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Woops messed up... #280119
03/30/18 03:22 AM
03/30/18 03:22 AM
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Thesnakejakw Offline OP
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So, I have been on some decent pain relief for 3 months from November to end of January.. I have been taking methotrexate, oxycodone, soma, Prednisone.

I have some how blacked out on my medication and went to hang out with a friend in a altered mental state, when I was with this friend I supposedly did a line of cocaine which also was cut with meth and somehow I also took a benzo, as I became aware at the emergency room. With doctors telling me what was going on they also made a call to my rhemutologist the day of the er visit to see what was going on.

I don't recall any of it to be honest until I became aware. I explained to my rhemutologist what happened and he just called me a liar and told me he won't be prescribing me any opioid or controlled substance ever again, even though I handed him my remaining soma prescription I had very few oxycodones left and miss placed them and that was the day I needed a refill he cut me cold turkey and only provided a worthless withdrawal drug that's supposed to help with nausuea but not the mental and physical, he referred me to a specialist who had a month wait time and I could not get relief. I siffured a week of withdrawals and even had a seizure . He didn't prescribe me any weaning off of the soma or oxy I had been on for 5 months of 60mg oxy a day and 4 soma a day. Now the place I doctor through is pretty big and it is kind of like a Mayo clinic campus so all my doctor's now know of the er visit and it's on my record saying illict drug use utox screen POS for cocaine meth and benzos and says non fatal overdose and will highly unlikely prescribe me anything that will help. This doctor is cruel and acts like he cares when he is 40 minutes late to the appointment and does not care on how he treated me. We tried humira and it worked a little bit the injections maybe the medication was to stingy and painful so we switched. I been in constant pain for 2 months now and if I don't find a doctor that can help me I'm about to score drugs off the street to help my pain hoping that the pills I find are not laced with fetynal and die... which will be better then living with this pain as my doc won't even prescribe a non narcotic muscle relaxer ffs.


Diagnosed 4+ months ago with as causes chest pain and severe back pain . Medications : methotrexate .6 per week in divided doses, Prednisone tapering off 2 5mg daily, folic acid mg daily, dicloymine for stomach pain and cramping , ranitidine 150mg twice daily and Prilosec 20mg extended release once daily , Carispodol (Soma) 350mg 5 times daily , oxycodone 10mg every 4 hours as needed
Re: Woops messed up... [Re: Thesnakejakw] #280121
03/30/18 05:03 PM
03/30/18 05:03 PM
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Winston Online
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I've been trying to decide all morning whether to respond to your post. I suspect others have been struggling with that decision as well. To be completely honest with you, I already had you pegged as an addict based on your prior posts singing the praises of opioids a little too enthusiastically. I hope you'll accept what follows for what it is intended to be -- an honest assessment of your situation from a person who talks to addicts every day after they've hit rock bottom, after they've bought those street drugs you mention and fortunately ended up in jail, rather than the morgue. In other words, I'm not judging you; I'm just telling you like it is.

You need drug treatment, not more drugs, or you're going to die. The fact that you characterize what happened to you as a "whoops" is a sign that you're in denial about the extent of your problem. No ethical doctor is going to prescribe you narcotics right now. You need to enroll in a treatment program. That's the only way I can imagine you might regain the trust of your doctors and (possibly) regain access to lawful drugs that you may need to treat your disease.

Note that your doctors will recognize your threat to buy street drugs if you aren't prescribed lawful drugs as emotional manipulation. They (along with nurses, social workers, mental-health professionals, probation officers, etc.) hear those sorts of threats from addicts everyday. Your attempt to shift blame from yourself to your doctors is another common tactic employed by addicts. You took so many painkillers that you blacked out, used dangerous street drugs (dangerous for anyone, but particularly dangerous for people like us with a much higher risk of cardiovascular death), and overdosed. Your doctors didn't make you do that. Your predicament is 100% your fault, and you need to come to terms with that, which a good treatment program will help you do.

Re: Woops messed up... [Re: Thesnakejakw] #280123
03/30/18 08:14 PM
03/30/18 08:14 PM
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CBMom Offline
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I have also been wondering whether to reply...we all told you before you need to be focusing on treating the disease, instead of just using pain meds. You insisted biologics were not for you and you absolutely needed opioids...

