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Patient-To-Patient Recommended Rheumatologist Directory #87504
07/18/07 02:07 AM
07/18/07 02:07 AM

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Remember: Our rheumatologist directory is free for all. We are currently in the process of updating it with new information [EDITED: May 29, 2018]

Rheumatologist Directory - Click here

Last edited by cjrodri23; 08/23/18 10:19 PM.
Re: Patient-To-Patient Recommended Rheumatologist Directory #87505
07/30/07 12:54 PM
07/30/07 12:54 PM
Joined: Jul 2007
Posts: 88
Garrison, NY
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lynnie Offline
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Garrison, NY
Dr. Frank Foto, Ossining, NY

Re: Patient-To-Patient Recommended Rheumatologist Directory #87506
11/12/07 11:28 PM
11/12/07 11:28 PM
Joined: Apr 2007
Posts: 151
So Cal
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So Cal
Dr. Mariko Ishimori at Cedars Sinai Medical Center. She is a colleague of Dr. Michael Weissman. She is very caring, empathetic and knowledgeable about AS....

Re: Patient-To-Patient Recommended Rheumatologist Directory #87507
11/15/07 09:55 PM
11/15/07 09:55 PM
Joined: Nov 2007
Posts: 246
Seattle, Washington
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Seattle, Washington
Dr. Ahmad at St. Joseph Medical Clinic in Tacoma, WA. She is great...she listens, cares about how you are doing and feeling, and she explains things so that you can understand if you seem confused.

Re: Patient-To-Patient Recommended Rheumatologist Directory #87508
12/23/07 12:20 AM
12/23/07 12:20 AM
Joined: Dec 2007
Posts: 1
Pineville, La
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bayouwaterdog Offline
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Pineville, La
Help...need a good Dr in Alexandria Louisiana, Lafayette, Shreveport, or Monroe.

Re: Patient-To-Patient Recommended Rheumatologist Directory #87509
12/23/07 07:05 PM
12/23/07 07:05 PM
Joined: Dec 2007
Posts: 161
Florida
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Florida
I would like to recommend Dr Amarilis Torres,Rheumatolgy. She is a collegue of Dr David Sikes. She is located in Florida Medical clinic,Zephyrhills,FL 33541 phone(813) 782-1234

She is very knowledgeable,compassionate and easy to talk to.




I'm just a girl in the world...
(my list of illnesses looks like a shopping list and my list of symptoms could fill a book)
Re: Patient-To-Patient Recommended Rheumatologist Directory #87510
12/29/07 01:10 AM
12/29/07 01:10 AM
Joined: Dec 2007
Posts: 26
Houston, TX
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Houston, TX
...


~ You can't break a broken girl, she has multicoloured wings like a butterfly.
Re: Patient-To-Patient Recommended Rheumatologist Directory #87511
12/29/07 01:11 AM
12/29/07 01:11 AM
Joined: Dec 2007
Posts: 26
Houston, TX
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rainbowfrost Offline
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Houston, TX
Quote:
Originally posted by rainbowfrost:
As a patient I believe Dr. Jones is Awesome!

Dr. Holly Jones of Houston Arthritis Associates
7515 Main Street Suite 670
Houston, TX 77030
713-795-0500

Working in a field that interacts with medical staff daily and now having to be a patient (having been through the referral mill - GP, Gen Ortho, Ortho Specialist, Psychiatrist, etc) I feel that Dr. Jones AND her staff are incredible! They're fast, friendly, efficient, and always return phone calls within a few hours (but more often than not you can talk to a nurse when you first call).

I figured as with most specialists when I got the referral in May that I'd have to wait forever. Nope, in less than two weeks I was sitting in front of her. Again, discouraged with past experiences, I was afraid it would be another I can't help you. We must have met for about an hour, she listened asked questions, and for the first time gave me answers (which of course had to be backed up with xrays/bloodwork, etc). But right from the start she showed concern, understanding and compassion.

I've seen her every 4-6 weeks for follow up and restructuring my plan of care. We always make decisions together because she believes that I own this and deserve a voice in my treatment. When asked questions, she always gives answers and alternatives. And when I'm being stubborn (scared) she always knows how to put into perspective. I believe she really understands this illness and wants to help people LIVE their life not just exist in it.

Just my .02 if you're in (or around) Houston and looking a GOOD rheumatologist.

~Lori


~ You can't break a broken girl, she has multicoloured wings like a butterfly.
Re: Patient-To-Patient Recommended Rheumatologist Directory #87512
01/14/08 08:10 PM
01/14/08 08:10 PM
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DR Kage, Manchester CT

Re: Patient-To-Patient Recommended Rheumatologist Directory #87513
01/30/08 03:31 AM
01/30/08 03:31 AM
Joined: Dec 2007
Posts: 892
Kansas City
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Kansas City
Dr. Ann Warner, Kansas City
(She's awesome!)

