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#264478 - 02/25/14 01:55 AM Re: Patient-To-Patient Recommended Rheumatologist Directory [Re: ]  
Joined: Sep 2007
Posts: 268
Sean O Offline
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Sean O  Offline
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Joined: Sep 2007
Posts: 268
Toronto
Dr Julie Kovacs
Toronto, Ontario, Canada


Male, early 50s, Dx AS+ 1991, HLA B27+, Tylenol 3 PRN for flares. Off NSAIDs due to stomach issues. Considering a biologic. SI and thoracic involvement and costochondritis. Many bouts of uveitis. Small bowel issues, anemia.
#266156 - 05/02/14 09:49 PM Re: Patient-To-Patient Recommended Rheumatologist Directory [Re: ]  
Joined: May 2008
Posts: 89
ElinAslanyan Offline
SAA Programs Manager & Moderator
ElinAslanyan  Offline
SAA Programs Manager & Moderator
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Joined: May 2008
Posts: 89
Thank you very much for these! I'll be updating the directory soon and will include your recommendations (we do check first to see if they are board certified)


#269933 - 01/12/15 12:29 PM Re: Patient-To-Patient Recommended Rheumatologist Directory [Re: ]  
Joined: Nov 2014
Posts: 10
Nanee Offline
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Nanee  Offline
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Joined: Nov 2014
Posts: 10
Any suggestions on a great rheumy, that REALLY CARES , in the New Orleans, La. Area????

#270724 - 03/22/15 02:11 AM Re: Patient-To-Patient Recommended Rheumatologist Directory [Re: ]  
Joined: Mar 2015
Posts: 3
StrongerThanLife Offline
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StrongerThanLife  Offline
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Joined: Mar 2015
Posts: 3
Milwaukee, WI
Dr. Jonathon Kushi at Rheumatic Disease Center in Milwaukee WI. AMAZING!!


Diagnosed with Ulcerative Colitis (age 4), total Colectomy 1991
Diagnosed with AS 2003 (age 19)
Past Tx: Humira (2004) and Enbrel (2004), developed cellulitis from both. Remicade (2004-2014), developed drug induced lupus. Sulfasalazine (2014-2015), not controlled and developed bruising and pruritis at higher doses.
Current Tx: massage, pain meds PRN, cortisone injections into SI joints PRN
Other: hx of multiple pleural effusions, chronic pleurisy, hx of DVT right arm, chronic migraines, PFO
#273851 - 04/02/16 08:27 PM Re: Patient-To-Patient Recommended Rheumatologist Directory [Re: ]  
Joined: Mar 2016
Posts: 58
nowIknow Offline
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nowIknow  Offline
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Joined: Mar 2016
Posts: 58
Nebraska
Anyone know of a good rheumatalogist in Nebraska or there abouts? One that knows about AS?


Yet waiting and pressing in for diagnosis.

Thanks for listening and for your caring support.

Laughter is the best medicine after all.
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