Now you have REALLY messed up and it is unlikely any doctor will prescribe opioids to you ever. I suggest you try to actually treat the AS with drugs that treat the inflammation, since pain meds are no longer an option (and are anyway only supposed to be used as a last resort). You said you tried Humira but the injection stung? 10 seconds of pain seems worth it if it could really help you. It can take 3 to 6 months to work, so you need to be patient. Also, they are changing the formulation of Humira to remove the preservative that stings - the no sting formulation will be released for pediatric patients this summer and I suppose eventually for adult patients.

If you absolutely cannot deal with the 10 seconds of pain from Humira, then try another anti-TNF. Simponi is basically painless. Simponi Aria is the infusion form - just an IV. Enbrel is a shot and I didn't think hurt much at all either. I thought Humira hurt, but if you ice before and after the shot, you do get used to it. And if it reduces the AS pain, it's very worth it.

Along with a biologic, try an NSAID. If they hurt your stomach, but you can use a PPI to protect your stomach (Prevacid, Prilosec) and try something like Celebrex, which is easier on the GI tract. I had to try about 10 or 12 NSAIDs before I found one that worked and didn't bother my stomach. NSAIDs can really help with the pain.

There are more treatment options now - if you fail multiple anti-TNFs (Enbrel, Remicade, Cimzia and Simponi, besides Humira), then you can try Cosentyx, an IL-17 inhibitor.

I think you need to come to terms with the fact that 1) you used opioids and other street drugs irresponsibly and need to get help and 2) With the opioid epidemic, no one is going to prescribe them to you - for good reason and 3) you need to treat the inflammation caused by AS instead of just trying to mask with the pain with muscle relaxants and painkillers.

Re: Woops messed up... [Re: Thesnakejakw] #280124
03/30/18 08:29 PM
03/30/18 08:29 PM
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Madison, Wisconsin, USA
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Cake Offline
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In the current climate we are in (opioid hysteria), you have made a very unfortunate decision, and you are going to suffer because of it. I say that not to judge you in any way. It is a fact. Those of us who have been on long-term treatment with opioids understand how precarious it is for us. And the majority of us comply with our mandatory pain contracts 100% because we know how important pain control is.

You're going to need to work with a doctor to get some combination of medications to keep your disease control. I'm on morphine, but I'm also on a bunch of other drugs and there is no way the morphine would touch the pain on its own. It is merely the icing on the cake, so to speak.

I'm thinking that if you take total responsibility for your bad decision, start consistently seeing a rheumatologist and following every direction they give you, offer to do UA tests, maybe even random ones, you might at some point earn back your ability to get some pain medication. This will be after you get on all the other meds used to treat these sorts of diseases.

It can take a lot of time to get the right combination of medications. I spent years going through nearly every medication that exists until we had a combination that helped my symptoms and had side-effects I could tolerate. It takes a TON of patience. Tons.

Best wishes to you~~

Re: Woops messed up... [Re: Winston] #280125
03/30/18 09:12 PM
03/30/18 09:12 PM
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Thesnakejakw Offline OP
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So Winston, I'm an addict even though I could of got them the day I was denied a refill, but decided to try to tough out the drug withdrawals? . One simple mistake I took my normal dose of meds I even told the doctor I was cutting down on the muscle relaxers with no support from him to help get off of them obviously because of black outs I was having with the combination , I took them as prescribed and didnt take more then I was suppose tom I never before have I tried the drugs besides benzos from a dentist for after a procedure I got which was years ago. I am not going to take responsibility for something I don't remember I blamed it on a black out. I also am not putting the blame on the doctor on my actions but the way he handled the situation he cut me off of both drugs cold turkey which the soma withdrawal plus the oxy withdrawal is torture and even though the oxy one ain't life threatening the soma basically made me have seizures, no methadone no Suboxone help from a month away to get the physical aspects off. After a week didn't crave anything but was in extreme pain.


. I was actually using other anti tnf such as humira ect and now going to be starting cosyx something, I'm just saying the current treatment plan is not going well, and there's also nothing stopping me from going to another provider and asking for drugs if I was truly seeking these drugs.


