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Re: whats your uveitis feel like [Re: awesomeman] #280745
07/11/18 10:37 PM
07/11/18 10:37 PM
Joined: Jul 2018
Posts: 5
Abq NM
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apfurste Offline
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Abq NM
I live at 5500 feet and the UV is intense here. I carry the pred forte and immediately nip the iritis before it gets out of control. Up until lately, this was the worst part of my AS. I ALWAYS WEAR MY SUNGLASSES OUTSIDE. I cant stress this enough. It is very good for prevention.

Re: whats your uveitis feel like [Re: awesomeman] #281115
08/24/18 09:51 AM
08/24/18 09:51 AM
Joined: Apr 2018
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achala Offline
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achala  Offline
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yes, this is quite annoying. just before I managed to calm down the left eye the right one flared up and i ended up with bilateral Iritis.
back on steroids, but this time the are not so efficient I fear.
I ve noticed that adding NSAID can help to keep it at bay a little.

The doctors here Ophthalmologist/Rheumatologist want to put me on Sulfasalazine for this issue, before eventually considering biologic. Would that work? I am getting a little bit weary as this is the 4th time in a year I have Iritis and 1st time bilateral. My eyes are constantly inflamed!!!

Last edited by achala; 08/24/18 09:51 AM.

diagnosed with AS April 2018, starting with cervical pain/stiffness; Aug 2018 enthesitis/bursitis left Achilles
diagnosed with iridociclitis Nov 2017 (4 flares so far)
Eosinophilic Gastritis
No signs of inflammations on MRI`s for axial. Visible inflammation/erosion of Achilles/calcaneus + bursitis
Currently on /Budenofalk/Montelukast/Vimovo (occasionally), sulfasalazine 1000mg
Supplements: hemp oil/msm/turmeric/vit D/shark catilage/probiotic
Re: whats your uveitis feel like [Re: awesomeman] #281116
08/24/18 12:35 PM
08/24/18 12:35 PM
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Whidbey Island WA
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WhiteCell Offline
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In my view it's a bandaid. Remicade 5mg/kg is the treatment for AS and Uveitis. Maybe a 2nd opinion would be warranted.


Starting at 18 yrs old > Reiter's Syndrome. Diagnosed 2001 Ank Spon.
Started Remicade 2002 - 5mg/kg every 7 weeks.

Right Eye Glaucoma- Trabeculectomy/lens replacement 2006.
Right eye DSEK Cornea Transplant 2009.
Right eye Ahmed Shunt 2016.
Right eye DSEK Cornea Transplant 2016.
Supra Ventricular Tachycardia. 2004. Cured by RF ablation 2008.

ICU RN - Seattle, WA

~Grasp The Challenge and Succeed~
Re: whats your uveitis feel like [Re: awesomeman] #281117
08/24/18 01:30 PM
08/24/18 01:30 PM
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Posts: 65
Iowa City, IA USA
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DadCue Online
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I agree with Whitecell. I would think steroids and NSAIDS's with your diagnosis if Eosinophilic Gastritis would suggest a different approach but I'm not a doctor. It seems your symptoms and diagnosis are recent so perhaps there is some kind of protocol that is done before moving to a biologic. I believe it is an understatement to say recurrent iridociclitis is "quite annoying". I hope they get it under control quickly.


Dx. reactive arthritis with recurrent uveitis, HLA-B27+ (1993), polymyalgia rheumatica (PMR) added in 2008, trigeminal neuralgia added in 2009

Hx. cataracts (2009), tendon rupture-wrist (2010), HTN with LVH (2011), pulmonary embolism-multiple, extensive and bilateral (2012), total bilateral knee replacements (2015), craniotomy for microvascular decompression of trigeminal nerve (2016), surgery pending for L4-L5 disc bulge, stenosis and severe "degenerative" spinal arthritis (2016)
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