Previous Thread
Next Thread
Print Thread
Prednisone #279576
12/14/17 02:49 AM
12/14/17 02:49 AM
Joined: Sep 2015
Posts: 6
North Carolina, united States
L
LarryC213 Offline OP
Registered Visitor
LarryC213  Offline OP
Registered Visitor
L
Joined: Sep 2015
Posts: 6
North Carolina, united States
Hello Everyone,

It has been a long time since I last visited this forum or website. I have a question and I hope to hear from you in response to this question. Have any of you been able to totally stop taking prednisone? I have been taking prednisone for more than 20 years now and I am curious to know if any of us has been able to completely stop taking this medicine. Thank you for your replies.

Sincerely,

Larry Campbell
Hickory, NC


Larry Campbell
North Carolina
Re: Prednisone [Re: LarryC213] #279589
12/15/17 08:12 PM
12/15/17 08:12 PM
Joined: Jun 2003
Posts: 2,922
Reno/San Fernando LU PI
T
Tacitus Offline
Registered Visitor
Tacitus  Offline
Registered Visitor
T
Joined: Jun 2003
Posts: 2,922
Reno/San Fernando LU PI
Hello, Larry:

I was never on prednisone for very long; too afraid of the MYRIAD side effects: Only intermittent use but it is great for gout and epidurals for pseudoarthroses.

Thanks to radical osteotomy, and previous long history with diet, and antibiotics, I no longer have any pain; just deformity from the AS.

Good Luck to You,
John


Nota Bene: I am not a medical doctor, and my views do not represent the opinions of the SAA
AS Resources
My Long, Boring AS Story
Professor Alan Ebringer Diet and AS

Re: Prednisone [Re: LarryC213] #279600
12/17/17 06:00 PM
12/17/17 06:00 PM
Joined: Oct 2014
Posts: 37
Delco PA
K
Kelly669_107 Offline
Registered Visitor
Kelly669_107  Offline
Registered Visitor
K
Joined: Oct 2014
Posts: 37
Delco PA
Hi. Unfortunately, i’ve Not been able to get off prednisone for over 4 years. Currently on 40 mg as I’ve just failed yet another bio.☹️ Bad stuff. I have been able to get down to 7.5 mg, but that only lasted a week or two. Lowest running dose has been 10 mg.

What dose ar you taking regularly? Have you had any issues with your eyes? I thought 4 years was a long time, but good grief, 20 years is 5x’s longer than i’ve Been taking it.

Best of luck!


Kelly
Female diagnosed with AS in 2014.
Keeping an eye on the pipeline of new biologics and therapies.
This one, of all the auto-immune diseases is a real spam - so hard to treat! So, REALLY love to read success stories!!!!!!!
Re: Prednisone [Re: LarryC213] #279623
12/20/17 03:22 AM
12/20/17 03:22 AM
Joined: Jun 2013
Posts: 301
Mid-Atlantic US
G
gardengal Offline
Registered Visitor
gardengal  Offline
Registered Visitor
G
Joined: Jun 2013
Posts: 301
Mid-Atlantic US
Larry - I've been on low-dose (5 mg) prednisone since April 2012, with a few bursts of higher dosage for bronchitis and really bad flares. Have tried twice to get totally off, no luck. Was off for 5 weeks a couple of years ago and ended up in my rheumy's office in tears and much pain. Several of my other doctors have told me they have patients who have been on low-dose prednisone for many years, as nothing else would work for them.

Hang in there! New advances are made every day.


Joani; 71-year-old with undifferentiated spondylitis and erosive inflammatory osteoarthritis in hands & wrists; taking low-dose prednisone, Vitamin D, fossamax, use Voltaren gel for hands & wrists; other meds for heart, thyroid, allergies & sinusitis. Blessed with great husband, 5 kids & their spouses, 10 beautiful grandchildren.
Re: Prednisone [Re: LarryC213] #279948
02/12/18 06:18 PM
02/12/18 06:18 PM
Joined: Sep 2015
Posts: 6
North Carolina, united States
L
LarryC213 Offline OP
Registered Visitor
LarryC213  Offline OP
Registered Visitor
L
Joined: Sep 2015
Posts: 6
North Carolina, united States
Hello everyone. Let me start out by saying that I am so sorry about not keeping up with this thread that I started. Several of you were kind enough to respond to my question and although I have not kept up with it and replied to your comments, I am very grateful for your responses and for you sharing your experience. I wasn't totally honest about why I posted this question. I have been taking prednisone every day for approximately twenty-seven years. My doctor told me that I would never be able to stop prednisone and that the best that I could hope for would be to perhaps one day taking ~5 mg. every other day. I had another doctor, who is a friend, tell me that prednisone is something that is very difficult to stop taking and that he knew one man who took it for one year and that he had a really terrible time when he stopped taking it. I have no idea how or why this happened, but one day it just came to my mind that I was just going to try and stop taking it and see what would happen. The last time that I took prednisone was December the first of 2017. By my calculation, that was 73 days ago. My pain level has not increased. On the second or third day, I noticed that my mind seemed a lot clearer than it had been for a very long time. I have been taking both tramadol and hydrocodone for a very long time, but I have almost completely discontinued taking hydrocodone. I think that I have only taken one or two hydrocodone pills in the last couple of months and that is now pretty normal for me. I have not told my doctor that I have been adjusting my dosages or that I have totally stopped taking prednisone. My disability was approved in 2009. I do not have a supplemental insurance and so I have been unable to take Humira or Simponi (sp?) for something like nine years now. And because of that, I've only been seeing my specialist at five and six month intervals. I'm thinking that he might be really mad at me for making these changes without consulting him. I still have stiffness and almost no flexibility in my spine and neck. That hasn't changed at all. And I still have pain, but it is something that I can live with. When GardenGal said that she had been able to stop taking prednisone for five weeks, I was nervous and more than a little scared that this would not last. And I know that it still might happen, but so far I am okay. I am not having or experiencing any more or any less pain than when I was taking the prednisone and the hydrocodone. I am still taking tramadol, generic flexeril, and meloxicam.


Larry Campbell
North Carolina

Moderated by  ElinAslanyan, RyanMiyamoto 

Powered by UBB.threads™ PHP Forum Software 7.6.1.1