Re: Patient-To-Patient Recommended Rheumatologist Directory #87514
02/01/08 10:54 PM
02/01/08 10:54 PM
Joined: Jan 2008
Posts: 1
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Posts: 1
Dr. Andrew Baldassare
Arthritis Consultants
St. Louis, MO

Re: Patient-To-Patient Recommended Rheumatologist Directory [Re: ] #116255
06/30/08 10:35 PM
06/30/08 10:35 PM
Joined: Jun 2008
Posts: 1
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Hi -

I just found the most amazing doctor... I have had this disease since I was 16, but only in the last 4 years was it diagnosed... Anyway, this is the first doctor of many that I have ever been to that I actually think he can help me.

Hi name is Dr. Arash Horizon in the Los Angeles CA Area.

Re: Patient-To-Patient Recommended Rheumatologist Directory [Re: catwoman] #116823
07/07/08 11:27 PM
07/07/08 11:27 PM
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Dr Neil Birnbaum, rheumatologist, San Francisco, Ca

Re: Patient-To-Patient Recommended Rheumatologist Directory [Re: catwoman] #117646
07/15/08 03:58 PM
07/15/08 03:58 PM
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WHAT ABOUT ONE IN JACKSON MISSISSIPPI

Re: Patient-To-Patient Recommended Rheumatologist Directory [Re: bayouwaterdog] #121874
09/06/08 05:14 PM
09/06/08 05:14 PM
Joined: Sep 2008
Posts: 2
Louisiana
sherilou Offline
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Louisiana
I see a great doctor in Baton Rouge . Dr Sean Shannon at Oschner on Bluebonnet. laugh


I can do all things through Christ who strengthens me !!!!!!!!!!!!
Re: Patient-To-Patient Recommended Rheumatologist Directory [Re: sherilou] #126048
10/21/08 06:44 AM
10/21/08 06:44 AM
Joined: Aug 2005
Posts: 168
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TexasGirl Offline
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I have a very complex case of AS. I live in San DIego and have the most amazing doctor though. She is truly brilliant and thinks outside the box. She is incredibly understanding and sympathetic. Her name is Dr. Carol Young and her office is in Escondido, California.

Her staff is wonderful too!

Re: Patient-To-Patient Recommended Rheumatologist Directory [Re: ] #129861
11/28/08 09:59 PM
11/28/08 09:59 PM
Joined: Jan 2008
Posts: 57
Pocatello, ID
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cipher Offline
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Pocatello, ID
Dr. Ananda Walaliyadda in Pocatello, Idaho, is a genius!
Great diagnostition, kind, gentle and patient.
Very helpful with my SSDI and work disability paperwork.
Can't say enough good things about him.
If you need a rheumatoligist in Eastern Idaho, he's the man!


Paul
Re: Patient-To-Patient Recommended Rheumatologist Directory [Re: cipher] #130261
12/03/08 10:18 PM
12/03/08 10:18 PM
Joined: May 2008
Posts: 1,165
Texas
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Texas
Dr.Dhiman Basu, Rheumatology, Fort Worth, Texas,(TX), North Richland Hills, Texas,(TX)

He listens, cares, kind, patient, and takes time with his patients.

AND...

Physical Therapist
Sheri Murrell, PT SporTherapy NW

She has experience with AS patients and knows all about it!


Carrie
Retired Navy Wife, 43 / mother of 5, Fort Worth, Texas
Remicade, Norco, lunesta, buspar, Folic Acid, MTX
Re: Patient-To-Patient Recommended Rheumatologist Directory [Re: Roqufort] #130508
12/06/08 12:12 AM
12/06/08 12:12 AM
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Posts: 9
Midwest
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Midwest
Dr. Jerry Goldberg
Marshfield Clinic
Marshfield Wisconsin

He always listens, he cares about all his patients, and he always makes you feel like your concerns matter


Hooversmom
Re: Patient-To-Patient Recommended Rheumatologist Directory [Re: hooversmom] #133158
01/19/09 08:19 PM
01/19/09 08:19 PM
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Posts: 15
San Diego, CA
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San Diego, CA
Dr. Roy Kaplan
Encinitas, CA (San Diego)

After too many years of mis-diagnosis he knew within a few minutes what was wrong with me.


EXCELLENCE is never an accident: it is the result of high intention, sincere effort, intelligent direction, skillful execution and the vision to see obstacles as opportunities.
Re: Patient-To-Patient Recommended Rheumatologist Directory [Re: kmallory] #135184
02/17/09 03:41 PM
02/17/09 03:41 PM
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Posts: 33
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Dr. Anita Zachariah is a very good rheumatologist in NW Indiana. She is out of the Hammond Clinic in Munster, IN. She is young but really seems to know what she is doing. She is very kind and concerned. She will actually get on the phone and talk to me when I call with a question or concern. She talked with me for quite some time while in the office and I never felt rushed or like she was not really listening to me. It was actually very strange to me since I do not really have good luck with doctors. I would definitely recommend her to anyone in the NW Indiana area.


