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New Board! #280709
07/06/18 12:55 AM
07/06/18 12:55 AM
Joined: May 2008
Posts: 90
ElinAslanyan Offline OP

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ElinAslanyan  Offline OP

Registered Visitor
Joined: May 2008
Posts: 90
Hi There,

This board was created by special request to allow space for discussing long standing spondylitis - issues, complications, lessons learned, etc. Spondy Veterans unite!


Elin Aslanyan

Director of Programs
Editor-in-Chief, Spondylitis Plus
Forum Moderator

Spondylitis Association of America
Re: New Board! [Re: ElinAslanyan] #280710
07/06/18 03:22 AM
07/06/18 03:22 AM
Joined: Oct 2010
Posts: 26
Boise, Idaho
I
irishdeb Offline
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irishdeb  Offline
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Joined: Oct 2010
Posts: 26
Boise, Idaho
Hi. I have had AS for 46 years. I am over 60+ years old. The last couple of years I have noticed a huge difference with age related issues that comes with getting older. I was wondering if anyone else is experiencing something similar with weakness, more fatigued then usual? It has really slowed me down and more frustrating because once again, I cannot do the things I use to do. I would love to talk to others who have had AS for many years and see how you are handling this and other issues like pulmonary and heart issues. Thank you.


Wife and mother to 1
Dx with AS in 1973
HLA B-27 Positive
Crohn's Disease
Glaucoma
Meds: Indocin, Sulfasalazine, Folic Acid, Metoprolol, Methotextrate, Lorazepam, Flexeril, Timolol Eye Gel & Pain meds
Re: New Board! [Re: ElinAslanyan] #280716
07/07/18 07:53 PM
07/07/18 07:53 PM
Joined: Jun 2018
Posts: 2
9
997C4S Offline
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997C4S  Offline
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Joined: Jun 2018
Posts: 2
I have lived with my A.S. for around 60 years and agree that aging adds to our overall health issues. The other obvious factor is the damage done from our A.S. itself. I note that you do not mention being on a TNF alpha blocker or other biologics. Are you a TNF alpha blocker failure or did you decide not to start on a biologic? I ask because biologics can be very effective in reducing inflammation and secondary fatigue issues. I am experiencing more peripheral joint issues including my hips and shoulders which does interfere with my ability to sleep. I still remain reasonably active at 74 years of age.

Re: New Board! [Re: ElinAslanyan] #281183
08/27/18 09:10 PM
08/27/18 09:10 PM
Joined: Aug 2018
Posts: 2
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VickyMcK Offline
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VickyMcK  Offline
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Joined: Aug 2018
Posts: 2
I have lived with AS since 1970 and wasn’t diagnosed until 1995. I’ve been on biological since, but I’m getting stiffer and losing movement to my left side. I’m now 66 years old and dread the nights but hoping something will come to my rescue. I’m hoping Simponi works, but so far no luck. I wish I would have been diagnosed when It all started, but that’s come and gone now.


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