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Re: humira - effectiveness [Re: Banana] #281400
09/14/18 12:31 PM
09/14/18 12:31 PM
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Posts: 96
Toledo, OH
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MichaelSean Offline
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Toledo, OH
Originally Posted by Banana
Michael, the odds of getting cancer are higher with AS NOT being treated, so good that Humira is working for you. Not treating the inflammation causes many kinds of cancers.

Humira, it worked quick for me but I needed it every week. Good luck, I hope it keeps getting better and better.

Anna


I've done enough of my own research to know that you are absolutely correct about this. Since going on Humira my PSA score and ALT and AST scores have all dropped, so I know not having the inflammation in my body is doing me good.

I just wonder if the Humira works TOO well, if such a thing is possible. I feel like I've been fighting off a stomach bug for weeks that my body just can't seem to shed.

Re: humira - effectiveness [Re: DadCue] #281401
09/14/18 02:47 PM
09/14/18 02:47 PM
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achala Online
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Originally Posted by DadCue
TB would be a risk to anyone. I think Romania was ground zero for my problem but I wouldn't change a thing. Working in a hospital didn't help. How's the uveitis?


After 3 weeks on prednisone both eyes 👀 cleared. Oftlamologist said today cornea is clear no inflammation. however I still see red veins not disappearing.
Added to my worries is new kind of thoracic pain...for a change

Last edited by achala; 09/14/18 02:48 PM.

diagnosed with AS April 2018, starting with cervical pain/stiffness; Aug 2018 enthesitis/bursitis left Achilles
diagnosed with iridociclitis Nov 2017 (4 flares so far) - bilteral, DES
Eosinophilic Gastritis
Signs of inflammations/erosions on MRI`s for axial and Achilles/calcaneus + bursitis
Naproxen (occasionally), Sulfasalazine 3000 mg per day
Supplements: vit A&D, reishi mushrooms, fish oil/probiotic/ Mediterranean NSD
plenty of swimming
Re: humira - effectiveness [Re: achala] #281402
09/14/18 04:04 PM
09/14/18 04:04 PM
Joined: May 2018
Posts: 102
Iowa City, IA USA
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DadCue Offline
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Originally Posted by achala
After 3 weeks on prednisone both eyes 👀 cleared.


That's wonderful ... did you switch to prednisone? Did you have a steroid injection in your eye? Three weeks is rather fast to be on prednisone and off again.



Re: humira - effectiveness [Re: DadCue] #281403
09/14/18 05:36 PM
09/14/18 05:36 PM
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achala Online
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That's wonderful ... did you switch to prednisone? Did you have a steroid injection in your eye? Three weeks is rather fast to be on prednisone and off again.
[/quote]

In fact it was methylprednisone called Medrol here. I took 64 mg for 4 days, 32 for 4 days, 16 for 4 days and finally 8 mg for 4 days. With no shots at this point. I am taking sulfasalazine now sine 2 weeks + I am back on mentelukast/budesonide for my eosinophilic ileitis.
So far headaches after sulfasalazine...


diagnosed with AS April 2018, starting with cervical pain/stiffness; Aug 2018 enthesitis/bursitis left Achilles
diagnosed with iridociclitis Nov 2017 (4 flares so far) - bilteral, DES
Eosinophilic Gastritis
Signs of inflammations/erosions on MRI`s for axial and Achilles/calcaneus + bursitis
Naproxen (occasionally), Sulfasalazine 3000 mg per day
Supplements: vit A&D, reishi mushrooms, fish oil/probiotic/ Mediterranean NSD
plenty of swimming
Re: humira - effectiveness [Re: achala] #281406
09/15/18 02:24 PM
09/15/18 02:24 PM
Joined: May 2018
Posts: 102
Iowa City, IA USA
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DadCue Offline
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Originally Posted by achala
I took 64 mg for 4 days, 32 for 4 days, 16 for 4 days and finally 8 mg for 4 days. With no shots at this point. I am taking sulfasalazine now sine 2 weeks. So far headaches after sulfasalazine...


Well ... that's fast. Maybe a gradual 10% reduction daily instead of 50% every 4 days but I don't think there's any set rule. I get nauseated just seeing the word "sulfasalazine".



Re: humira - effectiveness [Re: pdiddy] #281416
09/17/18 07:43 PM
09/17/18 07:43 PM
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achala Online
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They increased me sulfasalazine to 3g per day.
By the way I came across the below
https://www.ncbi.nlm.nih.gov/m/pubmed/19962291/?i=5&from=/28735823/related
Anyone tried it?


diagnosed with AS April 2018, starting with cervical pain/stiffness; Aug 2018 enthesitis/bursitis left Achilles
diagnosed with iridociclitis Nov 2017 (4 flares so far) - bilteral, DES
Eosinophilic Gastritis
Signs of inflammations/erosions on MRI`s for axial and Achilles/calcaneus + bursitis
Naproxen (occasionally), Sulfasalazine 3000 mg per day
Supplements: vit A&D, reishi mushrooms, fish oil/probiotic/ Mediterranean NSD
plenty of swimming
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