~Jennifer~
Re: Patient-To-Patient Recommended Rheumatologist Directory [Re: catwoman] #136973
03/10/09 08:01 PM
03/10/09 08:01 PM
Joined: Mar 2009
Posts: 56
Dallas, TX
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Dallas, TX
Dr. Leyka Barbosa, Dallas TX. Located in Medical City Hospital-building C.

She's awesome! Started treating me at age 16, finally able to go back to her when my insurance at my current job switched. Super flexible and willing to work with you to find a treatment plan you are able to adhere to.


"We are what we repeatedly do. Excellence therefore is not an act, but a habit."-Aristotle.

29 y/o, first diagnosis of AS at age 22. Also have OA in both knees, Raynaud's phenomenon, taking Remicade infusions and weekly methotrexate injections, as well as voltaren, protonix and folic acid.
Re: Patient-To-Patient Recommended Rheumatologist Directory [Re: pennie2001] #137827
03/21/09 11:02 PM
03/21/09 11:02 PM
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Posts: 38
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Samson Offline
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Any suggestions for Long Island or NYC

Re: Patient-To-Patient Recommended Rheumatologist Directory [Re: Samson] #139426
04/08/09 07:43 AM
04/08/09 07:43 AM
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Any good docs in Northern NJ...ty

Re: Patient-To-Patient Recommended Rheumatologist Directory [Re: Doug_NJ] #170197
03/27/10 05:53 PM
03/27/10 05:53 PM
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Any suggestions for New York?

Re: Patient-To-Patient Recommended Rheumatologist Directory [Re: Lizzerdh] #182080
08/13/10 11:16 PM
08/13/10 11:16 PM
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Posts: 2,466
N. Sacramento Valley
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N. Sacramento Valley
Dr. Harchetan Sing Sandhu is a wonderful Rheumy in Chico, CA. Tel 530-342-1310; Fax 530-342-1327. His name might be hard to pronounce, but he is really great. Fairly young, willing to try the newest and more aggressive meds. He was for starting me on Humira from my first visit, just needed some lab tests, x-rays and a MRI to prove my case to the insurance. He is really nice and he listens to me. I was 69 when I first started seeing him and I expected him to just say I had Ostio and old age. He took me seriously and didn't let something like age affect his DX.
Donna


Donna
Suffering since a teenager.Dx with AS Dec 2009. Dx with ulcerative colitis 1998, both knees replaced 2006. GP said I had "some kind of inflammatory arthritis" 25 years ago. It has taken 50 years to get a Dx.

Mobic, Nexium, Naproxin, Lipitor, 6-MP, Nexium, Miacalcam, MSContin and 2 Norco for break through pain
Re: Patient-To-Patient Recommended Rheumatologist Directory [Re: catwoman] #185500
09/23/10 07:29 AM
09/23/10 07:29 AM
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Dr. Stanford Peng, Seattle Washington..Virginia Mason

Re: Patient-To-Patient Recommended Rheumatologist Directory [Re: catwoman] #187994
10/24/10 03:13 PM
10/24/10 03:13 PM
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Dr Christopher Huyck MD Arthritis Care P.C.15th st Troy NY
The man knows is stuff and gives 200%

Re: Patient-To-Patient Recommended Rheumatologist Directory [Re: catwoman] #191737
12/10/10 05:30 PM
12/10/10 05:30 PM
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atgarvey Offline
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Dr. Partain - Appleton, WI (yea - go 'sconnies!) He finally diagnosed me eight months after a primary care physician said I had "growing pains."

Re: Patient-To-Patient Recommended Rheumatologist Directory [Re: rainbowfrost] #194813
01/15/11 07:17 AM
01/15/11 07:17 AM
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Posts: 2
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I have used Dr Gary Botstein in Decatur. For those around Dekalb medical center. I like him alot, I have been to Dr Parris, nice guy as was Dr Hays Wilson in downtown Atlanta. But neither of them seem to be terribly interested in finding what works or the progression or even researching the causes. They treat the symptoms with pain meds and collect the co-pays.

Dr Botstein is constantly documenting every little change, wants to know my diet, my range of motion, my exercises, all my other issues to see if there are connecting points, communicates live while in the office with other Doctors to see if they have commonalities.
I walk out of there thinking, he is truly trying to find the miracle.....I drive 30 miles to see him.

Last edited by stevep; 01/15/11 07:18 AM.
Re: Patient-To-Patient Recommended Rheumatologist Directory [Re: stevep] #196902
02/05/11 08:01 PM
02/05/11 08:01 PM
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Posts: 1,447
Whidbey Island WA
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WhiteCell Offline
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Whidbey Island WA
I met with Dr. Christian Dequet in Thousand Oaks CA. I am in this area for a few months and selected him to continue my Remicade treatments at a local hospital.

