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Invitation to participate in research #283192
06/04/19 11:11 AM
06/04/19 11:11 AM
Joined: May 2019
Posts: 1
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CarinaAssuncao Offline OP
First time visitor
CarinaAssuncao  Offline OP
First time visitor
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Joined: May 2019
Posts: 1
Hello everyone,

I'm a PhD student doing research on axial spondyloarthritis, video games, and exercise.

I'd be really grateful if you could participate in my study as it would help my understanding of axSpA and how you try to alleviate symptoms.
The questionnaire is completely anonymous; Information about how I will treat the data is displayed at the start of the questionnaire 🙂

Here's the link: https://forms.gle/5vvM7Tmoum2y6FNk7

Let me know if I can clarify anything. I'm no expert in the condition but I've been reading about it since last October to familiarise myself with what you can and can't do in terms of exercise. I understand 'exercise' can mean very different things to a lot of you so please contribute with your experience and I will worry about interpreting the data. There's a lot of open-ended questions so feel free to talk about your specific experience.

Thank you!

Re: Invitation to participate in research [Re: CarinaAssuncao] #283200
06/04/19 06:05 PM
06/04/19 06:05 PM
Joined: Jun 2012
Posts: 604
Los Angeles, CA
RAHMBA Offline
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RAHMBA  Offline
Registered Visitor

Joined: Jun 2012
Posts: 604
Los Angeles, CA
Thank you for your interest in spondyloarthritis.


AS, U C, Iritis, migraines. HLA-B27neg. Yoga (instructor) & spin. No meds at this time. Dx 1989. SAA member/donor since 1993. All my posts are personal opinion/feelings and do not represent the SAA. Help find a cure & support others by donating to the SAA.
Re: Invitation to participate in research [Re: CarinaAssuncao] #283214
06/06/19 02:35 PM
06/06/19 02:35 PM
Joined: Aug 2015
Posts: 633
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worldofme Offline
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worldofme  Offline
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Joined: Aug 2015
Posts: 633
Done

Re: Invitation to participate in research [Re: CarinaAssuncao] #283234
06/11/19 01:12 PM
06/11/19 01:12 PM
Joined: Mar 2019
Posts: 1
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Alice10 Offline
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Alice10  Offline
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Joined: Mar 2019
Posts: 1
Hello Carina,

Thank you very much for doing some research on our disease. It's always nice to see that some researchers are trying to improve our life conditions. It gives us some hope.

Best of luck with your PhD :-)


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