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#278491 - 07/08/17 09:20 AM Re: Calf pain not going away [Re: worldofme]
Nicole_B Offline
Registered Visitor

Registered: 04/14/17
Posts: 47
Loc: New England, USA
I hope this comes across as kindly as I intend it. But based on some of your previous posts, I wonder if your doctor might quite literally mean "don't worry about it." As in, it is not anything serious/life threatening, although it sounds painful and uncomfortable. Maybe try exploring some simpler options like what has been mentioned above - electrolytes, maybe stretching if it seems muscular. If it might be referred pain from your spine (from bulging or degenerated discs or perhaps stenosis, etc - none off which are life threatening, just potentially painful or uncomfortable), you could see a spinal specialist and/or physical therapist. But I would not worry that it is a sign of something worse going on. Since you have been checked out for this and other things recently, it sounds like nothing serious (as in nothing life threatening) is going on. I would focus first on simpler reasons for the pain and simpler ways of treating it before moving on to other options. As always be patient and try to give things time to work and heal (although that can be hard when it's painful).

That said, I'm not a doctor, and I only know the symptom history you have posted and as you have described it. If you want medical advice you need to ask a doctor outside an online forum. But if you have already consulted one, I would either take their advice or look for a second opinion/referral. (Just keep in mind that a second opinion is not always necessary, even if we do not get the answer we expect - I cannot determine that for you though.)
_________________________
Mid-20's. Undiagnosed upper and low back/SI pain (along with hips & ribs consistently, and neck, knees, heel/bottom of foot, ankles, and wrists periodically). Diclofenac 75mg 2x/day or as-needed. Also PCOS recently diagnosed.

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#278492 - 07/08/17 09:40 AM Re: Calf pain not going away [Re: worldofme]
Thesnakejakw Offline
Registered Visitor

Registered: 06/10/17
Posts: 79
You should really push for a MRI saying that other test results are not showing anything, say you are willing to try any thing they suggest and it's better to be safe then sorry I'm young like you and I have ankylosing spondylitis ect don't let doctors tell you your to young and by all means if you can't get good care try going to a different provider

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#278493 - 07/08/17 01:11 PM Re: Calf pain not going away [Re: worldofme]
worldofme Offline
Registered Visitor

Registered: 08/12/15
Posts: 458
Thanks everyone for the support. I don't think it's pulmonary hypertension.

Any how today I woke up and I notice a vein popping out in front of my leg - didn't have this for sure.

I don't know what's going on. Does AS cause pain in calf?

I just can't be running back to er 3 times a month. Can't afford to.

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#278529 - 07/11/17 03:26 PM Re: Calf pain not going away [Re: worldofme]
worldofme Offline
Registered Visitor

Registered: 08/12/15
Posts: 458
Update:

I went to PCP and he completely assure me this pain is coming from the spine and NOT a blood clot. Negative ultrasound of calf and D-Dimmer is gold standard testing excluding clot.

He examine the leg and said this is all from the spine cause by spondy.

My current diagnosis is " Seronegative Spondalyarthrophy".

He said this disease might convert or not convert into something but NOT AS. He doesn't think it's AS.

My question is is the damage in Spine same from inflammation due to AS or none form of AS?

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#278533 - 07/11/17 04:57 PM Re: Calf pain not going away [Re: worldofme]
SouthernMoss Offline
Registered Visitor

Registered: 03/12/13
Posts: 1710
Loc: MS
Any form of spondyloarthritis can cause damage in the spine, although some forms are more likely to do so than others.

I'm glad there's no blood clot.

Are you scheduled to try another biologic?
_________________________
Ginny - 56 year old female
Dx with USpA in March 2013; changed to AS in July 2015
Iritis and Scleritis
unicompartmental knee replacement June 2014
MTX, Humira, Cyclobenzaprine, plus Indomethacin ER as needed
Supplements: Folic Acid, Vitamin D, Calcium, Fish Oil, Melatonin, Culturelle probiotic

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#278534 - 07/11/17 07:48 PM Re: Calf pain not going away [Re: worldofme]
worldofme Offline
Registered Visitor

Registered: 08/12/15
Posts: 458
Rehum is sending everything to insurance in few days. So he said once tb is clear he's got sample of enbrel.

What's actually weird is ankle indentation marks I started getting last few days.

We know is not heart. I don't see any significant swelling neither did doc.

Anyone have this?

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