He is excellent comprehensive and positive. Was impressed.


Starting at 18 yrs old > Reiter's Syndrome. Diagnosed 2001 Ank Spon.
Started Remicade 2002 - 5mg/kg every 7 weeks.

Right Eye Glaucoma- Trabeculectomy/lens replacement 2006.
Right eye DSEK Cornea Transplant 2009.
Right eye Ahmed Shunt 2016.
Right eye DSEK Cornea Transplant 2016.
Supra Ventricular Tachycardia. 2004. Cured by RF ablation 2008.

ICU RN - Seattle, WA

~Grasp The Challenge and Succeed~
Re: Patient-To-Patient Recommended Rheumatologist Directory [Re: catwoman] #196924
02/06/11 01:18 AM
02/06/11 01:18 AM
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Posts: 3
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DR Karen Nepveu, Colchester, VT
I am 57, it has taken me this many years since my early 20's to find the right Rheumatologist. This woman LISTENS! My first visit was almost 2 hours....how many doctors give you that much time? She's wonderful!

Re: Patient-To-Patient Recommended Rheumatologist Directory [Re: Susie122] #203047
03/30/11 04:47 AM
03/30/11 04:47 AM
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Posts: 2
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monicaroni Offline
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Any suggestions for Austin, TX or the vicinity?

Re: Patient-To-Patient Recommended Rheumatologist Directory [Re: catwoman] #203444
04/02/11 07:41 PM
04/02/11 07:41 PM
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mkm Offline
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Looking for that GREAT DOC!! (Flint,MI)
I live in MI, have traveled to Ann Arbor (U of M) was not happy with the 2- 10 min. visits from the Dr. I saw there. He was very short, left me with sooooo many questions. He didn't listen to me, and acted like I was an inconvience to him.
My first visit was unreal... me: in my "glory" (fully flared) : major pain, couldn't stand, sit, swolled from head to toe, and the big X on the "mark the pain spots picture I filled out; He says to me (with out even reading mine or the referring Dr's notes or examining me) "you need a vacation, splints for carpal tunnel, and maybe massage therepy" "You have text book case of fibromyalgia" Neverminding the cronic iritis I've suffered from, inability to move, years of siatic pain, unable to sleep, and positive blood work. He left the room as quick as he entered, my husband and I looked at eachother in complete dismay. As we left the exam room, (w/o a return appt) stop to pay the co-pay, he comes running up behind me and says maybe an eye dr appt is what you need. Well, needless to say; I let him have it. No issues of iritis at this time ~know what it is and I know what to do when it comes. We did get an order for lower back xray before we left and a "promise he'd call with the results. (the results of the xray didn't show anything... let him have it again) Before next appt, I had complete MRI of the spine... showing many issues, fusion etc. A phone call (8:00pm) from this wonderful man stating " Very important that I see you... come tomorrow am." 100 mi. round trip, but I know I need some relief and a proper dx, I ventured to Ann Arbor. Again 10 min, no exam per say, no questions answered, handed a script for Humira... and this is where I stand.
I'm willing to travel for an understanding, knowledgable Dr. in the Flint, MI area...
Any suggestions????

Re: Patient-To-Patient Recommended Rheumatologist Directory [Re: mkm] #203612
04/04/11 05:42 PM
04/04/11 05:42 PM
Joined: Aug 2008
Posts: 2,119
michigan
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aslee9 Offline
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michigan
Have you tried consultants in Arthritis in Flint, Mi? That is where I go. I see Dr Trudell, she's hard to get in to see. Took me a 4-5 month wait. There's also another rheumatologist there, can't remember the name. They are great doctors. My first visit was almost 4 hours. They have their own blood lab, bone density table and xray machines. I was xrayed at all joints and bone density first visit. Dr Trudell spent more than a half hour, maybe 45 minutes with me first visit.

phone number 810 230-2400

I transferred from another rheumy to her. Very satisfied.


Ann
HLAB27+
62 years old flexeril, tramadol, tramadol er, percocet, lidoderm patch, flector patch, voltaren gel + other meds for other conditions + lots of vitamins

Re: Patient-To-Patient Recommended Rheumatologist Directory [Re: catwoman] #204717
04/14/11 08:15 PM
04/14/11 08:15 PM
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Hi to All : )
I am newly diagnosed & need to know if anyone knows of a
good rheumatologist in Oregon?
Any help is much appreciated & Thank You in advance!
Anna

Re: Patient-To-Patient Recommended Rheumatologist Directory [Re: ] #207999
05/15/11 10:32 PM
05/15/11 10:32 PM
Joined: May 2011
Posts: 19
FL
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dgirard Offline
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FL
Rheumatologist Anas Moureiden in Spring Hill, Fl. diagnosed my AS as soon as I won my SSA case and had insurance to finally see a specialist. I thought I was going crazy with so many complex symptoms that no one else could put a name to.

