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Re: Question to those who switched biologics [Re: seymour] #280972
08/09/18 08:59 PM
08/09/18 08:59 PM
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SouthernMoss Offline
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Originally Posted by seymour
I wish I knew how to take each day as it comes. How do people do it?


Some people are just blessed with a more laid-back personality. Others use meditation or mindfulness techniques. Has your therapist suggested any ways of coping? If not, maybe you could discuss it with him/her.


Ginny - 58 year old female
Dx with USpA in March 2013; changed to AS in July 2015
Iritis and Scleritis, both currently in remission
unicompartmental knee replacements: right-June 2014, left-Aug 2018
MTX, Humira, Cyclobenzaprine, plus Celebrex as needed
Supplements: Folic Acid, Vitamin A, Vitamin D, Calcium, Fish Oil, Culturelle probiotic, Melatonin (as needed)
Re: Question to those who switched biologics [Re: seymour] #280976
08/10/18 01:15 AM
08/10/18 01:15 AM
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Mary Beth Offline
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Honestly? The way I look at it is this. This is my life. I either deal with it, or I don’t. For me anxiety came from imagining possible outcomes. But I don’t know what those will be. So why bother?

Everyone has something. I don’t know. I had a stressful childhood. I got through that. I can get through this.

I am not dismissing your own approach. You are you. I am me. Just saying what works for me.


46, diagnosed with AS in early 2005 and on TNF-blockers since then: They have been miracle drugs for me. On Enbrel from spring 2005 to Nov 2008. On Humira from Nov 2008 to present. Baclofen and OTC anti-inflammatories as needed.

"You must be the change you wish to see in the world." --Gandhi
Re: Question to those who switched biologics [Re: seymour] #280978
08/10/18 02:11 PM
08/10/18 02:11 PM
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I have missed this thread! I don't want to diminish the importance of all this but could someone please explain how to do those "originally posted by" boxes. I am new to this. A distraction sometimes helps the pain.



Re: Question to those who switched biologics [Re: seymour] #280979
08/10/18 02:53 PM
08/10/18 02:53 PM
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Originally Posted by seymour
I just don’t understand how people can manage pain, anxiety and working full time. And I don’t understand how people can have active AS without being depressed or anxious.

I thought I was better mentally but it was just my AS that was less painful for a few weeks. Now that the pain is back I’m almost at square 1.

I wish I knew how to take each day as it comes. How do people do it?


As SouthernMoss states, personality matters. Some people are natural worriers, others aren't. Some people respond to worry/anxiety with frenetic activity, others -- those with, perhaps, a naturally depressive personality -- tend to dwell in it. I am a naturally anxious person. I had anxiety before I had AS. I'm not, though, a naturally depressive person, so I tend to react to my anxiety by planning. Posting here on this forum is actually one of the ways I control my anxiety about my disease. Reading medical journal articles is another way I "control" it. I have great plans for my retirement, where I will live near a major academic medical center where there are specialists in my disease and its complications. Planning works for me. It may not work for you. It may actually make your anxiety/depression worse. The key is finding out what works for you, and your therapist should be able to help with that.

Re: Question to those who switched biologics [Re: seymour] #280980
08/10/18 03:49 PM
08/10/18 03:49 PM
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seymour Offline OP
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What helps me is having little pain and not being in a flare. smile

Sucks for me that I can barely take NSAIDs without getting gastritis and that my Enbrel doesn't work on its own anymore!

I will continue working with my therapist.

Re: Question to those who switched biologics [Re: seymour] #280981
08/10/18 03:56 PM
08/10/18 03:56 PM
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I am a natural worrier. I dwell on things until I can't dwell anymore. Frenetic activity drives me nuts. I am not overly depressed. I love planning (if the original plan doesn't pan out then revise it or abandon the plan). I love reading medical journals but most are qualified by phrases like "while the exact mechanism is not fully understood" they tend to make me laugh. I am retired. I do live near and used to work at a major academic medical center. The place drives me crazy and I pity those who encounter them. I like where I am and don't plan on moving too far away. I don't have a therapist but could certainly use one. With that being said (that phrase drives me crazy too). I would like to know how to do those "originally posted by" boxes. Thanks



Re: Question to those who switched biologics [Re: DadCue] #280982
08/10/18 04:17 PM
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Originally Posted by DadCue
I would like to know how to do those "originally posted by" boxes. Thanks


It's just a quote man. You press the quote button on the lower-right portion of the post you wanna quote.

Re: Question to those who switched biologics [Re: DadCue] #280983
08/10/18 04:40 PM
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Originally Posted by DadCue
I have missed this thread! I don't want to diminish the importance of all this but could someone please explain how to do those "originally posted by" boxes. I am new to this. A distraction sometimes helps the pain.


Like seymour said, use the Quote button.

If you only want to quote part of someone's post, use the Quote button, then delete the text you don't want to include in the quote. Just make sure to leave the stuff in brackets at the beginning and end of the quote.


Ginny - 58 year old female
Dx with USpA in March 2013; changed to AS in July 2015
Iritis and Scleritis, both currently in remission
unicompartmental knee replacements: right-June 2014, left-Aug 2018
MTX, Humira, Cyclobenzaprine, plus Celebrex as needed
Supplements: Folic Acid, Vitamin A, Vitamin D, Calcium, Fish Oil, Culturelle probiotic, Melatonin (as needed)
Re: Question to those who switched biologics [Re: seymour] #280984
08/10/18 04:40 PM
08/10/18 04:40 PM
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Posts: 129
Iowa City, IA USA
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DadCue Offline
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Originally Posted by seymour
Originally Posted by DadCue
I would like to know how to do those "originally posted by" boxes. Thanks


It's just a quote man. You press the quote button on the lower-right portion of the post you wanna quote.


It doesn't look right



Re: Question to those who switched biologics [Re: seymour] #280985
08/10/18 04:44 PM
08/10/18 04:44 PM
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SouthernMoss Offline
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DadCue, you quoted a post that already had a quote in it. That's why it looks funny.


Ginny - 58 year old female
Dx with USpA in March 2013; changed to AS in July 2015
Iritis and Scleritis, both currently in remission
unicompartmental knee replacements: right-June 2014, left-Aug 2018
MTX, Humira, Cyclobenzaprine, plus Celebrex as needed
Supplements: Folic Acid, Vitamin A, Vitamin D, Calcium, Fish Oil, Culturelle probiotic, Melatonin (as needed)
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