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Anyone with Kidney Complications? #282327
01/04/19 01:02 AM
01/04/19 01:02 AM
Joined: Nov 2009
Posts: 304
Washington, D.C.
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ljohnsy Offline OP
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ljohnsy  Offline OP
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Washington, D.C.
This is my first post in a long time. I was diagnosed with AS 10 years ago. For the past three years or so, I have had microscopic blood in my urine. One nephrologist I saw after some further testing suspected IgA Nephropathy but another I saw recently wasn't so sure. Does anyone else have kidney issues along with spondyloarthritis?


Laura -- age 40, diagnosed with AS 11/09. Mom of 2. Currently taking Humira.
Re: Anyone with Kidney Complications? [Re: ljohnsy] #282431
01/17/19 01:18 AM
01/17/19 01:18 AM
Joined: Oct 2018
Posts: 9
Williamston, MI
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SadieP1989 Offline
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Williamston, MI
I've had kidney issues (infections, stones when I was a kid and one kidney infection as an adult) and lately microscopic blood in my urine also. I also had chronic UTI's as a kid. I don't know if anything was related though. I didn't think to ask urologist. They were going to do a cystoscopy a few months ago but decided against it. Not sure if this helps.


💞Every day is a gift 💞
Re: Anyone with Kidney Complications? [Re: ljohnsy] #282828
03/28/19 12:25 AM
03/28/19 12:25 AM
Joined: Aug 2006
Posts: 7
Alabama
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lauriedarlin Offline
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Alabama
I have had microscopic blood in my urine for over 10 years. In the last 5 years I started having increasing protein in my urine as well. I had several bouts with kidney stones as well. I now take a pill to reduce the pressure in my kidneys, which slows down the protein that passes in my urine. I have always felt it is related to the A.S., but doctors won’t really say for sure, because they really don’t know.

Re: Anyone with Kidney Complications? [Re: ljohnsy] #282829
03/28/19 12:35 AM
03/28/19 12:35 AM
Joined: May 2010
Posts: 1,514
Whidbey Island WA
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WhiteCell Offline
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WhiteCell  Offline
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Whidbey Island WA
one of my earliest symptoms was urethritis. i also had 2 bouts with kidney stones (none in the last 30 years).


Starting at 18 yrs old; 1971 Reiter's Syndrome. Diagnosed AS 2001.
Started Remicade 2002 - 5mg/kg every 7 weeks.

Right Eye Glaucoma- Trabeculectomy/lens replacement 2006.
Right eye DSEK Cornea Transplant 2009.
Right eye Ahmed Shunt 2016.
Right eye DSEK Cornea Transplant 2016.
Supra Ventricular Tachycardia. 2004. Cured by Radio Frequency Ablation 2008.

ICU RN - Seattle, WA

~Grasp The Challenge and Succeed~
Re: Anyone with Kidney Complications? [Re: ljohnsy] #282983
04/30/19 07:22 PM
04/30/19 07:22 PM
Joined: Mar 2019
Posts: 1
Texas
Agentb Offline
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Texas
Diagnosed with AS last year after 10 years of pain.

I developed blood in the urine, both visible and microscopic, in January 2019 with no other symptoms. I was sent to a urologist. Urologist ordered a Cat-Scan, which revealed small kidney stones and a small kidney cyst. She also performed a cystography, which proved negative for bladder issues.

I never felt excruciating pain I've heard people with kidney stones have. And, I'm still bleeding four months later. My rheumatologist says it's not the Humira. I'm next being sent to a gastroenterologist/nephrologist because that Cat-Scan revealed a hidden mass/neoplasm on my duodenum.

Meanwhile, no one knows if the bleeding is caused by kidney stones, which apparently are not being passed, or some other random reason.


Female, diagnosed in 2018 after years of pain.
Humira

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