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Ok guys my bad... #282785
03/20/19 01:18 AM
03/20/19 01:18 AM
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sdot Offline OP
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I'll stay away till this prednisone is done. Unfortunately, between the drug itself, the 2 hours of nightly sleep, and this horrible disease, it seems to always bring out my better half.

Re: Ok guys my bad... [Re: sdot] #282786
03/20/19 03:33 PM
03/20/19 03:33 PM
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SouthernMoss Online
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I'm sorry you are having a hard time. frown


Ginny - 58 year old female
Dx with USpA in March 2013; changed to AS in July 2015
Iritis and Scleritis, both currently in remission
unicompartmental knee replacements: right-June 2014, left-Aug 2018
MTX, Humira, Cyclobenzaprine, plus Celebrex as needed
Supplements: Folic Acid, Vitamin A, Vitamin D, Calcium, Fish Oil, Culturelle probiotic, Melatonin (as needed)
Re: Ok guys my bad... [Re: sdot] #282789
03/20/19 05:00 PM
03/20/19 05:00 PM
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Toledo, OH
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This condition, and sometimes its treatments, can be rough on the psyche and we all react differently.

Me? I ended up on a pile in the floor in a heap of sobs on more than one occasion last year until I got things under control.

Re: Ok guys my bad... [Re: sdot] #282794
03/20/19 09:56 PM
03/20/19 09:56 PM
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Ok. I had to come back.

I have a love hate relationship with prednisone. I enjoy the manic feeling mixed with a little fight club. Hate the insomnia.

I think I told off a good dozen people this week, but got a lot of work accomplished and made some new friends.

Re: Ok guys my bad... [Re: sdot] #282795
03/20/19 09:56 PM
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Made some new enimies too I guess.

Re: Ok guys my bad... [Re: sdot] #282802
03/23/19 12:26 PM
03/23/19 12:26 PM
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hahaha. Always got the house cleaned when on pred. Sorry, hope you are getting sleep now.

Anna


Actema IV once a month (with pre loading for allergic reaction), Cymbalta x1 daily, Arava 20mg daily. Diagnosed with AS in 2004, suffered undiagnosed since 1982.
Re: Ok guys my bad... [Re: sdot] #282811
03/25/19 03:57 PM
03/25/19 03:57 PM
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Pred is fun. It really does nothing for me but spins me out into a world of crazy. Sometimes crazy is good..

Re: Ok guys my bad... [Re: sdot] #282817
03/27/19 12:55 AM
03/27/19 12:55 AM
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Sorry bro hope you feel better. How did you notice it first? ER knew right away? Because most ER doc have not seen case of Spondy.

Re: Ok guys my bad... [Re: sdot] #282903
04/15/19 01:13 PM
04/15/19 01:13 PM
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ER? Notice what? I asked my Rheum for pred as I was hoping to move to a diff biologic and needed a little something in between, but realistically I knew that it wasn't going to work as nothing works for the pain, so I just needed it to help switch into my more productive and fun loving manic side.

You have to realize, the only people who care about us, are ourselves and whoever can make a profit from disease and disease control. That is it.


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