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#264478 - 02/24/14 05:55 PM Re: Patient-To-Patient Recommended Rheumatologist Directory [Re: ]
Sean O Offline
Registered Visitor

Registered: 09/27/07
Posts: 248
Loc: Toronto
Dr Julie Kovacs
Toronto, Ontario, Canada
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Male, early 50s, Dx AS+ 1991, HLA B27+, Tylenol 3 PRN for flares. Off NSAIDs due to stomach issues. Considering a biologic. SI and thoracic involvement and costochondritis. Many bouts of uveitis. Small bowel issues, anemia.

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#266156 - 05/02/14 02:49 PM Re: Patient-To-Patient Recommended Rheumatologist Directory [Re: ]
ElinAslanyan Offline
SAA Programs Manager & Moderator
Registered Visitor

Registered: 05/07/08
Posts: 85
Thank you very much for these! I'll be updating the directory soon and will include your recommendations (we do check first to see if they are board certified)
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#269933 - 01/12/15 04:29 AM Re: Patient-To-Patient Recommended Rheumatologist Directory [Re: ]
Nanee Offline
Registered Visitor

Registered: 11/17/14
Posts: 10
Any suggestions on a great rheumy, that REALLY CARES , in the New Orleans, La. Area????

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#270724 - 03/21/15 07:11 PM Re: Patient-To-Patient Recommended Rheumatologist Directory [Re: ]
StrongerThanLife Offline
Registered Visitor

Registered: 03/19/15
Posts: 3
Loc: Milwaukee, WI
Dr. Jonathon Kushi at Rheumatic Disease Center in Milwaukee WI. AMAZING!!
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Diagnosed with Ulcerative Colitis (age 4), total Colectomy 1991
Diagnosed with AS 2003 (age 19)
Past Tx: Humira (2004) and Enbrel (2004), developed cellulitis from both. Remicade (2004-2014), developed drug induced lupus. Sulfasalazine (2014-2015), not controlled and developed bruising and pruritis at higher doses.
Current Tx: massage, pain meds PRN, cortisone injections into SI joints PRN
Other: hx of multiple pleural effusions, chronic pleurisy, hx of DVT right arm, chronic migraines, PFO

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#273851 - 04/02/16 01:27 PM Re: Patient-To-Patient Recommended Rheumatologist Directory [Re: ]
nowIknow Offline
Registered Visitor

Registered: 03/30/16
Posts: 58
Loc: Nebraska
Anyone know of a good rheumatalogist in Nebraska or there abouts? One that knows about AS?
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Yet waiting and pressing in for diagnosis.

Thanks for listening and for your caring support.

Laughter is the best medicine after all.

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Moderator:  ElinAslanyan