And the best primary care Dr., Dhammika Ekanayake who manages my care with information supplied by the many specialists I see. He has gone above and beyond to educate himself about my disease and the several complications I have.


Ankylosing Spondylitis,Mitral Valve (mechanical) replacement, Enthesitis, CHF,,A-Fib, SLE, Fibromyalgia. Sicca Syndrome, 2 Lacunar Infarct, Diverticulosis ,IBD with chronic precancerous polyps , Osteoarthritis, CKD, Hyperlipidemia,,Barrett's Esophagus, chronic anxiety and depression, NASH, Neurogenic bladder. Hypertension, Anemia, Hypothyroidism, Chronic Celulitis,Neuropathy.History of Trigeminal Neuralgia
Re: Patient-To-Patient Recommended Rheumatologist Directory [Re: stevep] #208728
05/23/11 03:45 AM
05/23/11 03:45 AM
Joined: Mar 2009
Posts: 38
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Samson Offline
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Posts: 38
Long Island NY or NYC?

Re: Patient-To-Patient Recommended Rheumatologist Directory [Re: ] #209754
06/06/11 12:43 PM
06/06/11 12:43 PM
Joined: Jun 2010
Posts: 49
Pennsylvania
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Pennsylvania
I would like to recommend Dr Alan Samuels located in 701 Ostrum st. Bethlehem PA. He is a great rheumatologist and he listens. He spends time with the patients and always has and answer or does his best to find it. He doesn't give up!!

Re: Patient-To-Patient Recommended Rheumatologist Directory [Re: catwoman] #210267
06/12/11 02:00 AM
06/12/11 02:00 AM
Joined: Jun 2011
Posts: 1
Missouri
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YMGarton Offline
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Missouri
Is that Kansas City in Missouri or Kansas?

Re: Patient-To-Patient Recommended Rheumatologist Directory [Re: YMGarton] #211022
06/21/11 05:32 AM
06/21/11 05:32 AM
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Posts: 252
Ill
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ancient Offline
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Ill
I would like to recommend Dr Palella In Des Plaines Il. He spent almost an hour with me my first visit and was able to DX promptly! He returns my calls and is able to do all blood work and ex-rays in the office, saves me time! When I was having severe foot pain he was able to give me the cortisone shot right then! no going to see a podiatrist! He is awesome!


lori
diagnosed USpA Nov 2010. Changed to As 2012. Low Vit D
suffered since teenager multiple surgeries.IBS, Migraines, carpal and tarsal tunnel, TMJ, (failed Enbrel& Humira),Started Remicade sept. 2012,Methotrexate,Prednisone,Relafen, Amitriptylin,Gabapentin, Fioricet, Topamax,,Protonix,Amlodipine, Vit. D, Folic acid,
Re: Patient-To-Patient Recommended Rheumatologist Directory [Re: ] #212403
07/12/11 02:58 AM
07/12/11 02:58 AM
Joined: Jul 2011
Posts: 57
Texas
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Texas
My doctor's name is Dr. Cochinwala and he is located in Cypress, Texas. He was the one who quickly diagnosed me with AS and got me on the right track on my treatments.

Remicade once every 8 weeks
Methotrexate: 6 pills once a week
Folic acid and B-12 everyday

Re: Patient-To-Patient Recommended Rheumatologist Directory [Re: monicaroni] #212862
07/20/11 01:10 PM
07/20/11 01:10 PM
Joined: Jul 2011
Posts: 2
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joedean23 Offline
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Hi monicaroni,

Have you been able to find a doc in Austin? I have just started looking and was hoping to get some insight.

Thank You!

Joe

Re: Patient-To-Patient Recommended Rheumatologist Directory [Re: catwoman] #219499
10/16/11 02:14 AM
10/16/11 02:14 AM
Joined: Oct 2011
Posts: 6
Iowa
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snake Offline
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Joined: Oct 2011
Posts: 6
Iowa
any suggestions for a good Doc in the state of Iowa??


diagnosed with undiff spondy in 2008. Tried Enbrel for two years-became ineffective. Currently on Humira.
Re: Patient-To-Patient Recommended Rheumatologist Directory [Re: catwoman] #226507
02/01/12 06:34 AM
02/01/12 06:34 AM
Joined: Jan 2012
Posts: 2
Salt Lake City, UT
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jaslc Offline
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Joined: Jan 2012
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Salt Lake City, UT
Dr. Sean McMillan in Salt Lake City Utah. So thorough, thoughtful and helpful.


