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Re: Radio Frequency Ablation
[Re: TexasGirl]
#281983
11/07/18 05:12 PM
11/07/18 05:12 PM
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Joined: May 2010
Posts: 1,488 Whidbey Island WA
WhiteCell
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Registered Visitor
Joined: May 2010
Posts: 1,488
Whidbey Island WA
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I think that accurate mapping of your nerve pathways would be key for the proposed treatment to be helpful.
Starting at 18 yrs old > Reiter's Syndrome. Diagnosed 2001 Ank Spon. Started Remicade 2002 - 5mg/kg every 7 weeks.
Right Eye Glaucoma- Trabeculectomy/lens replacement 2006. Right eye DSEK Cornea Transplant 2009. Right eye Ahmed Shunt 2016. Right eye DSEK Cornea Transplant 2016. Supra Ventricular Tachycardia. 2004. Cured by RF ablation 2008.
ICU RN - Seattle, WA
~Grasp The Challenge and Succeed~
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Re: Radio Frequency Ablation
[Re: TexasGirl]
#282004
11/08/18 05:58 AM
11/08/18 05:58 AM
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Joined: Apr 2018
Posts: 14
Brody96
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Joined: Apr 2018
Posts: 14
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Will you have an appointment where they numb your nerves first to tell if you’re a candidate for ablation? I just had mine numbed last week and I got zero relief. I’m assuming this means they didn’t hit the nerves that cause my pain. My grandfather just had his first actual ablation and he has been miserable since, his pain has actually increased dramatically. I’m hoping that it’s just related to the steroids they injected into the joints at the same time. I’m very, very nervous to have the actual ablation dome now though. Let me know how yours goes and good luck!
22yr old female. Ankylosing Spondylitis and Lupus. 7 hip surgeries and counting Dog mom of 3 rescues
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Re: Radio Frequency Ablation
[Re: Brody96]
#282007
11/08/18 03:14 PM
11/08/18 03:14 PM
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Joined: Mar 2013
Posts: 2,091 MS
SouthernMoss
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Registered Visitor
Joined: Mar 2013
Posts: 2,091
MS
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My grandfather just had his first actual ablation and he has been miserable since, his pain has actually increased dramatically. I have a co-worker who just had an ablation done Tuesday (for different spinal issues, not AS), and she told me that her doctor said her pain would be worse for the first few days.
Ginny - 58 year old female Dx with USpA in March 2013; changed to AS in July 2015 Iritis and Scleritis, both currently in remission unicompartmental knee replacements: right-June 2014, left-Aug 2018 MTX, Humira, Cyclobenzaprine, plus Celebrex as needed Supplements: Folic Acid, Vitamin A, Vitamin D, Calcium, Fish Oil, Culturelle probiotic, Melatonin (as needed)
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Re: Radio Frequency Ablation
[Re: TexasGirl]
#282298
12/28/18 06:31 PM
12/28/18 06:31 PM
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Joined: Feb 2003
Posts: 2,849 Huntington Beach, CA
CB in CA
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Joined: Feb 2003
Posts: 2,849
Huntington Beach, CA
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I would take my Grandmother in for her ablations on her L4/L5. She had sciatica burning, tingling pain from her hip area down to her foot. The Dr would numb the area first and while awake she would insert a "probe" and touch her nerves which were shown on a large visual screen. When she would say "ouch" the Dr knew where and what nerve was the issue. Then, she was put into a twilight sleep and the nerve was burned and she was given a steroid injection as well. As her health declined, the Dr. did it without the twilight sleep. It was a bit more traumatic on her but the process simpler to do without doing the whole outpatient surgery process. She always felt good the first 3 days due to the steroid injection. After that, if the nerve was missed or the wrong nerve burned, her pain would slowly come back. When the right nerve was burned, she would have pain relief for about 9-12 months. She did this for about 10 years and the results, if the right nerve was burned lasted 6x longer than just an steroid injection alone. For her, it was a life changer! Hope this helps.
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