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Re: Spondylitis Symptoms - List Your Symptoms Here [Re: Bearadactyle] #281005
08/11/18 02:58 PM
08/11/18 02:58 PM
Joined: Jun 2012
Posts: 560
Los Angeles, CA
RAHMBA Offline
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RAHMBA  Offline
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Joined: Jun 2012
Posts: 560
Los Angeles, CA
I can relate! but never noticed lymph node on inner hips.


AS, U C, Iritis, migraines. HLA-B27neg. Yoga (instructor) & spin. No meds at this time. Dx 1989. SAA member/donor since 1993. All my posts are personal opinion/feelings and do not represent the SAA. Help find a cure & support others by donating to the SAA.
Re: Spondylitis Symptoms - List Your Symptoms Here [Re: RAHMBA] #281043
08/15/18 06:15 PM
08/15/18 06:15 PM
Joined: Aug 2018
Posts: 3
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Bearadactyle Offline
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Joined: Aug 2018
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I think I was tag teamed by some other illnesses it was no fun.

Re: Spondylitis Symptoms - List Your Symptoms Here [Re: fall_of_moonbeams] #281313
09/04/18 07:58 PM
09/04/18 07:58 PM
Joined: Apr 2018
Posts: 83
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achala Online
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Posts: 83
Quadriceps pain. Not sure if coming from limping due to Achilles enthesitis or it’s on it’s own. Sat down today, stood up with new pain.
+ of course my bilateral iritis with floaters in my right eye looking like Star Wars fleet ready to fire!


diagnosed with AS April 2018, starting with cervical pain/stiffness; Aug 2018 enthesitis/bursitis left Achilles
diagnosed with iridociclitis Nov 2017 (4 flares so far) - bilteral, DES
Eosinophilic Gastritis
Signs of inflammations/erosions on MRI`s for axial and Achilles/calcaneus + bursitis
Naproxen (occasionally), Sulfasalazine 3000 mg per day
Supplements: vit A&D, reishi mushrooms, fish oil/probiotic/ Mediterranean NSD
plenty of swimming
Re: Spondylitis Symptoms - List Your Symptoms Here [Re: fall_of_moonbeams] #281340
09/08/18 01:32 AM
09/08/18 01:32 AM
Joined: Sep 2018
Posts: 5
North Carolina
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Shannon80 Offline
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Joined: Sep 2018
Posts: 5
North Carolina
Hi folks I’m new here and really don’t know how it works. I’ve not been diagnosed with A S but I have all the symptoms. 3 weeks I was Diagnosed with iritis , the paper that the Ophthalmologist gave me said it was caused by a auto immune disease with a list of some possible autoimmune diseases that I might have. A S was one of them.
List of symptoms
Back pain mostly lower/ middle
Buttocks pain
Right hip
Neck
Knees
Feet
Joints shoulder wrists jaw forearm fingers
Migraines
Fatigue
Sensitive to both hot and cold weather

Re: Spondylitis Symptoms - List Your Symptoms Here [Re: fall_of_moonbeams] #281348
09/09/18 05:20 PM
09/09/18 05:20 PM
Joined: Jun 2012
Posts: 560
Los Angeles, CA
RAHMBA Offline
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RAHMBA  Offline
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Joined: Jun 2012
Posts: 560
Los Angeles, CA
Hi Shannon80,
Welcome to the Forum.
Perhaps this page would be helpful? The white board animation video is very informative. https://www.spondylitis.org/Could-I-Have-Spondylitis

This member referral directory is a list of rheumatologists that people have found helpful.


AS, U C, Iritis, migraines. HLA-B27neg. Yoga (instructor) & spin. No meds at this time. Dx 1989. SAA member/donor since 1993. All my posts are personal opinion/feelings and do not represent the SAA. Help find a cure & support others by donating to the SAA.
Re: Spondylitis Symptoms - List Your Symptoms Here [Re: achala] #281349
09/09/18 05:21 PM
09/09/18 05:21 PM
Joined: Jun 2012
Posts: 560
Los Angeles, CA
RAHMBA Offline
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RAHMBA  Offline
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Joined: Jun 2012
Posts: 560
Los Angeles, CA
I have lots of floaters in vision. Is that related to AS?


AS, U C, Iritis, migraines. HLA-B27neg. Yoga (instructor) & spin. No meds at this time. Dx 1989. SAA member/donor since 1993. All my posts are personal opinion/feelings and do not represent the SAA. Help find a cure & support others by donating to the SAA.
Re: Spondylitis Symptoms - List Your Symptoms Here [Re: RAHMBA] #281404
09/14/18 06:59 PM
09/14/18 06:59 PM
Joined: Apr 2018
Posts: 83
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achala Online
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achala  Online
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Joined: Apr 2018
Posts: 83
Originally Posted by RAHMBA
I have lots of floaters in vision. Is that related to AS?

