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Re: Differing diagnosis [Re: achala] #282206
12/06/18 08:28 PM
12/06/18 08:28 PM
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SouthernMoss Online
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Originally Posted by achala
Originally Posted by SouthernMoss
I would be asking the rheumatologist about biologics.

And I did... for which I received a stern lecture on trust in relations between doctor and patient.


Sounds like your rheumy felt a little threatened or thought you were trying to play doctor. I am assuming you are not in the USA because of your reference to Google translation. Maybe the culture is different in your country. Even in the US you have to be careful with some doctors not to be too assertive, because they will take offense.


Ginny - 58 year old female
Dx with USpA in March 2013; changed to AS in July 2015
Iritis and Scleritis
unicompartmental knee replacements: right-June 2014, left-Aug 2018
MTX, Humira, Cyclobenzaprine, plus Celebrex as needed
Supplements: Folic Acid, Vitamin A, Vitamin D, Calcium, Fish Oil, Culturelle probiotic, Melatonin (as needed)
Re: Differing diagnosis [Re: achala] #282207
12/06/18 09:16 PM
12/06/18 09:16 PM
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seymour Online
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Originally Posted by achala
Originally Posted by SouthernMoss
I would be asking the rheumatologist about biologics.

And I did... for which I received a stern lecture on trust in relations between doctor and patient.


Pathetic. Change doctor if you can. There's no reason why they should give you a lecture when you ask about a treatment option.

Re: Differing diagnosis [Re: achala] #282208
12/07/18 02:14 AM
12/07/18 02:14 AM
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Whidbey Island WA
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WhiteCell Offline
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It is cultural most likely.


Starting at 18 yrs old > Reiter's Syndrome. Diagnosed 2001 Ank Spon.
Started Remicade 2002 - 5mg/kg every 7 weeks.

Right Eye Glaucoma- Trabeculectomy/lens replacement 2006.
Right eye DSEK Cornea Transplant 2009.
Right eye Ahmed Shunt 2016.
Right eye DSEK Cornea Transplant 2016.
Supra Ventricular Tachycardia. 2004. Cured by RF ablation 2008.

ICU RN - Seattle, WA

~Grasp The Challenge and Succeed~
Re: Differing diagnosis [Re: achala] #282214
12/11/18 09:05 PM
12/11/18 09:05 PM
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achala Online OP
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Well doctor thinks at this stage is worthy to keep continuing with sulfasalazine as the inflammatory markers went down in recent blood tests considering Humira is risky in side effects and does not always work


diagnosed with AS April 2018, starting with cervical pain/stiffness; Aug 2018 enthesitis/bursitis left Achilles
diagnosed with iridociclitis Nov 2017 (4 flares so far) - bilteral, DES
Eosinophilic Gastritis
Signs of inflammations/erosions on MRI`s for axial and Achilles/calcaneus + bursitis
Naproxen (occasionally), Sulfasalazine 3000 mg per day
Supplements: vit A&D, reishi mushrooms, fish oil/probiotic/ Mediterranean NSD
plenty of swimming
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