I don't have an official AS dx yet, but it seems to match my symptoms best. I first went to the rheumatologist in 2015 for fatigue and joint pain. This year I went back because things have gotten significantly worse. I have sever back pain especially from about 2am-10am. I often sleep sitting up in a chair and need a hot shower to get moving in the morning. I also have joint pain in my hips, knees, ankels and shoulder. I've also had inflammatory eye issues in the past which was eventually dx'ed as blepharitis. In addition to the issues I have narcolepsy, epilepsy, hearing loss, vision deterioration, Raynaud's, diabetes type 2. I'm also a recovering addict. I'm on piroxicam (feldene), flexirl, norflex, and cymbalta. Finally starting to feel well enough to do some things around the house
A month ago it took all of my energy to get out of a chair and walk across the room. I'm 28. The rheumatologist has diagnosed as undifferentiated connective tissue disorder for now although he doesn't like that term. He has referred me to a geneticist and physical therapy which I start next week.