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heart electric system #280289
05/07/18 01:41 AM
05/07/18 01:41 AM
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worldofme Offline OP
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anyone have this issue with spondy?

Re: heart electric system [Re: worldofme] #280296
05/07/18 04:47 PM
05/07/18 04:47 PM
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awesomeman Offline
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Count me in.....a bit of a av block. for some random reason got worse with humira which sucks


diagnosed at 32.
HLA B27 Positive
Currently on Simponi, Tramadol, and celebrex
Re: heart electric system [Re: worldofme] #280297
05/07/18 07:17 PM
05/07/18 07:17 PM
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worldofme Offline OP
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What did they do about the av block, what were your symptoms?

Re: heart electric system [Re: worldofme] #280304
05/08/18 04:52 PM
05/08/18 04:52 PM
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awesomeman Offline
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my heart rate would randomly drop into the low 40 bpm or lower WHILE being active. I ran every test possible and eventually just stopped the humira and the issues went away.


diagnosed at 32.
HLA B27 Positive
Currently on Simponi, Tramadol, and celebrex
Re: heart electric system [Re: worldofme] #280315
05/09/18 12:09 PM
05/09/18 12:09 PM
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Brody96 Offline
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I’m currently on a heart monitor now (I’m 22, and 130lbs) so that they can monitor the conduction disturbances I get from AS. I have random episodes where my resting heart rate jumps into the 140s-150s and stays that way for minutes to days. They ruled out every other possible cause including congenital. Have you had a monitor or ultrasound done? It let my rheumatologist and cardiologist pinpoint the extent of the inflammation impacting my heart as well as the role of not having my pain managed. Im suppose to start Humira next week so I’m scared to see if it’s going to make it worse. I’ll let you know if it does!


22yr old female. Ankylosing Spondylitis and Lupus.
7 hip surgeries and counting

Dog mom of 3 rescues laugh

Re: heart electric system [Re: worldofme] #280329
05/10/18 02:34 AM
05/10/18 02:34 AM
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worldofme Offline OP
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I'm the opposite, I get severe fast heart rate for no reason from sinus node.

40 bom? sign me up. I'll take that. With my beta blockers I'm in high 40s anyway with normal rythem.

Re: heart electric system [Re: worldofme] #280334
05/10/18 02:49 PM
05/10/18 02:49 PM
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awesomeman Offline
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40 bpm while your active and should have a heart rate of 140 plus really isn't pleasant. agreed, I'll take a resting heart rate of 40 all day long....


diagnosed at 32.
HLA B27 Positive
Currently on Simponi, Tramadol, and celebrex
Re: heart electric system [Re: worldofme] #280335
05/10/18 06:34 PM
05/10/18 06:34 PM
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Winston Offline
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Here's an article on AS patients and conduction abnormalities that I recently ran across: https://bmcmusculoskeletdisord.biomedcentral.com/articles/10.1186/1471-2474-14-237

It's the second article I've found recently that recommends routine ECG monitoring of all AS patients. These researchers found that there was no correlation between development of conduction abnormalities and the severity of AS symptoms. In other words, you can have relatively mild AS symptoms and still develop the cardiac abnormalities associated with AS. In fact, in some people, cardiac symptoms will be their first AS symptoms.

Re: heart electric system [Re: worldofme] #280341
05/11/18 02:20 PM
05/11/18 02:20 PM
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ThreeG Offline
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I was interested to see this post bumped back up as it was just what I came on to look for. I have WPW, usually marked by tachycardia, but over the last few weeks I have been having multiple spells a day of palpitations during which my heart rate is falling into the 40s (and I've seen it go as low as the high 30s). I've had episodes of bradycardia in the past, but never so frequent or with such symptoms. It is accompanied by a dry cough, which I have read can be a natural response of the body to reset the rate. I've been on Cosentyx since early March, but this didn't start until late April. Thankfully, I have may annual cardiology check-up next week. It is really freaking me out.

Re: heart electric system [Re: worldofme] #280342
05/12/18 12:11 AM
05/12/18 12:11 AM
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worldofme Offline OP
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did you wpw start after spondy, or did you always have it?

here is something interesting - assuming this disease impact the heart then how does it impact if you say get a pacemaker or abalation?

how about valve leakage? what if valaves are fixed? will the disease still go after artificial valves or device?

if your heart rate is 30 then you should get a pace maker it's not bad says my friend who has a friend is ep cardio.

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