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Re: Update to my health. [Re: bigtar] #282457
01/18/19 06:55 PM
01/18/19 06:55 PM
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Posts: 119
Iowa City, IA USA
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I was stationed at Soesterberg Air Base (Camp New Amsterdam) but lived in Soest from 1973-1975. It was a great experience for me. As an American I would sometimes apologize for our presence but was always told how the presence was welcomed. I returned once, probably about 2000 and the presence was still there.

Sounds to me like you would meet the criteria for AS or an associated disease. This web site has information about a new criteria for AS and also explains the the various types of Spondyloarthritis (SpA). I'm always reluctant to make any recommendations because my experience wasn't textbook. I was diagnosed long ago with reactive arthritis on the basis of uveitis, back pain and being HLA-B27 positive. There could have been an enteric trigger because of severe nausea, vomiting and diarrhea at the time I presented. Those symptoms were discounted and attributed to all the ibuprofen I was taking. There was a question of a chlamydia infection because of exposure but that was never confirmed and was only treated with antibiotics just in case. . The exposure was 5 years prior to the onset of back pain so I have doubts that had anything to do with it.

There are many people who have more knowledge about AS than me. I am relatively new to the forum. I posted a brief history and based on the responses, I got the impression that I likely have AS and not reactive arthritis. Practically everyone will stress the benefits of a TNF inhibitor to prevent long term damage even if there is no damage currently present on x-ray. In my case, it has already been long term and damage has already occured but not the typical fusion. I am told that fusion is no longer part of the criteria and the purpose of early treatment is to prevent fusion from ever occurring.

I would suggest starting a new thread and hopefully you will get more information.



Re: Update to my health. [Re: Lacan] #282458
01/18/19 08:04 PM
01/18/19 08:04 PM
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Originally Posted by Lacan
Could it be that NSAIDs can cause long bouts of gastritis, up to 6 months after stopping?


5 month after starting NS diet and elimination of sugar + sulfasalazine gastritis symphtoms stopped.
Arcoxia did nothing for me. 90 mg.
Beer creates stomach noise


diagnosed with AS April 2018, starting with cervical pain/stiffness; Aug 2018 enthesitis/bursitis left Achilles
diagnosed with iridociclitis Nov 2017 (4 flares so far) - bilterally DES,PVD
Eosinophilic Gastritis
Signs of inflammations/erosions on MRI`s for axial and Achilles/calcaneus + bursitis
Naproxen (occasionally), Sulfasalazine 3000 mg per day
Supplements: vit A&D, reishi mushrooms, fish oil/probiotic/ Mediterranean NSD
plenty of swimming
Re: Update to my health. [Re: achala] #282461
01/18/19 09:24 PM
01/18/19 09:24 PM
Joined: May 2018
Posts: 119
Iowa City, IA USA
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Originally Posted by achala
Beer creates stomach noise


I can't imagine Heineken being any problem ... stay clear of American beer though.



Re: Update to my health. [Re: bigtar] #282462
01/18/19 10:36 PM
01/18/19 10:36 PM
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That makes me think I shall try To rub Amol tonic into my Achilles. Thanks DadCue!!

Last edited by achala; 01/18/19 10:42 PM.

diagnosed with AS April 2018, starting with cervical pain/stiffness; Aug 2018 enthesitis/bursitis left Achilles
diagnosed with iridociclitis Nov 2017 (4 flares so far) - bilterally DES,PVD
Eosinophilic Gastritis
Signs of inflammations/erosions on MRI`s for axial and Achilles/calcaneus + bursitis
Naproxen (occasionally), Sulfasalazine 3000 mg per day
Supplements: vit A&D, reishi mushrooms, fish oil/probiotic/ Mediterranean NSD
plenty of swimming
Re: Update to my health. [Re: bigtar] #282463
01/19/19 06:33 PM
01/19/19 06:33 PM
Joined: Jan 2019
Posts: 10
Netherlands
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Lacan Online
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I quit alcohol about 9 months ago, prior to that I preferred the stronger Belgian beers myself. Duvel, La Chouffe, Vedett etc smile


Medication: Arcoxia 60mg as needed
No official dx yet (no visible fusion of SI joints on x-rays)
Re: Update to my health. [Re: bigtar] #282475
01/20/19 09:42 AM
01/20/19 09:42 AM
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That’s why I smiled when we read that bit on Heineken wink
Though duvel, la chouffe are quite popular Belgian brands. There is a eco shop in Breda where I used to get the Belgian craft beers limited editions.
But nothing compared to the craft beers I had in Chicago;) which tasted a bit like pines in best case scenario;)


diagnosed with AS April 2018, starting with cervical pain/stiffness; Aug 2018 enthesitis/bursitis left Achilles
diagnosed with iridociclitis Nov 2017 (4 flares so far) - bilterally DES,PVD
Eosinophilic Gastritis
Signs of inflammations/erosions on MRI`s for axial and Achilles/calcaneus + bursitis
Naproxen (occasionally), Sulfasalazine 3000 mg per day
Supplements: vit A&D, reishi mushrooms, fish oil/probiotic/ Mediterranean NSD
plenty of swimming
Re: Update to my health. [Re: Lacan] #282476
01/20/19 05:59 PM
01/20/19 05:59 PM
Joined: May 2018
Posts: 119
Iowa City, IA USA
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Originally Posted by Lacan
I quit alcohol about 9 months ago


I quit alcohol about 900 months ago. Good first step. I do indulge whenever in Europe which isn't very often.



Re: Update to my health. [Re: bigtar] #282509
01/29/19 01:52 PM
01/29/19 01:52 PM
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Lacan Online
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I had the bladder ultrasound last week. Everything looked fine. Also did a bladder test and I can empty it without a problem. So the diagnosis is chronic pelvic pain syndrome (AKA chronic non-bacterial prostatitis). The urologist referred me to a physical therapist who specializes in pelvic pain. He said the chronic pain may be caused by earlier inflammation.
I must say I'm quite relieved with this result. I've been stressing out a lot lately about my health. I'm also no sleeping well anymore, waking up with back pain or not feeling well rested and stiff in the morning. These chronic health issues can be really challenging!

Last edited by Lacan; 01/29/19 01:52 PM.

Medication: Arcoxia 60mg as needed
No official dx yet (no visible fusion of SI joints on x-rays)
Re: Update to my health. [Re: bigtar] #282512
01/30/19 01:24 PM
01/30/19 01:24 PM
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The truth is you might have undetectable infection slow growing not culturally. Chronic pelvic pain is a bs term for them to say we dony know live with it.

Check your private message .

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