In my case yes. In never had them or even knew what floaters are before first episode of iritis. One oftlamologist told me as long as they float and not too many of them then it’s fine. Worst when they start to gather at the back of the eye 👁.


diagnosed with AS April 2018, starting with cervical pain/stiffness; Aug 2018 enthesitis/bursitis left Achilles
diagnosed with iridociclitis Nov 2017 (4 flares so far) - bilteral, DES
Eosinophilic Gastritis
Signs of inflammations/erosions on MRI`s for axial and Achilles/calcaneus + bursitis
Naproxen (occasionally), Sulfasalazine 3000 mg per day
Supplements: vit A&D, reishi mushrooms, fish oil/probiotic/ Mediterranean NSD
plenty of swimming
Re: Spondylitis Symptoms - List Your Symptoms Here [Re: fall_of_moonbeams] #281448
09/20/18 04:39 AM
09/20/18 04:39 AM
Joined: Jan 2016
Posts: 16
Joshua Tree, CA
jtmak Online
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Posts: 16
Joshua Tree, CA
1st symptoms came on 1985
Severe low back pain / SI joint pain; felt like my leg was dangling - pain 10# - very difficult rolling over in bed, standing up from sitting, driving - pain less often these days which is maybe due to SI joints being totally fused?
Buttocks pain / Quadracept muscle pain
Radiating Quad and Hamstring pain down my leg
Hx rib pain; back pain, neck pain causing changes in my vision.
Bilateral Uveitis - Anterior and Posterior - Early on warning symptoms include headache, scalp tenderness and pain and when active feels like a toothache in my eye socket. Pain especially bad when in bright light or trying to read/ focus my eyes. I have finally learned to wear sunglasses when indoors when a flareup occurs to keep the iris open or more relaxed. It helps!
When in an active flare up; Fatigue creating nap times and needing more sleep at night but difficult to sleep because of the pain.
Emotionally down;
Weakening grip strength - maybe from arm issues below or just losing strength?

NEW this summer Rt / Lt Shoulder and high (right) arm pain. At first notice, tingling/numbness in my right hand/fingers upon waking. Following symptoms have evolved on my right arm; A pain beyond anything I felt came on - overnight. Have no idea what triggered. Felt like a wave of pain. Pain seemed to regress when I would hold still or hold my breath and keep my arm's elbow tucked under into armpit. Change posture so am hunched over...? Pain was beyond 10# when bicep and/or tricep do their thing - pain felt like the muscle was trying to twist. Deep bone pain in arm. Wrist and elbow joint pain on Right Arm- seems like I can feel pressure within in wist upon waking. Stiff and pain #6. Wrist doesn't appear to swell. Limited range of motion with my right arm/shoulder due to pain or due to lack of use. It's been 5 months since I've limited arm/shoulder use because of pain. Rt Arm/shoulder points of tenderness includes scapula, high right corner of chest and tricep and bicep - 6" down from the shoulder. The pain has been excruciating when the cramp like situation occurs. My right shoulder feels "sick". Very disruptive to sleep, sitting and working. X ray from primary showed nothing. Primary questioned rotator cuff but don't feel like I had done anything to cause a RC issue. This intensity of the pain feels like my pelvic/lower back did when it was inflamed and actively fusing (80's & 90"s)


California, USA
Reoccurring Bilateral Uveitis Dx 1985
Reiters Syndrome Dx 1985
AS Dx 2015
SI joint fused
Re: Spondylitis Symptoms - List Your Symptoms Here [Re: fall_of_moonbeams] #281540
09/28/18 07:51 PM
09/28/18 07:51 PM
Joined: Sep 2018
Posts: 1
Sycamore, IL
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dcalendo Offline
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Joined: Sep 2018
Posts: 1
Sycamore, IL
Knee Pain, Weakness, Instability
Heel Pain
*Trouble walking, have to go very slow. Stairs are tough.
Shoulder Pain
Top of Hands
Top of Feet
Hip Pain
Lower Back Pain
Neck Pain
Dry Eyes
Fatigue
Headaches


Diana, 55yo
Dx - August 2018
Undifferentiated Spondylitis
Currently on Sulfasalazine (4th anti-inflammatory) and Enbrel (1st TNF Blocker)
Re: Spondylitis Symptoms - List Your Symptoms Here [Re: fall_of_moonbeams] #282122
11/23/18 07:09 PM
11/23/18 07:09 PM
Joined: Nov 2018
Posts: 4
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Mystel Offline
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Joined: Nov 2018
Posts: 4
Hi everyone! Just joined, so still figuring things out.

I was diagnosed in the spondyloarthropathies family in Feb of this year, but I think it is turning into AS. I am 28, diagnosed when I was 27 !

I have shoulder pain, feels like my shoulders are always strained
elbow pain
wrist pain,
finger pain/ sausage fingers
hip pain,
leg pain/ leg weakness feels like my legs will give out from under me
knee pain/ swollen knees (have had knee problems since I was 13, RA said this could have been a sign of early Spondy)
ankle pain, super swollen constantly
Achilles pain, and bursitis on both sides.
toes hurt sometimes.
Also lower back pain, and sometimes upper back pain.
Sciatica pain on right side
extreme fatigue/ dizziness (but combined with depression/ anxiety extreme fatigue isn't new to me)
pain sleeping / waking up multiple times a night. Can't remember when I slept through a whole night.
and new are eye floaties

I was just curious as to if it could still be AS as my main symptom isn't constant back pain? I see that a lot of you have similar symptoms as I do, so that does make me more convinced it is AS.

I am in constant pain 24/7 and unfortunately I can't see a RA dr till January again because I moved states. So managing my pain is a nightmare. I can't find anything to relieve it.

Last edited by Mystel; 11/23/18 07:11 PM.
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