Stay at home mom of one beautiful baby girl. Diagnosed with AS in October of 2011 at age 27 though I've had symptoms since 2005. HLA-B27 positive. Starting on Sure Click Enbrel 1x per week... we'll see!
Re: Patient-To-Patient Recommended Rheumatologist Directory [Re: jaslc] #226720
02/05/12 12:07 AM
02/05/12 12:07 AM
Joined: Feb 2012
Posts: 9
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barbara66 Offline
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Posts: 9
I am 66 and was recently diagnosed with spondylitis. My symptoms were severe neck pain for most of my life, chronic diahrrea for last 12 years, plantar fasciatis for about 10 years, hip pain for past couple of years but the one thing that got me diagnosed was my swollen toe. I know the second day after taking the anti inflammatory that this was my diagnosis because all of the above symptoms disappeared. I woke in the middle of the night because I did not have neck pain.
My 33 year old son has all the symptoms for psoriatic arthritis and still has not been diagnosed by his managed health care provider. I just did his income tax and he had almost $5000 in premiums, copays, etc. with no diagnosis. I read that there is a genetic connection between spondylitis and psoriatic arthritis. I know there is no definitive blood test for these diseases but what tests should we be getting both for me( my doctor has not even taken an x-ray to see if mine is ankylosing) and for my son so he can be given treatment for his symptoms which affect every aspect of his life?

Re: Patient-To-Patient Recommended Rheumatologist Directory [Re: barbara66] #226777
02/06/12 09:05 PM
02/06/12 09:05 PM
Joined: Dec 2008
Posts: 2,183
Perth, Western Australia
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winelover Offline
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winelover  Offline
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Joined: Dec 2008
Posts: 2,183
Perth, Western Australia
Originally Posted By: barbara66
I am 66 and was recently diagnosed with spondylitis. .........


wow Barbara, a lot of people have been diagnosed after years of symptoms but maybe not as many years as you
women don't always have the classiv symptoms starting with buttock and/or lumbar pain, certainly I had treatment problems in me neck and upper back before the lower back

you and your son both need to see a good rheumatologist
good luck!!

Re: Patient-To-Patient Recommended Rheumatologist Directory [Re: winelover] #227053
02/10/12 12:54 AM
02/10/12 12:54 AM
Joined: Feb 2012
Posts: 9
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barbara66 Offline
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Thank you for the encouragement. Anyone know of a good rheumatologist in area east of Seattle, heck I would even go into Seattle with the $5.00 bridge toll.

Re: Patient-To-Patient Recommended Rheumatologist Directory [Re: catwoman] #230179
03/22/12 10:04 PM
03/22/12 10:04 PM
Joined: Sep 2011
Posts: 42
St. Louis, Missouri, USA
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StLouis Offline
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Posts: 42
St. Louis, Missouri, USA
I would like to recommend the staff at Washington University in St. Louis, Department of Rheumatology, Dr. Reeti Joshi(Fellow),Dr. Richard Brasington, and Dr. Benjamin Schwartz. Outstanding!!! They take great care and their examinations our so thorough.

Re: Patient-To-Patient Recommended Rheumatologist Directory [Re: catwoman] #232832
05/07/12 06:41 AM
05/07/12 06:41 AM
Joined: Apr 2012
Posts: 1
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louisub Offline
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Posts: 1
For those in Sydney, Australia, Dr Irwin Lim from http://bjchealth.com.au/our-team/our-doctors is a rheumatologist with an active interest in ankylosing spondylitis, and educates others about it. You can read his blog about SA on his website. It was a relief to meet a doctor who treated my symptoms seriously and finally diagnosed what was wrong with me.

Re: Patient-To-Patient Recommended Rheumatologist Directory [Re: norskegirl74] #232867
05/07/12 06:09 PM
05/07/12 06:09 PM
Joined: May 2012
Posts: 4
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Saurav Offline
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Joined: May 2012
Posts: 4
Can I Contactt Her Over The Internet..?? If yes Then Plzz Tell Me How to Contact her.....

Re: Patient-To-Patient Recommended Rheumatologist Directory [Re: mkm] #232868
05/07/12 06:11 PM
05/07/12 06:11 PM
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Posts: 4
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Saurav Offline
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Can A Person Havin Spondylitis ankylosing for over 40 years be cured..??

Re: Patient-To-Patient Recommended Rheumatologist Directory [Re: Saurav] #232871
05/07/12 07:14 PM
05/07/12 07:14 PM
Joined: Oct 2011
Posts: 971
Wellington, New Zealand
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Shirley Offline
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Wellington, New Zealand
There is no unfortunately no cure for AS. It can go into remission and that seems to be more likely early on, but treatment can still help with long standing disease.


