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Re: Attitude and AS [Re: Jacruz] #282355 01/09/19 06:53 AM
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Once you see a mental health specialist.. That is it, your life is over. I am trying to avoid that one. I know my issues and I don't know what not struggling looks like so I suppose its easier to cope with what you are good at. Besides, I live in Canada where shtty second rate healthcare is the norm, so if trying to see a shrink is like seeing a doctor and your problems are secondary to their salary, i just dont have time for that.

I look at it this way, the challenge of waking up every morning is that you woke up.

Literally every day is the worse day ever. However, I still need to win. I have enemies to destroy, things to conquer, and last laughs to be had. Peace, joy and satisfaction died with the old me.

Re: Attitude and AS [Re: achala] #282363 01/10/19 03:42 PM
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Some say denial stores emotions in your subconscious and eventually back fire on oneself trigerring Chemical reactions inside the body.


diagnosed with AS April 2018, starting with cervical pain/stiffness; Aug 2018 enthesitis/bursitis left Achilles
diagnosed with iridociclitis Nov 2017 (4 flares so far) - bilterally DES,PVD
Eosinophilic Gastritis
Signs of inflammations/erosions on MRI`s for axial and Achilles/calcaneus + bursitis
Sulfasalazine 3g 08.2018-05.2019
currently COX2 inhibitor 90mg
Supplements: vit A/C/D, reishi mushrooms, fish oil/probiotic/ Mediterranean NSD
swimming/yoga
Re: Attitude and AS [Re: achala] #282364 01/10/19 05:22 PM
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Gratitude does go a long way. After thirty years of health problems I finally got this diagnosis last year. Grateful for meds. That I have a home, safety, security. I focus on self care. Joined a yoga studio and I go almost every day. I am almost 50 and I am the fittest I have ever been right now. Pain comes and goes. So do insecurities and fears and uncertainties. Focus on what you can do - exercise and eat well. Develop interests. Even if all you can do is read a book, some days that is enough to get out of your head and feel good. When I feel good I hike and snorkel and get out of the house. When I feel bad I take a two hour bath or lay on my heating pad and watch a movie.

Re: Attitude and AS [Re: achala] #282365 01/10/19 09:55 PM
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I am not sure of everyones ages, but it seems that the toll this probably takes on younger people is great than on seniors, mentally.

I am sure there are a lot of people who aren't grateful that they got a disease and had no choice than to be a victim of an unescapable destruction of their lives and livelihood.

Pain comes and goes...sure.. It's ok when you are retired, have a spouse taking care of you, or you're getting good benefits.

Re: Attitude and AS [Re: sdot] #282375 01/12/19 01:49 AM
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Originally Posted by sdot
I am not sure of everyones ages, but it seems that the toll this probably takes on younger people is great than on seniors, mentally.

I am sure there are a lot of people who aren't grateful that they got a disease and had no choice than to be a victim of an unescapable destruction of their lives and livelihood.

Pain comes and goes...sure.. It's ok when you are retired, have a spouse taking care of you, or you're getting good benefits.




Didn't you see the "After thirty years of health problems" part?

I mean honestly what do you expect from people? That they just tell you "yeah life is over man sorry"?

I often feel the same way you do but attacking people here is not great.

Re: Attitude and AS [Re: achala] #282380 01/12/19 12:39 PM
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Not attacking anyone. Was just trying to mention that the stresses are a lot different for seniors vs non-seniors.

Re: Attitude and AS [Re: achala] #282382 01/12/19 04:56 PM
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Didn't seem like an attack to me either. If it is any consolation to anyone, I agree that age makes a difference. However, please keep in mind that seniors were once young too. Many of us have been coping with the problem for a long, long, time. I remember well my earlier years and it wasn't easy. It takes time to learn what works and what doesn't and how to adapt to the pain. It still isn't that easy. Looking back, I would say the disease is NOT life ending. Life altering... yes!



Re: Attitude and AS [Re: achala] #282386 01/12/19 11:12 PM
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Sorry if I was out of line. Just tired of the doom and gloom and I wouldn't want the newly diagnosed to come here and see people wishing for the Apocalypse. :P

Re: Attitude and AS [Re: achala] #282390 01/13/19 03:18 AM
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Never out of line for expressing your thoughts if you're trying to understsnd the face of AS. To appreciate that the 60+ year old with AS is only different as they've experienced what the current 30 yr old is experiencing- but wiyh no medicstion or diagnosis. Our common experiences join us. Differences are as colorful as the community feel of this platform. Pain knows no boundry. Care for your body - even when you believe your body has betrayed you. The body is always trying to heal itself. Believe in the basics, sleep, fresh food, rest and movement.


California, USA
Reoccurring Bilateral Uveitis Dx 1985
Reiters Syndrome Dx 1985
AS Dx 2015
SI joint fused
Re: Attitude and AS [Re: achala] #282474 01/20/19 08:56 AM
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I wanted to say thank you for this thread. I read it and it has been an encouragement over the past few weeks. I did not comment because I had not yet experienced turning that corner, but seeing that others have helped me. I was feeling frustrated, overwhelmed, depressed, fear, grief, anger. In the past few months I have been helped by medication with pain, stiffness, and fatigue, which has helped my attitude immensely. I gave up some bad habits. I started strength training, swimming, PT, yoga. I'm on a "diet" per Dr's advice..... I'm feeling more positive and energetic and I am mostly grateful for this change. The other day I had some pain flare up and I got really angry about the fact that I have to exercise every day now which is not my preference!!!! I was like this is bullshit why can't I have a day off????!!!
But overall it is good and I am thankful for your taking the time to share your stories, for how much grace and understanding is shown in this community. Compassion and seeing your strength does help me.

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