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#91610 - 05/23/06 07:11 PM helpful book for parents and teens
Marion Marion Member Registered: 05/22/06 Posts: 15	Hi Everyone, My daughter's school nurse gave me a book today entitled: It's Not Just Growing Pains; A Guide to Childhood Muscle, Bone, and Joint Pain, Rheumatic Diseases, and the Latest Treatments, by Thomas J.A. Lehman, MD. It seems really helpful to the beginner like me. Do any of you have books or reference material to recommend? Has anyone tried the exercise/yoga video that is available for purchase on this website? I'm looking for any and all help! Marion 10 year old daughter recently diagnosed
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#91611 - 05/24/06 01:19 PM Re: helpful book for parents and teens
TennisAce TennisAce Registered Visitor Registered: 09/19/05 Posts: 1062 Loc: Boston, Ma.	I bought that book and read it cover to cover. I think it's helpful looking at all the different autoimmune issues and explaining the meds. Like any book, my daughter's Rhumy thought it was a little opinionated. But, I still like it for it's explanations. _________________________ Daughter diagnosed 2004; son diagnosed 2006. One takes a mix on pharma: sulfa, naproxyn and celebrex. The other one is clinical remission at the moment and not taking any drugs currently.
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#91612 - 10/28/07 12:48 AM Re: helpful book for parents and teens
Ericsmom Ericsmom Registered Visitor Registered: 10/28/07 Posts: 98 Loc: Ventura County, CA	I know you posted this a while ago, but my 12 year old son was just diagnosed and I am still trying to take in all of the available information. I will try this book-thanks for the suggestion!
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#103950 - 02/28/08 07:42 PM Re: helpful book for parents and teens [Re: Ericsmom]
NinasMom NinasMom Registered Visitor Registered: 02/28/08 Posts: 12	my daughter is in severe condition and I just don't know what to do. please email me if you can anyone, information... thanks
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#106167 - 03/19/08 08:03 AM Re: helpful book for parents and teens [Re: NinasMom]
SquirrelyGirl SquirrelyGirl Registered Visitor Registered: 01/09/08 Posts: 59 Loc: Gulfport, Mississippi	I wish this book would've been around when I was a child and suffering from "growing pains." Even when I was little I knew something was wrong. Then after a while the pediatrician diagnosed juvenile rheumatoid arthritis and scared my mother to death. then offered no medical help, just a scary diagosis. At least now I know it was AS the whole time. ; ) Terri _________________________ AS, fibromyalgia, sacroillitis, costochondritis, Raynaud's, etc. "If there are no dogs in Heaven, then when I die I want to go where they went." - Will Rogers
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#144354 - 05/29/09 10:26 PM Re: helpful book for parents and teens [Re: SquirrelyGirl]
happypossum happypossum First time visitor Registered: 05/29/09 Posts: 1	thanks very much for the book _________________________ how to french kiss
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#144462 - 05/30/09 09:48 PM Re: helpful book for parents and teens [Re: happypossum]
KellyChristal KellyChristal Registered Visitor Registered: 10/06/08 Posts: 1930 Loc: San Antonio, TX	It is funny, my daughter complains of her legs and her knee hurting her all the time...on occasions she will wake up crying about her leg hurting her so bad. I need to get this book, thank you for the recommendation. She is 3 btw, I thought it was young for growing pains!
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#144536 - 05/31/09 01:16 PM Re: helpful book for parents and teens [Re: KellyChristal]
TennisAce TennisAce Registered Visitor Registered: 09/19/05 Posts: 1062 Loc: Boston, Ma.	I am in the thread years ago, but I think it is a truly wonderful book to fill parents into the family of diseases. _________________________ Daughter diagnosed 2004; son diagnosed 2006. One takes a mix on pharma: sulfa, naproxyn and celebrex. The other one is clinical remission at the moment and not taking any drugs currently.
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#146257 - 06/16/09 10:05 AM Re: helpful book for parents and teens [Re: TennisAce]
goodnightjunebug goodnightjunebug Registered Visitor Registered: 03/28/07 Posts: 572 Loc: Maine	I really found that book helpful. I e-mailed Dr. Lehman and he personally responded to me. I was going to take my daughter to him...but he costs $500.00 for the initial 1 hour visit and he doesn't take insurance(though you can submit the bill to your own insurance...you need to pay upfront at the appt.) I highly recommend the book though. Junebug _________________________ Phillipians 4:13
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#147631 - 07/02/09 01:29 PM Re: helpful book for parents and teens [Re: goodnightjunebug]
Mr. Unstoppable Mr. Unstoppable Registered Visitor Registered: 10/13/07 Posts: 227 Loc: Utah	If you just want more literature there is always Kahn's book-I think some of the stuff he says is bogus and the overall writing style makes him appear as one of the ultimate authorities on AS-but if you can sift through it there is some good info. Another one potentially worthwhile if you go the TNF route is Arthritis Without Pain: The Miracle of TNF Blockers. A bit on the over-enthusiastic side and written in 2004 it nontheless does have a LOT of quality info. For a different viewpoint The New Arthritis Breakthrough is a decent read, especially now as minocycline has been officially classified as a DMARD. The perfect and all-encompassing AS book will be written when we find a cure $;\)$ _________________________ Dx'd February '07 @ age 19. When the going gets tough the tough get going. So bring it on $\:\)$ http://conqueras.blogspot.com
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