Shirley
Peripheral and axial AS diagnosed October 2011 aged 50, more than 15 years after the symptoms started. Also PCOS, GERD/oesophagitis/dysphagia, IBS, asthma,chronic rhinitis. Taking enbrel, methotrexate, folic acid, omeprazole, vitamin D, metformin, steroid inhaler and eating low starch/low GI.
Re: Patient-To-Patient Recommended Rheumatologist Directory [Re: Shirley] #232904
05/08/12 01:51 AM
05/08/12 01:51 AM
Joined: Jun 2009
Posts: 38
New York
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smittygirl50 Offline
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Joined: Jun 2009
Posts: 38
New York
Dr. Yaqoot Khan
222 E Main Street
Smithtown, NY

Best Rheumy I've had since dx in 04'. Kind, compassionate, listens! Very knowledgeable.


S. Elizabeth

Dx AS in 04' HLA-B27 positive, Chronic Uveitis, Raynauds.
Humira wkly, Mtx inject wkly, Soma, Hydrocodone. Tried Remicade, allergic reactions so back to Humira

























Humira wkly, MX wkly, Folic Acid, Navanac daily, Vicoprophen PRN, Flexeril, recently failed Remicade, back on Humira wkly.
Re: Patient-To-Patient Recommended Rheumatologist Directory [Re: ] #242314
10/18/12 02:39 AM
10/18/12 02:39 AM
Joined: Oct 2012
Posts: 5
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Kim30 Offline
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Joined: Oct 2012
Posts: 5
Stephen Paget,MD New York,New York
Hospital for Special Surgery.

He is kind and compassionate.

Re: Patient-To-Patient Recommended Rheumatologist Directory [Re: ] #243039
10/30/12 03:14 AM
10/30/12 03:14 AM
Joined: May 2012
Posts: 152
san diego, CA
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babygirl536 Offline
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Joined: May 2012
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san diego, CA
Look up Dr. Thomas Adamsom III
If you want to check him out:
http://www.sharp.com/san-diego-doctors/dr-thomas-adamson-iii-53271


Female, 29 - loving wife & mommy to one <3
Finally diagnosed in Oct 2011
HLAB27+
Remicade - Oct 2012
Fibromyalgia - June 2013
Tendonitis - February 2014
Humira: Failed / NSAIDS: Failed / Steroid Epidurals: Failed, caused more pain / Physical Therapy, Massage Therapy, and Chiropractics: Failed / gabapentin: Failed
Re: Patient-To-Patient Recommended Rheumatologist Directory [Re: barbara66] #243196
11/01/12 09:23 PM
11/01/12 09:23 PM
Joined: Nov 2012
Posts: 8
Georgia, USA
Gidget101 Offline
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Georgia, USA
Barbara,
AS is passed from mother to son. The most definitive blood test for you both is HLA-B27. 90% positive present with the disease.
It would be interesting if you think back to whether your father had back pain...
I acquired AS @ age 26 (klebsilla bacteria + genetic marker) *works pretty much like being born with a light switch & the environmental factor flips it on.
My 10 yo son complained of back pain while playing on the playground. I had x-rays & bloodwork done & he was diagnosed w/AS (HLA-B27+)
It is a shame your not near the best rheumatologist I've met in 26 years. Unfortunately, he is James Mossell in Tifton, Ga.
Good luck to you & your son.
P.S. I kept his AS in remission thru his teens with the antibiotic Keflex twice a day.


Married to a wonderful man 23yrs, w/ a terrific son diagnosed with AS.

Acquired AS 28yrs ago. Severe Fibromyalgia, Migraines, Multiple system involvement: heart, remaining kidney (no nsaid's allowed), spine (+ spinal stenosis), neck, knees (Rcd total Rht knee replacement 7/13, Lft scheduled for 9/13), thyroid, etc... Medically retired from US Military.
Now recently diagnosed w/ Primary Hypogammaglobulemia to boot!
Re: Patient-To-Patient Recommended Rheumatologist Directory [Re: Gidget101] #244382
11/24/12 06:06 AM
11/24/12 06:06 AM
Joined: Jul 2004
Posts: 1,130
United States
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NotMeToo Offline
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Joined: Jul 2004
Posts: 1,130
United States
Originally Posted By: Gidget101
AS is passed from mother to son. The most definitive blood test for you both is HLA-B27. 90% positive present with the disease.


Just to clarify:

90 to 95% of Ankylosing Spondylitis patients are HLA-b27+, but less then 1% of HLA-b27+ individuals develop AS.

HLA-b27 is a fairly normal gene shared by approximately 8% of the US population. Very few of those people develop AS.

The ratio of HLA-b27 positivity is lower in patients with related Spondyloarthropathies (Undifferentiated Spondylitis, Psoriatic Spondylitis, Reiter's Syndrome).

Ankylosing Spondylitis is largely a genetic disease, but it is not necessarily passed from mother to son. A child of either sex can inherit the genetic predisposition for the disease from either parent - or from a mixture of genes from both parents.


