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#264478 - 02/24/14 08:55 PM Re: Patient-To-Patient Recommended Rheumatologist Directory [Re: ]
Sean O Offline
Registered Visitor

Registered: 09/27/07
Posts: 258
Loc: Toronto
Dr Julie Kovacs
Toronto, Ontario, Canada
Male, early 50s, Dx AS+ 1991, HLA B27+, Tylenol 3 PRN for flares. Off NSAIDs due to stomach issues. Considering a biologic. SI and thoracic involvement and costochondritis. Many bouts of uveitis. Small bowel issues, anemia.

#266156 - 05/02/14 05:49 PM Re: Patient-To-Patient Recommended Rheumatologist Directory [Re: ]
ElinAslanyan Offline
SAA Programs Manager & Moderator
Registered Visitor

Registered: 05/07/08
Posts: 85
Thank you very much for these! I'll be updating the directory soon and will include your recommendations (we do check first to see if they are board certified)

#269933 - 01/12/15 07:29 AM Re: Patient-To-Patient Recommended Rheumatologist Directory [Re: ]
Nanee Offline
Registered Visitor

Registered: 11/17/14
Posts: 10
Any suggestions on a great rheumy, that REALLY CARES , in the New Orleans, La. Area????

#270724 - 03/21/15 10:11 PM Re: Patient-To-Patient Recommended Rheumatologist Directory [Re: ]
StrongerThanLife Offline
Registered Visitor

Registered: 03/19/15
Posts: 3
Loc: Milwaukee, WI
Dr. Jonathon Kushi at Rheumatic Disease Center in Milwaukee WI. AMAZING!!
Diagnosed with Ulcerative Colitis (age 4), total Colectomy 1991
Diagnosed with AS 2003 (age 19)
Past Tx: Humira (2004) and Enbrel (2004), developed cellulitis from both. Remicade (2004-2014), developed drug induced lupus. Sulfasalazine (2014-2015), not controlled and developed bruising and pruritis at higher doses.
Current Tx: massage, pain meds PRN, cortisone injections into SI joints PRN
Other: hx of multiple pleural effusions, chronic pleurisy, hx of DVT right arm, chronic migraines, PFO

#273851 - 04/02/16 04:27 PM Re: Patient-To-Patient Recommended Rheumatologist Directory [Re: ]
nowIknow Offline
Registered Visitor

Registered: 03/30/16
Posts: 58
Loc: Nebraska
Anyone know of a good rheumatalogist in Nebraska or there abouts? One that knows about AS?
Yet waiting and pressing in for diagnosis.

Thanks for listening and for your caring support.

Laughter is the best medicine after all.

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Moderator:  ElinAslanyan