#91620 - 09/25/06 12:45 PM
Enbrel kids
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EthansMom
Registered Visitor
Registered: 06/23/04
Posts: 130
Loc: Placerville, CA
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Hi guys,
My 11-year-old just started the Enbrel injections a few weeks ago. His last shot, this last Thursday, produced and uncharacteristic hyteria in him that was really upsetting. He ran, he cried, he screamed... he says the injection hurts SO bad. (It's the once a week 50mg injection). We had to practically hold him down and it was awful... I cried right along with him. He says its not the needle that hurts, but the medicine going in... that it stings SO badly.
I called the nurse at his rheumy's office and she says yes, they are very painful (she equivalated it to 10 bee stings), and says that the 25mg twice a week is a lot less painful. She, herself takes the injections and said she had to go to the 25mg twice a week dosage because of the pain of the 50mg injection. (Why didn't they just prescribe the 25mg to begin with???) He has to use up the next two 50mg injections, and I am so fearful of a repeat of the hysteria... I know he is too.
Does anyone have any experience with this with their children? He usually has an incredibly high pain threshold... when he got his childhood immunizations, he didn't even FLINCH -- He WATCHED them do it and did not even bat an eye. He is the same when they do his bloodwork each month, but I guess this is very different.
Please post if you can provide your experience with this with your child on Enbrel... I don't know how on EARTH we are going to get those next two 50mg shots into him... I've never seen him so upset... 
_________________________
Ashley, Ethan's Mom
(both Ethan, age 14, and myself have A.S.)
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#91623 - 09/27/06 05:01 AM
Re: Enbrel kids
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rabbjbmom
Member
Registered: 12/06/01
Posts: 113
Loc: Ramsey, NJ
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I hate to say this, but my 18 year old son endured that 50 mg shot for 1 1/2 years after using the 25 mg shots for several years. He is a big guy with a very high pain threshhold and the 50 mg shot would put him on the floor. Nothing made it better. Add to that, for him, Enbrel did not help a lot. It helped a bit. But, after 1 1/2 years he decided he would never take the shot again. We believe he is certainly old enough to make his own decisions about this. He spoke to his ped. rheumy who said it might not be a bad thing to stop it since it had not given him the relief we had all hoped it would. So, all I can tell you is go for the 25 mg shots. They aren't great, but they aren't terrible. Enbrel has denied on several occasions that the new shot is that much more painful. They should listen to the patients. Oh, also, your son says exactly what my son said, it isn't the needle, it is the medicine going in. His doctor says there is something in the solution that is causing the pain.
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#91625 - 10/21/06 07:38 PM
Re: Enbrel kids
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jodylin26
Member
Registered: 01/17/06
Posts: 8
Loc: florida
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Originally posted by EthansMom: Hi guys,
My 11-year-old just started the Enbrel injections a few weeks ago. His last shot, this last Thursday, produced and uncharacteristic hyteria in him that was really upsetting. He ran, he cried, he screamed... he says the injection hurts SO bad. (It's the once a week 50mg injection). We had to practically hold him down and it was awful... I cried right along with him. He says its not the needle that hurts, but the medicine going in... that it stings SO badly.
I called the nurse at his rheumy's office and she says yes, they are very painful (she equivalated it to 10 bee stings), and says that the 25mg twice a week is a lot less painful. She, herself takes the injections and said she had to go to the 25mg twice a week dosage because of the pain of the 50mg injection. (Why didn't they just prescribe the 25mg to begin with???) He has to use up the next two 50mg injections, and I am so fearful of a repeat of the hysteria... I know he is too.
Does anyone have any experience with this with their children? He usually has an incredibly high pain threshold... when he got his childhood immunizations, he didn't even FLINCH -- He WATCHED them do it and did not even bat an eye. He is the same when they do his bloodwork each month, but I guess this is very different.
Please post if you can provide your experience with this with your child on Enbrel... I don't know how on EARTH we are going to get those next two 50mg shots into him... I've never seen him so upset...
_________________________
jody
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#108308 - 04/13/08 04:16 PM
Re: Enbrel kids
[Re: jodylin26]
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Stuppski
Registered Visitor
Registered: 04/13/08
Posts: 6
Loc: St. Louis
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I am a 14 year old 'enbrel kid'. Just started it after 5 years of pain and 4 of medication (was just diagonsed without a doubt recetly however). The first shot was pretty painful, the next was a bit better and well, only had two so far. It seems to be worth the ten seconds of pain for all the releif. That also seems to be so for your son. Obviously you both want the experiance to be as painless as possible, but there will likely be some regardless. I would look into other application methods. I know theres like this sure click thing (what I use) and a regular needle. Maybe experiment with the other type.
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#108317 - 04/13/08 07:06 PM
Re: Enbrel kids
[Re: Stuppski]
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Mr. Unstoppable
Registered Visitor
Registered: 10/13/07
Posts: 227
Loc: Utah
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For a 14 year old you seem quite informed about your potential treatment options(and equally able to express yourself without having to resort to "dope, cool, awesome, etc." every two seconds). Frankly I'm impressed. Make sure you keep that mindset, you are the best possible advocate for your health possible since you understand exactly what you're going through.
_________________________
Dx'd February '07 @ age 19. When the going gets tough the tough get going. So bring it on  http://conqueras.blogspot.com
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#108379 - 04/14/08 02:52 PM
Re: Enbrel kids
[Re: Mr. Unstoppable]
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Stuppski
Registered Visitor
Registered: 04/13/08
Posts: 6
Loc: St. Louis
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Thanks for the compliments =D. I agree with you on keeping your mindset on the positive. You know if something is wrong with you and only you really know when your feeling better or worse. Trust yerself. (I had to do this alot as my diagnosis was a five year process).
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