Not Me Too!
Re: Patient-To-Patient Recommended Rheumatologist Directory [Re: ] #264164
02/09/14 03:28 PM
02/09/14 03:28 PM
Joined: Feb 2014
Posts: 15
Pittsburgh, PA
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lily401 Offline
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Joined: Feb 2014
Posts: 15
Pittsburgh, PA
Dr. DeLo Monroeville, PA


Liz..47 newly diagnosed with Spondyloarthis. Started Sulfasazine 2/4/14.
Re: Patient-To-Patient Recommended Rheumatologist Directory [Re: ] #264165
02/09/14 03:30 PM
02/09/14 03:30 PM
Joined: Feb 2014
Posts: 15
Pittsburgh, PA
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lily401 Offline
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Posts: 15
Pittsburgh, PA
Dr. DeLo Monroeville, PA


Liz..47 newly diagnosed with Spondyloarthis. Started Sulfasazine 2/4/14.
Re: Patient-To-Patient Recommended Rheumatologist Directory [Re: ] #264478
02/25/14 01:55 AM
02/25/14 01:55 AM
Joined: Sep 2007
Posts: 279
Toronto
Sean O Online
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Sean O  Online
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Posts: 279
Toronto
Dr Julie Kovacs
Toronto, Ontario, Canada


Male, early 50s, Dx AS+ 1991, HLA B27+, Tylenol 3 PRN for flares. Off NSAIDs due to stomach issues. Considering a biologic. SI and thoracic involvement and costochondritis. Many bouts of uveitis. Small bowel issues, anemia.
Re: Patient-To-Patient Recommended Rheumatologist Directory [Re: ] #266156
05/02/14 09:49 PM
05/02/14 09:49 PM
Joined: May 2008
Posts: 91
ElinAslanyan Offline

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ElinAslanyan  Offline

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Posts: 91
Thank you very much for these! I'll be updating the directory soon and will include your recommendations (we do check first to see if they are board certified)


Elin Aslanyan

Director of Programs
Editor-in-Chief, Spondylitis Plus
Forum Moderator

Spondylitis Association of America
Re: Patient-To-Patient Recommended Rheumatologist Directory [Re: ] #269933
01/12/15 12:29 PM
01/12/15 12:29 PM
Joined: Nov 2014
Posts: 10
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Nanee Offline
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Posts: 10
Any suggestions on a great rheumy, that REALLY CARES , in the New Orleans, La. Area????

Re: Patient-To-Patient Recommended Rheumatologist Directory [Re: ] #270724
03/22/15 02:11 AM
03/22/15 02:11 AM
Joined: Mar 2015
Posts: 3
Milwaukee, WI
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StrongerThanLife Offline
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Joined: Mar 2015
Posts: 3
Milwaukee, WI
Dr. Jonathon Kushi at Rheumatic Disease Center in Milwaukee WI. AMAZING!!


Diagnosed with Ulcerative Colitis (age 4), total Colectomy 1991
Diagnosed with AS 2003 (age 19)
Past Tx: Humira (2004) and Enbrel (2004), developed cellulitis from both. Remicade (2004-2014), developed drug induced lupus. Sulfasalazine (2014-2015), not controlled and developed bruising and pruritis at higher doses.
Current Tx: massage, pain meds PRN, cortisone injections into SI joints PRN
Other: hx of multiple pleural effusions, chronic pleurisy, hx of DVT right arm, chronic migraines, PFO
Re: Patient-To-Patient Recommended Rheumatologist Directory [Re: ] #273851
04/02/16 08:27 PM
04/02/16 08:27 PM
Joined: Mar 2016
Posts: 58
Nebraska
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nowIknow Offline
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Joined: Mar 2016
Posts: 58
Nebraska
Anyone know of a good rheumatalogist in Nebraska or there abouts? One that knows about AS?


Yet waiting and pressing in for diagnosis.

Thanks for listening and for your caring support.

Laughter is the best medicine after all.
Re: Patient-To-Patient Recommended Rheumatologist Directory [Re: Anonymous] #279635
12/22/17 08:50 PM
12/22/17 08:50 PM
Joined: Dec 2017
Posts: 2
Texas
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SpoonsNunicorns Offline
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Joined: Dec 2017
Posts: 2
Texas
After seeing 4 different rheumatologists and over the coarse of 9 years... Dr. Mei An Tonette Ty Arias finally gave me a diagnosis (AS) after years of not knowing what was wrong. She's one of the first who've really listened to me and did the necessary digging to get me a proper diagnosis. She even ultrasounded my hands during the visit and discovered swelling. She's patient, honest, and does her best to balance my physical needs along with my quality of life. I couldn't ask for a better rheumatologist and office!

3030 North St
Ste 450
Beaumont, Texas 77702-1433
Phone: (409) 832-9600

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