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#232867 - 05/07/12 11:09 AM Re: Patient-To-Patient Recommended Rheumatologist Directory [Re: norskegirl74]
Saurav Offline
Registered Visitor

Registered: 05/07/12
Posts: 4
Can I Contactt Her Over The Internet..?? If yes Then Plzz Tell Me How to Contact her.....

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#232868 - 05/07/12 11:11 AM Re: Patient-To-Patient Recommended Rheumatologist Directory [Re: mkm]
Saurav Offline
Registered Visitor

Registered: 05/07/12
Posts: 4
Can A Person Havin Spondylitis ankylosing for over 40 years be cured..??

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#232871 - 05/07/12 12:14 PM Re: Patient-To-Patient Recommended Rheumatologist Directory [Re: Saurav]
Shirley Offline
Registered Visitor

Registered: 10/24/11
Posts: 971
Loc: Wellington, New Zealand
There is no unfortunately no cure for AS. It can go into remission and that seems to be more likely early on, but treatment can still help with long standing disease.
_________________________
Shirley
Peripheral and axial AS diagnosed October 2011 aged 50, more than 15 years after the symptoms started. Also PCOS, GERD/oesophagitis/dysphagia, IBS, asthma,chronic rhinitis. Taking enbrel, methotrexate, folic acid, omeprazole, vitamin D, metformin, steroid inhaler and eating low starch/low GI.

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#232904 - 05/07/12 06:51 PM Re: Patient-To-Patient Recommended Rheumatologist Directory [Re: Shirley]
smittygirl50 Offline
Registered Visitor

Registered: 06/20/09
Posts: 38
Loc: New York
Dr. Yaqoot Khan
222 E Main Street
Smithtown, NY

Best Rheumy I've had since dx in 04'. Kind, compassionate, listens! Very knowledgeable.
_________________________
S. Elizabeth

Dx AS in 04' HLA-B27 positive, Chronic Uveitis, Raynauds.
Humira wkly, Mtx inject wkly, Soma, Hydrocodone. Tried Remicade, allergic reactions so back to Humira

























Humira wkly, MX wkly, Folic Acid, Navanac daily, Vicoprophen PRN, Flexeril, recently failed Remicade, back on Humira wkly.

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#242314 - 10/17/12 07:39 PM Re: Patient-To-Patient Recommended Rheumatologist Directory [Re: ]
Kim30 Offline
Registered Visitor

Registered: 10/11/12
Posts: 5
Stephen Paget,MD New York,New York
Hospital for Special Surgery.

He is kind and compassionate.

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#243039 - 10/29/12 08:14 PM Re: Patient-To-Patient Recommended Rheumatologist Directory [Re: ]
babygirl536 Offline
Registered Visitor

Registered: 05/03/12
Posts: 152
Loc: san diego, CA
Look up Dr. Thomas Adamsom III
If you want to check him out:
http://www.sharp.com/san-diego-doctors/dr-thomas-adamson-iii-53271
_________________________
Female, 29 - loving wife & mommy to one <3
Finally diagnosed in Oct 2011
HLAB27+
Remicade - Oct 2012
Fibromyalgia - June 2013
Tendonitis - February 2014
Humira: Failed / NSAIDS: Failed / Steroid Epidurals: Failed, caused more pain / Physical Therapy, Massage Therapy, and Chiropractics: Failed / gabapentin: Failed

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#243196 - 11/01/12 02:23 PM Re: Patient-To-Patient Recommended Rheumatologist Directory [Re: barbara66]
Gidget101 Offline
Registered Visitor

Registered: 11/01/12
Posts: 8
Loc: Georgia, USA
Barbara,
AS is passed from mother to son. The most definitive blood test for you both is HLA-B27. 90% positive present with the disease.
It would be interesting if you think back to whether your father had back pain...
I acquired AS @ age 26 (klebsilla bacteria + genetic marker) *works pretty much like being born with a light switch & the environmental factor flips it on.
My 10 yo son complained of back pain while playing on the playground. I had x-rays & bloodwork done & he was diagnosed w/AS (HLA-B27+)
It is a shame your not near the best rheumatologist I've met in 26 years. Unfortunately, he is James Mossell in Tifton, Ga.
Good luck to you & your son.
P.S. I kept his AS in remission thru his teens with the antibiotic Keflex twice a day.
_________________________
Married to a wonderful man 23yrs, w/ a terrific son diagnosed with AS.

Acquired AS 28yrs ago. Severe Fibromyalgia, Migraines, Multiple system involvement: heart, remaining kidney (no nsaid's allowed), spine (+ spinal stenosis), neck, knees (Rcd total Rht knee replacement 7/13, Lft scheduled for 9/13), thyroid, etc... Medically retired from US Military.
Now recently diagnosed w/ Primary Hypogammaglobulemia to boot!

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#244382 - 11/23/12 10:06 PM Re: Patient-To-Patient Recommended Rheumatologist Directory [Re: Gidget101]
NotMeToo Offline
Registered Visitor

Registered: 07/12/04
Posts: 1107
Loc: United States
Originally Posted By: Gidget101
AS is passed from mother to son. The most definitive blood test for you both is HLA-B27. 90% positive present with the disease.


Just to clarify:

90 to 95% of Ankylosing Spondylitis patients are HLA-b27+, but less then 1% of HLA-b27+ individuals develop AS.

HLA-b27 is a fairly normal gene shared by approximately 8% of the US population. Very few of those people develop AS.

The ratio of HLA-b27 positivity is lower in patients with related Spondyloarthropathies (Undifferentiated Spondylitis, Psoriatic Spondylitis, Reiter's Syndrome).

Ankylosing Spondylitis is largely a genetic disease, but it is not necessarily passed from mother to son. A child of either sex can inherit the genetic predisposition for the disease from either parent - or from a mixture of genes from both parents.
_________________________
Not Me Too!

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#264164 - 02/09/14 07:28 AM Re: Patient-To-Patient Recommended Rheumatologist Directory [Re: ]
lily401 Offline
Registered Visitor

Registered: 02/05/14
Posts: 15
Loc: Pittsburgh, PA
Dr. DeLo Monroeville, PA
_________________________
Liz..47 newly diagnosed with Spondyloarthis. Started Sulfasazine 2/4/14.

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#264165 - 02/09/14 07:30 AM Re: Patient-To-Patient Recommended Rheumatologist Directory [Re: ]
lily401 Offline
Registered Visitor

Registered: 02/05/14
Posts: 15
Loc: Pittsburgh, PA
Dr. DeLo Monroeville, PA
_________________________
Liz..47 newly diagnosed with Spondyloarthis. Started Sulfasazine 2/4/14.

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