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I don't know what to do - I'm gonna go to hypertension center.

too young for this.

Re: Anyone have uncontrolled bp since AS? [Re: ThreeG] #279901
02/01/18 08:23 PM
02/01/18 08:23 PM
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worldofme Online OP
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ThreeG - what are your levels now?

please look up kardia - use this device to capture heart palpitations

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