I'm sorry you are having such a rough time with your AS.
People who don't have chronic pain don't get it. They never will. It's not their fault, they just don't have any frame of reference. They will never understand how it feels to ALWAYS hurt, and not be able to look forward to a time when the pain will be gone. So try not to judge your fiance for his lack of empathy. It sounds like he's trying, and that's really all you can hope for. It's not fair, but there's nothing fair about AS.
Is there a support group in your area for people who deal with chronic pain? It doesn't have to be an AS-specific group. It's always helpful to talk with people who have walked in your shoes and can truly empathize. There are some Facebook groups for AS suffers too. The one Cookie Hopper started is called Standing Strong Against Ankylosing Spondylitis. There's also one called Ankylosing Spondylitis for Women. There are others as well, these are just two that I have visited and know are well-run and well-moderated.
Ginny - 58 year old female
Dx with USpA in March 2013; changed to AS in July 2015
Iritis and Scleritis, both currently in remission
unicompartmental knee replacements: right-June 2014, left-Aug 2018
MTX, Humira, Cyclobenzaprine, plus Celebrex as needed
Supplements: Folic Acid, Vitamin A, Vitamin D, Calcium, Fish Oil, Culturelle probiotic, Melatonin (as needed)