Diagnosed 4+ months ago with as causes chest pain and severe back pain . Medications : methotrexate .6 per week in divided doses, Prednisone tapering off 2 5mg daily, folic acid mg daily, dicloymine for stomach pain and cramping , ranitidine 150mg twice daily and Prilosec 20mg extended release once daily , Carispodol (Soma) 350mg 5 times daily , oxycodone 10mg every 4 hours as needed
Re: Woops messed up... [Re: Thesnakejakw] #280126
03/30/18 09:21 PM
03/30/18 09:21 PM
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MartinMMM Offline
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So there seems to be an equation. There is the debilitating effects of pain and fatigue as related to the relative relief of various drug classes. In my experience - admittedly limited - NSAIDS work well for pain relief with limitations. Opioids can help with breakthrough pain i

Re: Woops messed up... [Re: CBMom] #280127
03/30/18 09:25 PM
03/30/18 09:25 PM
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Thesnakejakw Offline OP
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Cbmom

during the treatment they we're incorporating biologics in the treatment but had to pause for periods of a month or 2 before trying another one because of dangerous skin rashes ect that kept coming and going. The humira ain't just a 10 second burn it is like sticking a knife into me and I can't finish giving the meds even with a numbing swab. So they are switching to the cosyx once every 28 days instead like the humira every 14 days. Plus I don't see why everyone is saying I have addiction problems based on the relief and the information I decided not to share before, even though I was being kind of over zelous....this is first time ever I have even tried the drug and would not of if I was alert. Guess no one really expects mental altered state after 3 months of no side effects and the soma started messing with my memories and I started expierencing short term memory loss and a black out without remembering my actions for days at a time or aware. But hey it's my fault right ?


Diagnosed 4+ months ago with as causes chest pain and severe back pain . Medications : methotrexate .6 per week in divided doses, Prednisone tapering off 2 5mg daily, folic acid mg daily, dicloymine for stomach pain and cramping , ranitidine 150mg twice daily and Prilosec 20mg extended release once daily , Carispodol (Soma) 350mg 5 times daily , oxycodone 10mg every 4 hours as needed
Re: Woops messed up... [Re: MartinMMM] #280128
03/30/18 09:29 PM
03/30/18 09:29 PM
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MartinMMM Offline
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sorry - mistyped. ...breakthrough pain but seem to not relieve pain so much as help you not care about it. With the unfortunate side effect of also leaving you somewhat apathetic. For myself there are things I still want to do in this life so I avoid opioids. Maybe I don't experience as much pain as others. Aside from this however, I hate the idea of being dependent on others. Yet I've had to become dependent on drugs: Biologics, BP meds and other non-opioid pain killers. So I'm not going to judge our friend thesnakejakw on his choices in the face of difficult decisions. But I wonder, what does he/she want to do with their life? Opioid abuse can be devastating.

Re: Woops messed up... [Re: Cake] #280129
03/30/18 09:37 PM
03/30/18 09:37 PM
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Thesnakejakw Offline OP
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And cake
Thank you all for your responses. I do realize that, but I have been giving clean uas each time they tested and not one illict substance in me, but he only tested every few months. How can I go to an addicton specialist if I'm not addicted to any of those drugs and don't have cravings for any literally first time I have used those drugs unaware and am sickened that I would even try those ? I have also been seeing him every 2-3 months. I have been trying other medications but while trying the medications I have no pain relief people here also say that I'm threatening to go on the street for meds.? It ain't a threat, it's a last resort and a plead for help as I am just showing how bad this situation is. Also when my doctor cut me off , I didn't disagree with him I told him that I told him what happens and he can decide what to do after he called me a liar obviously to provoke a reaction out of me but I saw through it and just gave a calm response . I don't think people realize the physical and mental trauma of a withdrawal like that is and how it affected me emotionally and physically still am having ptsd like moments remembering how much fear and how weak I was and sick during the withdrawals


Diagnosed 4+ months ago with as causes chest pain and severe back pain . Medications : methotrexate .6 per week in divided doses, Prednisone tapering off 2 5mg daily, folic acid mg daily, dicloymine for stomach pain and cramping , ranitidine 150mg twice daily and Prilosec 20mg extended release once daily , Carispodol (Soma) 350mg 5 times daily , oxycodone 10mg every 4 hours as needed
Re: Woops messed up... [Re: MartinMMM] #280130
03/30/18 09:40 PM
03/30/18 09:40 PM
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Thesnakejakw Offline OP
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Martin it's not opioid abuse it's opioid treatment, it's only opioid abuse if I decide to go get it from the street which is easy this day and age. I am allergic to tyenol and my liver enzymes are elevated 2x normal levels and I can't even take nsaids even with 2 anti acids as I have severe gi problems as well. What do I do ?


Diagnosed 4+ months ago with as causes chest pain and severe back pain . Medications : methotrexate .6 per week in divided doses, Prednisone tapering off 2 5mg daily, folic acid mg daily, dicloymine for stomach pain and cramping , ranitidine 150mg twice daily and Prilosec 20mg extended release once daily , Carispodol (Soma) 350mg 5 times daily , oxycodone 10mg every 4 hours as needed
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