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Shingrix side effects--ugh #281482
09/22/18 07:51 PM
09/22/18 07:51 PM
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kglenn Online OP
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My rheumy recommend I get some vaccinations prior to starting immunosuppressants (makes sense). When I had the first Shingrix shot back in March, my arm was quite tender, but I don't recall feeling ill. But yesterday I had my second shot, and wow, by evening I was feeling pretty crummy and today as well. Achey, tired, sore. Ugh.

Any guesses as to whether the difference is due to this being my second shot or if it is because now I am on an immunosuppressant? Just kinda curious. This too shall pass smile

Thanks!


Karen
Female, early 50's, HLA B27+, family history of SpA
Diagnoses: USpA (9/17), limited Scleroderma/Raynaud's phenomenon/Sjogren's syndrome (1/16), stroke (8/15), Factor V Leiden (8/15)
AS symptoms: right heel enthesitis/tendonitis; elbow tendonitis; mild low back/buttocks and hip pain/stiffness; normal MRI
Treatment: Cosentyx; Xarelto; vitamins D3, B12, folate
Primary non-responder to Enbrel
Re: Shingrix side effects--ugh [Re: kglenn] #281483
09/22/18 09:17 PM
09/22/18 09:17 PM
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Winston Offline
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It's just the Shingrix. I've heard lots of people are complaining about the side effects, which are worse than the side effects of the previous shingles vaccine.

Re: Shingrix side effects--ugh [Re: kglenn] #281487
09/23/18 04:43 PM
09/23/18 04:43 PM
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Banana Offline
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I wish I could take that vaccine. Flu symptoms or not. Been on immunesuppressants since 2004 and not willing to stop to get the shots. I have a friend who eye is damaged from shingles and another where it keeps coming back or rather never totally leaves.

I don't think there was a vaccine for it at that time.

Anna


Actema IV once a month (with pre loading for allergic reaction), Cymbalta x1 daily, Arava 20mg daily. Diagnosed with AS in 2004, suffered undiagnosed since 1982.
Re: Shingrix side effects--ugh [Re: kglenn] #281493
09/24/18 02:45 PM
09/24/18 02:45 PM
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kglenn Online OP
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Thanks for the perspective, Anna--I definitely am grateful to be able to get the immunization. Hopefully it will be full effective and I will never have to deal with shingles. Hoping you never will as well.


Karen
Female, early 50's, HLA B27+, family history of SpA
Diagnoses: USpA (9/17), limited Scleroderma/Raynaud's phenomenon/Sjogren's syndrome (1/16), stroke (8/15), Factor V Leiden (8/15)
AS symptoms: right heel enthesitis/tendonitis; elbow tendonitis; mild low back/buttocks and hip pain/stiffness; normal MRI
Treatment: Cosentyx; Xarelto; vitamins D3, B12, folate
Primary non-responder to Enbrel
Re: Shingrix side effects--ugh [Re: Banana] #281497
09/24/18 07:08 PM
09/24/18 07:08 PM
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SouthernMoss Offline
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Originally Posted by Banana
Been on immunesuppressants since 2004 and not willing to stop to get the shots.Anna


Anna, Shingrix is a non-live vaccine and is safe for people on biologics. So you should be able to get it unless you have other issues that prevent it.
https://www.spondylitis.org/About-S...ailable-to-those-on-biologic-medications

My problem is that my insurance doesn't cover Shingrix, and even if it did I would have to be age 60 or over.


Ginny - 57 year old female
Dx with USpA in March 2013; changed to AS in July 2015
Iritis and Scleritis
unicompartmental knee replacements: right-June 2014, left-Aug 2018
MTX, Humira, Cyclobenzaprine, plus Celebrex as needed
Supplements: Folic Acid, Vitamin A, Vitamin D, Calcium, Fish Oil, Culturelle probiotic, Melatonin (as needed)
Re: Shingrix side effects--ugh [Re: kglenn] #281502
09/25/18 09:56 PM
09/25/18 09:56 PM
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Banana Offline
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Good to know, it must be new!!!! I was too young right before I went on biologicals and I wish I would have paid for it. I will go get it soon. Thanks.


Actema IV once a month (with pre loading for allergic reaction), Cymbalta x1 daily, Arava 20mg daily. Diagnosed with AS in 2004, suffered undiagnosed since 1982.
Re: Shingrix side effects--ugh [Re: kglenn] #281503
09/25/18 11:12 PM
09/25/18 11:12 PM
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SouthernMoss Offline
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It is new, and it is supposed to be much more effective than the old one. I'm going to check with my insurance again to see if they've started covering it yet.


Ginny - 57 year old female
Dx with USpA in March 2013; changed to AS in July 2015
Iritis and Scleritis
unicompartmental knee replacements: right-June 2014, left-Aug 2018
MTX, Humira, Cyclobenzaprine, plus Celebrex as needed
Supplements: Folic Acid, Vitamin A, Vitamin D, Calcium, Fish Oil, Culturelle probiotic, Melatonin (as needed)
Re: Shingrix side effects--ugh [Re: kglenn] #281505
09/26/18 02:25 PM
09/26/18 02:25 PM
Joined: Jul 2006
Posts: 6,587
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Banana Offline
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The reason there is a age limit is because the old one was only effective for 20 years.

Good luck,

Anna


Actema IV once a month (with pre loading for allergic reaction), Cymbalta x1 daily, Arava 20mg daily. Diagnosed with AS in 2004, suffered undiagnosed since 1982.
Re: Shingrix side effects--ugh [Re: kglenn] #281744
10/11/18 03:36 PM
10/11/18 03:36 PM
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SouthernMoss Offline
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I just checked with my insurance (Blue Cross) and they now cover Shingrix 100% for people over 50 as part of their wellness program. So I am headed to the pharmacy after work today to get my first shot. Fingers crossed that the side effects aren't too bad for me.


Ginny - 57 year old female
Dx with USpA in March 2013; changed to AS in July 2015
Iritis and Scleritis
unicompartmental knee replacements: right-June 2014, left-Aug 2018
MTX, Humira, Cyclobenzaprine, plus Celebrex as needed
Supplements: Folic Acid, Vitamin A, Vitamin D, Calcium, Fish Oil, Culturelle probiotic, Melatonin (as needed)
Re: Shingrix side effects--ugh [Re: kglenn] #281759
10/12/18 01:39 AM
10/12/18 01:39 AM
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Mary Beth Offline
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Let us know! I plan on getting it in a couple years.


46, diagnosed with AS in early 2005 and on TNF-blockers since then: They have been miracle drugs for me. On Enbrel from spring 2005 to Nov 2008. On Humira from Nov 2008 to present. Baclofen and OTC anti-inflammatories as needed.

"You must be the change you wish to see in the world." --Gandhi
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